6 weeks post-op, lump in throat, mucus, sore throat - have you experienced this?

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Non
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Date Joined Dec 2011
Total Posts : 42
   Posted 12/16/2011 12:19 PM (GMT -6)   
Hi!
Had Nissan 360 done six weeks ago, and my LPR symptoms are way worse then before surgery. Mucus, dry throat, lump in throat and so on. Big problems with my throat... My surgeon tells me everything went perfect and there shouldn´t be a problem, but i´m worried.
Still on PPIs 45-60 mg/day, not sure if the work out... Haven´t tried to get of them yet, scared of what might happen with my throat then.
 
Just want to say that this forum has helped me alot during this awful healing process, hope that someone can help on this matter.
 
Did also notice that there were some other scandinavians here, hello Jesper and Ashley :-) , I´m from Sweden, Hej hej!
 
 

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 12/16/2011 2:02 PM (GMT -6)   
Non

hi and welcome to healingWell

i wish i could help you...but im struggling with the same issues and have not found a solution

no i have not had surgery.... yet..... but its looking like i will

the dry throat, lump in throat (when it gets really bad.... very scary) the mucus and all the rest of the LPR symptoms are driving me insane

i have tinnitus (chronic ear ringing) on top of all this, and it ramped up one month ago to unbearable levels

the one notion that might hold the promise of a solution that i can offer is to do as Dr Jamie Koufman suggests and avoid all acidic foods

if you web search her name and "voice institute" you will get a link to her site with lots of dietary and other LPR information

the only other thing i can do is say,,, you,,,, me, we are not alone and yes this is a bad struggle...sorry....hang in there

mock turtle

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 12/16/2011 11:02 PM (GMT -6)   
Hi Non,
Relax.  At six weeks you're still healing, and all kinds of symptoms can occur.  There is no reason to rush getting off PPIs during this stage of healing.  I agree that you might have some difficulties if you stopped the PPIs now.  Your insides went through a lot--I heard it described as an "egg beater"--and while your outsides are healed and you feel as you should be back to normal, the healing inside has a long way to go.
 
I was told that most of the healing takes six months, and the remainder a full year.  It's way too early for you to assume that your surgery was a failure.
 
I also had surgery for LPR symptoms--mainly asthma--and know it's a trickier fix.  Surgeons generally only expect to get their patients to a "normal" (>14.7 DeMeester) reflux level.  This is great for people with traditional GERD.  They've got DeMeesters that are ridiculously high, and a "normal" score fixes them right up.
 
Those of us with LPR can react negatively to a "normal" score, which is why surgeons are less anxious to recommend Nissens to us.  That said, many with LPR find improvement after surgery.  It does take time.  The healing needs to be complete, so that reflux control is maximized.  The wrap can leak if it is swollen or misshapen, and healing can take some time.
 
Also, there can be a reflux of food and liquid that doesn't make it through a tight, even slightly swollen wrap, that can cause irritation.
 
Try to think positively.  Give your body a chance to heal in its own time.  If you can surrender to the healing process, and let it lead you where it wants to go, you'll find it easier to tolerate.  Try not to get frustrated that it isn't improving more quickly.  Your frustration won't do anything to speed healing, and it will certainly make it more difficult to tolerate your wait!
 
I'm glad you've joined us at the forum.  We've got quite a contingent of Scandinavians, don't we!  Hang in there...things will get better.
Best wishes!
Denise

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 12/17/2011 6:51 AM (GMT -6)   
Hej Non :)
I am day 40 now and I feel exactly like you at the moment, and the past two weeks has been quite bad!
I do however feel that the wrap is very tight since I have food stuck for just a little while almost every day. That has actually been going on since day 11.
So my reasoning is;
1. It is tight alright, which means as soon as it has healed up it will work as intended
2. I have none of the other complication and my stomach generally feels fine

So, “wrap is good” + “minimum complication” = “patience and everything is good” :)

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 12/17/2011 8:00 AM (GMT -6)   
Hi again!
Thanks for your answers, it sure helps.
Guess I´ll just have to wait... I have spoken with my surgeon and he scheduled me for a barium swallow and a gastroscopy, this will probably take place after the weekends. After that, a PH-test. Probably around februari...
I have been on liquids for the last three days and my condition has improved at bit, will probably stick with this diet for a while. Let things heal.
I guess my wrap is tight, I do hear it "slurps" whenever i drink, so maybe my throat irritation is from food refluxing up? But can it really travel all the way up to my upper throat? I do not feel the actual food, but some liquid and (of course) mucus and phlegm.

I would love to here if there is someone who had been through this and, despite the setbacks, had a sucessfull surgery?

Thanks again for your answers, they do help!

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 12/17/2011 9:38 AM (GMT -6)   
Hi Non,
It can reflux all the way up to your mouth.  When I had a barium swallow after my wrap, the radiologist said that the small amount of barium that was stopped at the wrap site was moving up and down the esophagus, presumably propelled by air escaping from my stomach.  Who would have guessed? 
 
In the early months of recovery there are lots of annoying things happening that lead us to worry about a failed surgery.  It takes time to heal.
 
Good luck with your tests.
Denise

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 12/17/2011 1:46 PM (GMT -6)   
Hi Dencha!

How did/do your surgery work out? Interesting with your barium swallow, how did they fix that? Are you ok now?

Thanks for your answers!
/N

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 12/17/2011 2:20 PM (GMT -6)   
Hi Non,
My surgery worked out well.  I was having very severe lung issues, and the surgery resolved those at the 2 and a half month mark.  I'm glad I had it, and would do it again in an instant.  I wouldn't want to go back to where I was then.
 
Actually, I don't think there's anything to do about the issue that the barium swallow revealed.  (My GI doc said that it was the first time he'd seen that result...go figure!)  I think that a dilation of the wrap to make foods and liquids go down a bit easier might work, but then I'd be at risk of more acid refluxing.  I'm happy to live with it.  I just try to sip (or gulp turn ) water after eating to ensure that the food all passes through the wrap.  It seems to work pretty well.
 
I do remember in the early stages burps from my stomach that send liquid all the way to my mouth.  That liquid was from above the wrap, though...not acidic like the reflux I'd had before surgery.
 
There are some quirks that come with the Nissen surgery, but the quirks are well worth the improvements.
 
Try to relax and surrender into your recovery.  It takes time.
Glad you're a member of the forum so you have a place to ask your questions and voice your concerns.
Best wishes!
Denise

will uk 2011
New Member


Date Joined Dec 2011
Total Posts : 17
   Posted 12/17/2011 2:48 PM (GMT -6)   
I think i'm going through the same thing. Try to take your mind off thinking about whether it has or hasn't worked...this won't help and you need to let it heal before you'll get full results...good luck....ps dencha I hope you're right..if this all works i'll come back and treasure other newly wrapped!

will uk 2011
New Member


Date Joined Dec 2011
Total Posts : 17
   Posted 12/17/2011 2:50 PM (GMT -6)   
Sorry should have said reassure not treasure! swype keyboard

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 12/19/2011 10:01 AM (GMT -6)   
Hi again!
And thanks for your answers, I´ll guess we are in the same boat on this one, some of us. Healing will take time.

My condition has improved a bit since I started with liquids, I´m on day six now and will probably stick with it for a while.
Taking my PPIs as usual, but I´m starting to wonder if they help...
Could it be that our throat problems (will Uk 2011, Jeper and so on) is related to the tube they put in during surgery? I´m wondering... Just thinking, cause it gets better while im on liquids....
Oh, and one other thing. Does anyone of you suffer from postal-nose drip? I got mine back after surgery, it has improved a bit, but still.

Argh! Just want to know that everything is okey with the surgery and that all of this symptoms will past...

Again, thanks for your answers.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 12/19/2011 10:41 AM (GMT -6)   
Hi Non,
If your throat was already irritated due to reflux, it stands to reason that the breathing tube put down your throat would irritate it further.  Remember that pre-surgery issues will take a significant time to heal and improve.  Don't assume the worst.  Give yourself time.  It'll happen.
Denise

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 12/19/2011 12:38 PM (GMT -6)   
Hi Non,
It may be due to the tube in the early stages where you are at, but I don't think it is the issue with myself now 42 days psot op.
I still have post nasal-drip too and even though it felt like it was beginning to get better 2 weeks ago I now feel exactly as pre op. Had a major "attack" yesterday where all the LPR symptoms flared up big time.

I am still confident that it is going to be alright though. Just need 2 more weeks and then some :)

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 12/19/2011 1:31 PM (GMT -6)   
Hi Jesper!
Sorry to hear about your LPR symptoms. Have you had any contact with your surgeon? What do they say?
I´m not so sure about the tube-thing anymore, I had my surgery 6 weeks ago and my surgeon said that anything from the tube should be gone by now... So I think we have the same problem.
Are you still on your PPIs? How much/many per day?
 
Hi Denise!
The thing is that my throat wasen´t that sore before the surgery, I was able to settle things down a couple of months before surgery (with a heavy amount of PPIs of course), so you can imagine my worries when it all comes back AFTER the surgery while I´m still on meds... sad

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 12/19/2011 2:17 PM (GMT -6)   
Non, I haven't spoken to my surgeon yet.
I am scheduled for a follow up early February which is ordinary here. I think they assume that until the 3 month mark you can’t really tell whether the op has been successful or not.

I am still on PPI’s even though I tried to step out of them 3 weeks post op. I just kept having the same trouble as I had before and I thought why the hell not stick to pills until I have had the follow up or at least feel a lot better. I take Lansoprazole 30mg twice a day.

Only difference from before is I have a bit of a burning sensation in the esophagus. I only had that before I got on PPI’s which more than a year ago.
That fact together with my trouble with food getting stuck above the wrap is making me think it could be stuff caught on top of the wrap that is irritating the system. But hey, it is pure speculation and I drink a lot of water after meals and that does not seem to have much effect either.

So to sum it up :) I have a wrap that is tight enough to make food get stuck while still having LPR symptoms.
On the positive list I have no major complication from the op. I feel I can get air up, I have not been bloated and actually my IBS is behaving for the first time in 10 years!
A little afterthought. I seem to remember that Paddy83 said something about his IBS or stomach trouble was fine while having the wrap but as soon as it was taken down he had the old trouble again…. hmmm

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 12/20/2011 8:58 AM (GMT -6)   
Found this link about lump in throat and fundoplication....
 
 
Hope it can be to some help, I know some of us suffer from it.
 
/N

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 12/23/2011 4:37 AM (GMT -6)   
Hi!
Some update on my condition, still having issues with my throat. A bit better now, now I have more of a constant (slight) pressure/bit of tightness in my throat. It´s like its always there, except for the mornings when I wake up. I often feel okey in the morning, and then it comes back whitin an hour or two. I try to clear my throat, but almost nothing comes up. Feels like the throat are kind of okey when I lay down. Still on my PPis, 60 mg/day
Does anyone else experience/experienced this after fundoplication? Can it be a part of the healing process? Can all this come from the stomach healing? Like the stomach healing reflects in my throat?
Oh, I just don´t know. .. Hope someone can help me on this matter!

Jesper, how are you doing? Still the same issues?

Merry christmas to you all! In Sweden we celebrate christmas tomorrow.

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 12/23/2011 8:46 AM (GMT -6)   
My swallowing is back to normal, haven’t had anything stuck since 6 days ago. I think that means the swelling is going down and the stomach is being normalized.
Instead of the difficulty swallowing I am now having your throat issues and exactly as you are describing them. I feel good in the morning, but within a couple of hours the tightness is kicking in and the phlegm is building up. By night time it peaks.
Actually this is the symptoms that caused me to have the Nissen Fundo, so I really hope it will get better soon. I am now 46 post op

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 12/23/2011 10:28 AM (GMT -6)   
Hi Non,
Thanks for posting the link regarding the lump in throat sensation.  It's very helpful, and I'll save it to use should someone else come by with a similar issue.
 
According to the link you posted, your throat issues are likely related to bloating, which makes all kinds of sense.  Pressure on the wrap directly affects the esophagus, as the stomach is wrapped around the esophagus then stitched.
 
It makes sense that the gas would rise to the top of the stomach when standing, then put pressure on the esophagus.
 
Hang in there...this recovery takes 6 months for the majority of the healing, and a full year for the rest.  I even found some issues that were still there at one year resolved as I moved through the second year.  One day I realized I wasn't having them any more!
 
Merry Christmas!  Have a wonderful holiday!
Denise

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 12/23/2011 10:31 AM (GMT -6)   
Hi Jesper!
I´m 42 days post-op, so we are on the same page here...
These are the symptoms that caused me too to have the Nissen fundo and as the situation are now, I was better of with just PPIs.

My throat problems has worsen after the surgery (compared to how it was pre-op), or at least they are the same when my GERD/LPR were something in between hell and way to recovery.
I would hate for us to have this surgery done and being worse of then before. Lets hope not.
I´m having my endoscopy january 19 and a barium swallow january 24, hopefully I will know by then. A surgeon´s going to do the endoscopy to make sure if it has come undone or not, good thing for me.
Can´t wait for these holidays to pass. Let me know how things are going for you! Wish you all well.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 12/23/2011 10:32 AM (GMT -6)   
Hi Jesper,
Glad to year your swallowing is improving.  While 46 days seems a long time, it's still at the beginning of your recovery.  Things will improve over the next months as your healing continues.
I'm glad you're sticking around to share your experience with others!
Have a great day,
Denise

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 12/28/2011 11:40 AM (GMT -6)   
Hi!
Hope you all had a great christmas.
 
Some update on my condition: Still slight pressure/tightness in throat, still better in the morning and I do feel that it improves, babysteps.... Almost no mucus/phlegm in throat, good thing!
The thing that bother me the most is that my voice is affected by this whole throat issue, I work as a teacher and I do need my voice in perfect condition! Having ten days of from work now, so I hope things will improve a bit.
 
So, pressure around larynx and affected voice (not noticeable for anyone else but me) is were I am right now.
 
Jesper, will uk, and all of you others, how are you doing? Improvment, yes/no?
Dencha, again, thanks for your answers! You´re the best.
 
 

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 12/28/2011 3:03 PM (GMT -6)   
Hi Non,
I am really glad to hear that you are feeling some small progress Non, good on you. I am now at day 51 post op.

To be honest I don’t really know how I am feeling. I think I am getting dizzy by constantly trying to measure how I am, what my status is, can I swallow, am I refluxing and is the refluxing only air?

The only thing I am sure about is that my healing from the op is going well. Yesterday I did my 3 km run (approx. 2m) without having to stop and without any discomfort. The small lumps under the stiches are slowly disappearing too and my swallowing has improved a lot. I still sometimes get the sensation that something is stuck, but only for a very short while and then it pass. During Christmas I have almost eaten everything (just not as much) and even had snaps, beer and wine with food. I have never had the “bloated-ness” that so many report and I have had no pain since day 3 post op.

So I guess when you sum it all up it is going great! 

The only prop is my throat is still felling very tight, I still have the phlegm building up during the day. Actually the only symptom that has subsided is my voice, cause I don’t think I am getting hoarse any more. I hope I am not grasping at straws here, but maybe that is a first sign of something improving. But as I said in the beginning, and even though I am keeping a small diary, it is hard for me now to feel if I it is better that yesterday or the week before. All I know is I still have symptoms, I am still on PPI’s twice a day and I really hope it will get better soon.

Non
Regular Member


Date Joined Dec 2011
Total Posts : 42
   Posted 12/29/2011 8:09 AM (GMT -6)   
Hi Jesper! And, of course, other members!
Good thing about the hoarseness, let´s hope it stays away!
I have read on another thread here at the forum about the issue with phlegm/mucus and other throat related issues, that it can take months for things to improve.... So I guess we have to hope for the best.
Do you have the exact kind of problem as before the surgery or has it worsen?
How did your LPR symptoms respond to snaps, wine and beer? Did it get worse?
Haven´t really tried alcohol out yet, scared of what might happen. I´ll think I just wait til after my endoscopy and barium swallow in late january.
My biggest concern is that my problems actually worsen right after surgery (now slowly getting better), could it be that my stomach/esophagus mimics my earlier problems during healing?

In the morning when I wake up I feel like "normal" and then the tightness and slight pain builds up during the day. It also tends to get a bit worse after I have eaten, peaking at dinner.
I´m thinking about taking some pills for bloating, even though I don´t feel bloated. But I have read that it can calm things down, not put pressure on the wrap that creates false reflux symptoms like the ones we have.

Also, one question. Do your, or anyone else, have this gurgling sound in your throat? Sometimes it comes random, in between meals, and sometimes with meals. Or is it reflux rising up to my throat?

Long answer, hope it´s okey.

Jesper A
Regular Member


Date Joined Nov 2011
Total Posts : 131
   Posted 12/29/2011 11:07 AM (GMT -6)   
Yes, it seems it takes time and I am still counting on being cured 

My symptoms has at no point been worse than before, just more or less the same. Regarding the alcohol, I had no reaction. Not better not worse, just the same and I don’t know what to make of that. Before surgery I always had some worsening of symptoms, so maybe something is working.
And yes I guess the mimicking could be a fact. It is just hard to believe since the symptoms are so real. My day is exactly like yours. God, worse, worse, bad.

Interesting idea about the bloatedness. If you do try it out, let us know the results!
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