My daughter, age 12, had a toupet fundoplication three years ago and now she has reflux again.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

cdgnirose
Regular Member


Date Joined Nov 2011
Total Posts : 20
   Posted 11/25/2011 5:17 PM (GMT -6)   
My daughter, age 12, had a toupet fundoplication three years ago and now she has reflux again.  She's vomiting about 4-8 times each evening.  This started two weeks ago.  She's on omeprazole again.  40 mg each day.  She's also taking something to help the bowels empty.
 
She is normal weight, not overweight at all. 
 
Like any child, convincing her to try changing her diet is very hard. 
 
We currently don't live in the US, so if she needs special treatment, we'll be going back to the States.
 
I hate to think of her having the Nissan at such a young age.    I don't know what it means if the Nissan doesn't work.  What next? 
 
Are there any alternatives?  Any suggestions? 


opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/25/2011 8:00 PM (GMT -6)   
cdnirose-

Welcome to Healing Well.

As much as us parents hate to see our children go through tough problems in life, I would look into retesting to see if the wrap has failed. It does happen sometimes.

How was she doing before this started?

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

cdgnirose
Regular Member


Date Joined Nov 2011
Total Posts : 20
   Posted 11/25/2011 10:13 PM (GMT -6)   
She was fine until 3 weeks ago. The non stop barfing started 3 weeks ago after a bad cold where there was a lot of mucas drainage going down the throat.

As long as she's standing up, she fine. The minute she lays down or even slouches over, the spitting starts.

How do they test the wrap? I've been reading about those of you who have it done over and over. Is that her future? Shouldn't one time be sufficient. What causes the wrap to become undone?

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 11/26/2011 6:31 AM (GMT -6)   
It's not the rule to have this repeated a lot of times. I have had 3, but my first was done wrong and my first redo was perfect until I had an esophagus tear repaired and the esophagus stent tore my wrap a part. This is the reason for my 2nd redo in August.

A barium swallow should show in the wrap is working or not. some doctors like to do EGDs to see in side the esophagus and stomach too. Also could ask about a PH study if the others don't show anything, but please talk with a doctor abut this.

take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

cdgnirose
Regular Member


Date Joined Nov 2011
Total Posts : 20
   Posted 11/26/2011 8:05 AM (GMT -6)   
Thank you.  We are getting Doctors care here. Unfortunately, where we live, the care isn't up to US standards.  So we've done care by consulation with the experts.  The nurse here is now talking about us leaving the country for treatment.  I've posted a follow up to my questions in a different thread.

GerdHater
New Member


Date Joined Oct 2011
Total Posts : 2
   Posted 12/3/2011 3:51 AM (GMT -6)   
Hi cdgnirose, I sympathise with your daughter's condition. As worrying as it is to think "what if Nissen doesn't work?", there are up and coming alternatives - like Linx, Stretta. I do believe that in 10 years time there will be a definitive solution - it is too big a market for capitalism to ignore. So, be positive and do what you can do and hope for the best. The whole of the GERD community is with you.

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 12/3/2011 8:50 AM (GMT -6)   
Stretta hasn't been done here in the U.S. for several years, as it was found to be too dangerous.

-Bruce

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 12/3/2011 9:54 AM (GMT -6)   
Welcome cgdnirose,

When your daughter was first diagnosed did they discuss the effects of growth on the wrap? Is it possible that it has become loose because she has grown and this has then combined with a tummy bug to bring about the current situation? Can she be given any anti nausea drugs to help settle things down?

MMM
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

cdgnirose
Regular Member


Date Joined Nov 2011
Total Posts : 20
   Posted 12/3/2011 12:38 PM (GMT -6)   
Mudmagnetmum,    I do not recall if they discussed the need for a redo. I was so glad for immediate relief and may not have listened effectively. I now know that a redo isn't all that uncommon. So I'm calmer.
 
Our medical unit (not a gastroenterologist) doesn't know what to do with her. She'll meet with a psychiatrist next week so he can say she's of sound mind and isn't purposely vomiting. (I do not believe that it is on purpose. I see the behaviour and the suddenness of it.) You may easily be right that it was triggered by a stomach bug and now the esophogus is irratated.  She's on something like reglan, the equivalent in this country.  The result is that the constant vomiting has stopped, but she still can't lie down without throwing up. This is still consisent. 
 
Yesterday,  she bent over to pick up some beads that she spilled.  Well, the bending was enough to trigger another episode.   Today, smells triggered her. Onions and vinegar triggered her nauseua today. (I don't know if she reflux or not.)
 
We are still trying a different drug before we go to States.

If I have to, I will send her to her grandparents, they can take her to appointments and get a proper diagnosis. I won't let our medical unit keep postponing proper diagnosis.

GerdHater, I hope you are right and they find a fix for this problem in the next decade. This will be my constant prayer.

Post Edited (cdgnirose) : 12/3/2011 11:47:20 AM (GMT-7)


GerdHater
New Member


Date Joined Oct 2011
Total Posts : 2
   Posted 12/3/2011 6:44 PM (GMT -6)   
bcfromfl, I believe Stretta has been reintroduced in the U.S. market recently. Google for Mederi and Stretta. Mederi seems to be the one who reintroduced and Dr. Mark Noar seems to be the expert on it.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 4:51 AM (GMT -6)
There are a total of 2,973,237 posts in 326,185 threads.
View Active Threads


Who's Online
This forum has 160971 registered members. Please welcome our newest member, dio454597.
313 Guest(s), 3 Registered Member(s) are currently online.  Details
tickbite666, doug9801, Skypilot56