PPIs are not effective

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Alk301
New Member


Date Joined Sep 2011
Total Posts : 19
   Posted 11/23/2011 8:58 AM (GMT -6)   
I have been suffering from GERD for about 7 years now, and during that time I've tried about 5 PPIs. I have never had any relief from them. I've now had a consultation for Nissen, and the surgeon said that in some people who have no response to PPIs, the surgery is less successful - from a 95% success rate down to 85%.
 
Considering I have no other way of getting relief, I am leaning toward getting the surgery. I was just wondering if anyone else here encountered this problem, and what they decided to do about it? I have moderate GERD that is progressing to severe, so the surgeon says I will probably need Nissen eventually anyway, and I'd rather get it sooner than later. I'm just a little concerned about the surgery potentially being less successful for me.
 
Thank you!

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 11/23/2011 10:28 AM (GMT -6)   
 
You may want to seek out a second opinion re surgery.  If you are not receiving any relief from PPIs, dietary changes etc then 85 % is still good odds to help you with your GERD.
 
I am sure you will hear from other members that have more experience with the Nissen procedure.
 
Kindly,
Kitt
 

 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"

lanab
Regular Member


Date Joined Nov 2011
Total Posts : 136
   Posted 11/23/2011 4:17 PM (GMT -6)   
Problem with surgery that many people get it back after 1-2 years so they need another surgery and the history repeats, that's what my doctor told me so in my country they don't recommend surgery in this case, only in very severe cases

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/23/2011 4:24 PM (GMT -6)   
Alk301-

I didn't respond well to PPIs after a couple years and was recommended to have the nissen. Best decision I have made. In this area they recommend the surgery if the tests show you are a good candidate and don't respond well to the PPIs.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 795
   Posted 11/24/2011 6:10 AM (GMT -6)   
I am not an expert on surgery for GERD, but I've read that the effective life span for surgery continues to increase as techniques improve. For some, once in a lifetime is enough. So many of the people who hang out here are those for whom surgery has been less successful, it seems.

theacidrefluxman
Veteran Member


Date Joined Oct 2009
Total Posts : 739
   Posted 11/24/2011 10:12 AM (GMT -6)   
Depending on the tests pre-surgery you should get an idea from the dr. I am not a good candidate for surgery based on my tests...I may have functional heartburn or hypersensitive esophagus and am starting a medication to treat that once thanksgiving passes. If PPI's aren't working it might be non-acid reflux, refractory acid reflux, functional heartburn, hypersensitive esophagus, or a number of things. IMHO jumping at surgery isn't the best idea...I used to want to, but have since learned that it might not be worth it, it might not solve what you are feeling, and what you are feeling may not even be related to acid. Just my two cents...be sure to be informed before you go ahead with surgery! And do the right tests (PH test, Motility, maybe others).

Alk301
New Member


Date Joined Sep 2011
Total Posts : 19
   Posted 11/25/2011 4:23 PM (GMT -6)   
Yes, I've had all of the tests - upper GI, pH test, barium swallow, stomach emptying study, etc. I have nothing wrong structurally, no other illnesses, but I do have real, diagnosable GERD. I reflux acid about 90 times a day! I'm near desperate for relief, but I definitely don't want to just jump at anything, so I'm taking some time to decide. Thank you so much for all of your help!

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 11/26/2011 3:55 PM (GMT -6)   
Hey Alk,

I would document EVERYTHING - what you eat, when you eat it, how you feel, what lifestyle changes you've had, and over what kind of period of time, and then go to your doctor and lay it out - you're not getting better. If your doctor tells you it's something you just have to deal with, seek a second opinion. Your doctor probably wouldn't accept that as an answer, why should you?

I really hope you get some relief soon!
Ashley

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 11/26/2011 7:23 PM (GMT -6)   
ALK301

nissen may indeed be the way to go especially if you have LPR

PPI ineffectiveness may be an indication of LPR

sometimes acid suppression.... even with big doses of PPIs.... is not enough to protect the upper esophagus which is very vulnerable to reflux...even reflux that has little or no stomach acid

why?

because other enzymes in reflux not contained by PPIs do some of the damage to the upper end

may i suggest....

ask your doc questions about if symptoms and tests indicate LPR and if nissen would help if it is

hang in there
mock turtle

lozzy42
Regular Member


Date Joined Jul 2011
Total Posts : 106
   Posted 12/4/2011 7:25 PM (GMT -6)   
I like yourself have had no relief from ppi's, I've been through the whole lot and h2 blockers and they just took the edge off. I also had the unfortunate side effect of weight gain which just made it a million times worse. So, I decided to come off ppi's completely and try a more natural approach. I have been off ppi's for a week, and I'm feeling much better. Hardly any problems at all. I know this may not be ideal for everyone, but for me It's working great. What I take now is slippery elm tea twice daily morning and night, DGL chewable tablets 20 mins before food, digestive enzymes and non acidic Ester C with meals, apple cider vinegar once or twice daily, and aloe juice daily. As I said not for everyone, but I'm going really well and considering 2 weeks ago I was thinking about surgery, that's now the last thing on my mind.

Loz

Alk301 said...
I have been suffering from GERD for about 7 years now, and during that time I've tried about 5 PPIs. I have never had any relief from them. I've now had a consultation for Nissen, and the surgeon said that in some people who have no response to PPIs, the surgery is less successful - from a 95% success rate down to 85%.


Considering I have no other way of getting relief, I am leaning toward getting the surgery. I was just wondering if anyone else here encountered this problem, and what they decided to do about it? I have moderate GERD that is progressing to severe, so the surgeon says I will probably need Nissen eventually anyway, and I'd rather get it sooner than later. I'm just a little concerned about the surgery potentially being less successful for me.



Thank you!
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