I have a para esopageal hital hernia

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lexipoo
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Date Joined Nov 2011
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   Posted 11/26/2011 5:38 PM (GMT -6)   
I will be going for Sugrey on January 12th 2011.
I am really worried of my outcome of this surgrey how long does this take to heal what has everyone eaten after post sugrey? How long des it take to heal from sugrey. Thank You Lexipoo

lexipoo
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Date Joined Nov 2011
Total Posts : 1097
   Posted 11/26/2011 5:39 PM (GMT -6)   
Glad I joined this group

imstarryeyed
Regular Member


Date Joined Nov 2011
Total Posts : 95
   Posted 11/26/2011 5:46 PM (GMT -6)   
Lexi, I am having surgery for a paraesophageal hernia in December. There is a lot of good information on this board. I found this link from UCLA helpful: esophagealcenter.ucla.edu/workfiles/surgery/nissen_gerd.pdf It gives a lot of advice as to what to eat after surgery and what else to expect.

Starry

lexipoo
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Date Joined Nov 2011
Total Posts : 1097
   Posted 11/26/2011 6:03 PM (GMT -6)   
Thank you Starry I fing this really helpful I am just worried about the pain and discomfort I will be having for awhile I have Cerebral Palsy in my left leg and hand So it kind of makes things a little more difficult for me. I am having my Sugrey at The Hamilton General Hospital and have also had my hital hernia since 2008 and was just diagosned with reflux of 19.8 percent and the heart burn suxs too

dencha
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Date Joined Feb 2009
Total Posts : 7181
   Posted 11/26/2011 6:10 PM (GMT -6)   
Hi Lexi,
Here is another link with post-Nissen food choices.  It is much more liberal than the one posted by imstarryeyed, but is a closer match to the one I was put on post-Nissen.  Every surgeon seems to have their own eating protocol. 
 
While some keep you on liquids for a long time, others don't .  I was on liquids in the hospital, and on soft foods when I was released.  On Day 6 post op when I visited my surgeon, he set me free to eat anything that could be chewed to a liquid.  That made my life a lot easier, since it provided many choices.  It does put more responsibility on the patient, but I was up to the task.  If you take tiny bites and chew, chew, chew, you will do just fine.
Here's the link:
Unfortunately for some reason it doesn't work as a life link, so it has to be copied and pasted into your web browser.
 
I don't know if you've seen my post-op journal chronicling my early days of recovery (my surgery was in February 2009), but here it is, just in case.  It might help you get a better idea of what to expect:
 
I was told that the majority of healing takes place in the first six months, while the remainder takes a full year.  I was on vacation and eating out at restaurants at the four month mark.  Until then it's a gradual improvement...just be patient with your recovery...let it lead the way.  If you can surrender, and follow it wherever it takes you, your recovery will be much easier.
 
I'm glad you've joined us, too!
Best wishes,
Denise
 
 

Post Edited (dencha) : 11/26/2011 4:14:44 PM (GMT-7)


imstarryeyed
Regular Member


Date Joined Nov 2011
Total Posts : 95
   Posted 11/26/2011 6:47 PM (GMT -6)   
Lexi, This must be very nerve wracking for you with your CP. I have had this paraesophageal hernia for several years and it keeps getting bigger. The surgeon said they tend to push on and attach to other organs therefore the surgery can be very tricky. He said he could nip another organ. My primary care doctor said it is a difficult surgery, a difficult recovery but well worth it in the end. Your insides will be pretty beat up as they have to pull your stomach back down where it belongs and maybe stitch it into place then do the wrap. Hopefully, nothing gets injured in the process. I don't expect to feel like normal for several months.

I think everyone's recovery is different but I am planning to be as cautious as possible so as not to have complications. That's why I like the UCLA instructions. They are very conservative and explicit. My surgeon has told me nothing. I am having the surgery on December 13th. I'll keep you posted.

Keep reading. There is a lot to learn!

Starry

dencha
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Date Joined Feb 2009
Total Posts : 7181
   Posted 11/26/2011 7:58 PM (GMT -6)   
Hi Starry,
Surgeons don't tend to give their patients much information prior to surgery, unfortunately.  I've worked on this forum for nearly 3 years, and have seen a wide variety of issues leading to Nissen surgery.  There have been quite a few with paraesophageal hernias that were quite large.  Generally that surgey is longer, and it's possible that your hospital stay may be extended a bit.
 
I never recommend any particular eating protocol, because that's an individual call by your surgeon.  Still, not every surgeon requires that their patients remain on a liquid diet for a full month.  My surgeon didn't think soft foods were all they're cracked up to be either, and can also cause some hold-ups at the wrap site.  His opinion is that chewing food to a liquid is preferable.
 
That said, I wouldn't be a bit surprised that those who have a large paraesophageal hernia will be required to stick to a liquid diet longer, as the procedure is longer and more extensive than the typical hernia, and the recovery is probably a bit more difficult.  I would also wonder if you've been told that the surgeon may need to switch to an open procedure.  Bill, a moderator here, had an open procedure not long ago and has found the recovery to be pretty similar to the lap procedure.
 
Actually, your PCP's description of the surgery sounds very close to what they do with every Nissen...just that the large paraesophageal hernia is more difficult to put back in place.
 
I wish you both the best of luck!
Glad you've joined the forum!
Denise
 

lexipoo
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Date Joined Nov 2011
Total Posts : 1097
   Posted 11/26/2011 8:20 PM (GMT -6)   
Thanks again for all your wonderful tips and all your info has made me learn a bit more everytime I read something new hope all goes well for your surgrey on dec 13th Starry

lexipoo
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Date Joined Nov 2011
Total Posts : 1097
   Posted 11/29/2011 12:36 PM (GMT -6)   
I can't believe my friend just got a GI Doctor he is my friend has a hital hernia just like me and he is seeing the same doc as me that works at The Hamilton General hospital.
he won't get to see him until march 1st Tell me what your opnions are about my friends heart feels horrible from the hital hernia. hope you all are having a good day.

imstarryeyed
Regular Member


Date Joined Nov 2011
Total Posts : 95
   Posted 11/29/2011 2:22 PM (GMT -6)   
Before I knew the scope of damage that can be done by a hernia like this I thought I had a failing heart or something. I was frightened by the pain. Now I believe it's just the pressure from a crowded chest because the doctor said my heart is okay. The same with my asthma. The doctor told me I have the lungs of a 100 year old smoker but I've never smoked and I'm in my 50's.

March seems like a long time for you to wait. Why so long?

lexipoo
Veteran Member


Date Joined Nov 2011
Total Posts : 1097
   Posted 11/29/2011 6:55 PM (GMT -6)   
Because Hamilton's health care system is worthless

lexipoo
Veteran Member


Date Joined Nov 2011
Total Posts : 1097
   Posted 12/7/2011 11:47 AM (GMT -6)   
Hi all how are you doing this morning?
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