How many Nexium tablets do you take?

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minnietoty
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Date Joined Dec 2010
Total Posts : 2805
   Posted 11/29/2011 1:46 PM (GMT -6)   
Hi, I'm new to this forum but I'm a member of the Crohn's forum. I have been a Crohnie for 5 years now and a GERD patient for 13 years. I have NERD (non-erosive reflux) along with gastritis. My doc told me that I should take 80 mg of Nexuim to combat the reflux. I have been on this dose for more than 4 years now. Really, I am relieved. Sometimes, I have to take Nexuim iv or increase Nexium to 120 mg for just 3 days if my stomach flares up. However, I read that taking only 40 mg Nexium for a year can cause osteoperosis, hip and backbone fracture. What about 4 years? Of course, throughout these years, I have taken all forms and types of antacids, ppi and anti-vomiting meds and injections.

Btw, my food is very limited and I don't eat stomach-irritating foods except for tea but this has been for years and I got used to it (I can't get rid of caffeine).

As I mentioned, being a Crohnie, I have to to take a list of meds that irritate any healthy stomach: pred, entocort, methotrxate and pentasa. May be a lot of you are not familiar with these meds but all of them cause stomach upset, nausea and vomiting.

I also suffer from anal and rectal problems (due to Crohn's) and have to see a surgeon. In my last visit, he warned me against the excessive dose of Nexium and repimiapide (an anti-ulcer drug), and said that he is going to talk to my GI to reduce the dose. Honestly, I don't want ,I feel comfortable like that and can't get off it.

Does anybody take this dose? Have you been warned against Nexuim by your doc?

Your answers are highly appreciated.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 11/29/2011 2:07 PM (GMT -6)   
hi there - welcome over to the GERD forum!

Methotrexate is a heavy duty drug, yes, I can understand your concerns about side effects of that and other drugs you have to take. I presume you are monitored for anaemia?

I would suggest your best line of approach is to try to find out what the current state of your bones is - given your medication I think it would be perfectly reasonable for you to ask for osteoporosis screening - the scan and the blood test. I would push for that and then worry about the side effects, if necessary, when you have the results.

Do you have actual reflux, or is it more a problem of gastritis? Your other option, which I'm sure you know, is surgery to tighten the LES, which, if appropriate, may allow you to have less Nexium.

I'm sure other members will be along with their thoughts too.

MMM
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

badbrewin
Regular Member


Date Joined Jan 2008
Total Posts : 24
   Posted 11/29/2011 7:59 PM (GMT -6)   
Sorry to hear about all your health problems and I hope your doctors can guide you towards a primarily medication free solution. As a user of 1 x 40mg Nexium for 7 years, I developed significant joint pain in the last 12 months (shoulders, hips, elbows, knees)...I'm only 41 and in good shape otherwise. Doctors tried putting me on 2 x 40mg Nexium daily; however I did not see any benefits with my reflux, so I remained with 1 x 40mg.

I saw a rheumatologist (sp?) who ran all the marker tests for rheumatoid arthritis and they came up negative, so I really don't know what to think. The reason I had Nissen surgery last week was to go off Nexium entirely since I've read too many negatives on its long term use (been battling anemia for iron deficiency in the last year and I eat plenty of meats), so take it for what it's worth, but I believe it's a nasty drug and should only be used short term.

It's natural for the stomach to have to secrete acid to break down food and help us absorb all the nutrients we need, so it's totally unnatural to suppress that acid too...albeit the reflux can be damaging as well, so you're left choosing between the lesser of 2 evils, unfortunately.

My GI still claims Nexium is safe and would've left me on it for life had I not sought a 2nd opinion.

Always look for options by pushing your doc or looking for 2nd opinions...wish you all the best.

sk55
Regular Member


Date Joined Jun 2011
Total Posts : 225
   Posted 11/30/2011 9:24 AM (GMT -6)   
i was on 2x 40 mg nexium, and 40mg prilosec sometimes at lunch.

i took my blood panels, my levels were fine after 5-6 months on it.


i started to feel some strangeness, so cut out the 40mg prilosec dose.



recently through diet i was able to scale out of nexium completely...(gradually process)

i think some people need some acid, actually improved my LPR.... more acid better digestion, less gas.

the trick is playing with your diet so u can scale out of the nexium.


my 2cents i think you can take nexium for a year with no issues... after that i figure u might get some long term problems.

my GI said u really dont want to be on hi dose ppi for a long period...

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2805
   Posted 11/30/2011 9:45 AM (GMT -6)   
MM, Badbrewin and Sk55,
Thank you all very much. Well, my problem is that is too difficult for me to get out of this drug. I need it to combat all stomach side effects caused by my inevitable Crohn's drugs.
MM, I think it's a good idea to test for bones osteoporosis. I'll ask my doc about it next time.
Take care!

sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 795
   Posted 11/30/2011 1:57 PM (GMT -6)   
I was on 40 mg Nexium twice daily for about a month, but with the Kouffman diet I was able to get back down to once daily.

I tried switching recently to 20 mg Prilosec, which was immediately unsuccessful. My stomach and esophagus were hurting within a day, so I took started Nexium again the next day. I would love to get off PPI's, I had osteopenia (thin bones) even before this GERD and LPR hit.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 11/30/2011 2:13 PM (GMT -6)   
Minnietoti, as I understand it you have a drug induced GERD, so your options are always going to be limited. Do ask for osteoporosis screening so you can find out just where you're at with it. If surgery would spare you some of the acid reflux symptoms and side effects then it may be a viable option, but you would have to discuss that with your specialists. Have you tried any special diets for Crohn's - grain free or specific carbohydrate??

You do say your GERD predates your Crohn's, so is it possible something is driving your GERD independent of the Crohn's drugs? I take it obvious things like coeliac disease got ruled out??

MMM
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

Adam77
Regular Member


Date Joined Nov 2011
Total Posts : 148
   Posted 11/30/2011 11:23 PM (GMT -6)   
I take 1 x 40mg nexium a day.

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2805
   Posted 12/1/2011 7:28 AM (GMT -6)   
Sunbeam, Adam 77 and MMM, thank you very much.
MMM, well, I tested negative for celiac disease. I prefer to stay away from any surgeries. It could be that my gastritis is Crohn's related (though I was never told) but Crohn's can strike any where from mouth to anus.
Take care!
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