12days out and in bad pain!

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Nal
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Date Joined Jan 2006
Total Posts : 410
   Posted 12/20/2011 2:07 PM (GMT -6)   
Ugh. My wrap feels like it wants to stretch out. My middle back constantly hurts but gets a bit better with burping. I can eat some soft foods but no matter what I et or drink I constantly feel I have to burp and that wrap hurts! Back pain is the worst. Help?

Nancy
I think I have everything under the sun! Lyme disease, fibromyalgia, interstitial cystitis, and GERD. Had my sugary dec 8, 2011

Nancy

bcfromfl
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Date Joined Nov 2011
Total Posts : 417
   Posted 12/20/2011 2:44 PM (GMT -6)   
Hi Nancy --

So sorry to read that you've been having a lot of difficulty adjusting to your surgery! If others' experiences are any guide, you're getting closer to the point when things will begin to get better.

If I might make a suggestion, instead of creating several new threads, if you maintain a single thread, the rest of us can keep up with you, and also see what's already been suggested...in addition to your individual circumstances and symptoms. With multiple threads, it's difficult to keep track of you, plus it helps keep the forum better organized if there are fewer dedicated threads to specific questions from individuals.

Best wishes!

-Bruce

Nal
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Date Joined Jan 2006
Total Posts : 410
   Posted 12/20/2011 3:04 PM (GMT -6)   
Thanks Bruce. I'm sorry. I'll try to keep everything on this post from now on

lanab
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Date Joined Nov 2011
Total Posts : 136
   Posted 12/20/2011 3:20 PM (GMT -6)   
Must be hard not having control of your body after surgery, it will get better with time as most surgeries do.

Nal
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Date Joined Jan 2006
Total Posts : 410
   Posted 12/20/2011 3:22 PM (GMT -6)   
I did just come from the dr. They are gonna run some blood work. I'm scared and so frustrated. I don't know how to do this anymore. Why would the wrap pain and back pain get worse?

lanab
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Date Joined Nov 2011
Total Posts : 136
   Posted 12/20/2011 3:27 PM (GMT -6)   
Don't know, your doctor will probably do some tests, i don't think you need to be scared as it gets worse if you worry too much, i know how it can be when you get worried about things you don't have control over.

The body needs to adjust to the new condition and it will probably have different symptoms on the way of healing itself.

dencha
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Date Joined Feb 2009
Total Posts : 7181
   Posted 12/20/2011 5:14 PM (GMT -6)   
Hi Nancy,
When I discussed the symptom of shoulder pain with my surgeon, he mentioned that there is  no end to the symptoms people report during their recovey.  Do you have shoulder pain?  I'm guessing that since you're not mentioning it, that your back pain is your version of the more traditional shoulder pain.
 
The pain is likely to be caused by the pressure of gas that was pumped into your body to make the surgical field visible, and/or irritation to the diaphram/nerves.
 
I'm sure that your bloating issues are part of it, too.  Are you still taking pain meds?  Do they help at all?  I found that walking helped my pain...the more I walked around the hospital halls the first night, or my house, or the treadmill, the less the pain bothered me.  There was a direct correlation. 
 
You are at Day 12--nearly peak swelling.  The more swelling and irritated the wrap and stitches are, the more pain you will get.  Your wrap has not healed yet, and every time you swallow it's putting pressure on it.  In addition, the swelling is adding to the pressure and pulling at the stitches.
 
You'll soon be at peak swelling, and then it will start receding and you'll begin your journey of healing.  Just take it a day at a time...try to walk, it'll help move the gas.  Take pain meds (have you tried ice?), and hang in there.  It will get better.
 
You're at the toughest part of the recovery.
You can do this!
Denise

Nal
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Date Joined Jan 2006
Total Posts : 410
   Posted 12/20/2011 5:30 PM (GMT -6)   
I do get left shoulder pain. Is thT where yours was? But my entire middle back will hurt. It's worse when I eat or walk too much.

dencha
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Date Joined Feb 2009
Total Posts : 7181
   Posted 12/20/2011 8:09 PM (GMT -6)   
Hi Nancy,
Yes, my pain was in my shoulder, and it could excruciating.  That's a very common location.  Still, my surgeon said that just when he thinks he's heard every possible post-op symptom or pain, someone comes in with a different one. 
 
Here is a quote from a doc responding to a question about post-Nissen back pain:
"As has been commented below, back pain is fairly common after abdominal surgery. Causes can include irritated nerves referring pain to the back, to the healing process exacerbating the back pain."
 
He also told the person asking the question that the pain should be discussed with their surgeon, who will determine whether or not further testing is necessary.
 
A big issue for you right now is the bloating.  I know that is incredibly uncomfortable, and I would think that it would definitely create more pain and pressure on the wrap, and even the nerves of the diaphram/stitches.
 
Have you called your surgeon's office regarding the bloating, and what you should expect as far as relief?
 
You say it hurts when you walk "too much".  I do think it's worth walking less than too much...as much as you can tolerate without hurting.
 
Also...sometimes you can get a rib out of place or stretched muscle when they move you from the operating table to the gurney.  You're dead weight, and you could have had something happen then.  It's more likely to be nerve-related, but who knows?
 
I think you should ask your surgeon's office for some guidance with this.  While the first few weeks (especially the first two) can be very uncomfortable, it sounds as if you're experiencing a higher than average amount of pain and discomfort.
 
I'm sure you're looking forward to the day when this part of the recovery is far behind you.  Sorry I can't help more! 
We're with you, rooting you on! yeah yeah yeah yeah
Best wishes,
Denise

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 410
   Posted 12/20/2011 8:18 PM (GMT -6)   
My dr says it's common. I am at least having bowel movements. The bloating is probably just stretching the wrap some. She did tell me I could have small amnts of ginger ale now? I'm Also going to my chiropractor tomorrow.

Did you have a hernia repair too? I did and she thinks that could be contributing. My ct last week was normal. I'll ask my chiro about the rib too. Thanks!!

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 410
   Posted 12/20/2011 8:20 PM (GMT -6)   
I'm also only at 12 days out. I do have a semi slow emptying stomach too? I dont know. I'm trying.

dencha
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Date Joined Feb 2009
Total Posts : 7181
   Posted 12/20/2011 8:23 PM (GMT -6)   
Hi Nancy,
Yes, I also had a hernia repair.  I'm pretty sure that every Nissen is a accompanied by a hernia repair.  That repair is what keeps the wrap in place.  That's why we have to be careful not to lift during recovery.
 
I'd stay away from carbonated beverages if you are bloated.  You can pour some and let it go flat before you drink it, but the carbonation will only add to your bloatedness.
 
Good idea going to the chiropractor.  Hopefully she can treat you sitting up or on your back...I can't imagine lying on my stomach on the chiropractor's table during the first few weeks.  Ouch!
 
Good luck.  Let me know how it goes!
Denise

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 410
   Posted 12/20/2011 9:45 PM (GMT -6)   
Here's why I had the surgery. If it helps. I was out on ppi's about 12 years ago for heartburn. A few months AFTER starting them I starting getting stomach burning, nausea, bloating. No one could explain why. Over the years I have had numerous tests and studies done. I developed gastritis ( on 40mg of nexium TWICE a day mind you!) and a slower emptying stomach. Eventually I had my gallbladder removed (2005). Because I destroyed it. Still had studies and tests showing gastritis.

Fast forward to 2009. My bladder started acting up. Infections, always needing to go, etc. Was diagnosed with interstitial cystitis. Nothing has helped it. Two minus ago I had another endoscope done because I had mild Chest pain going into my left arm. Had a cardiac work up too. This time they found a small hernia. Never had that before

Opted for this crazy surgery because I do NOT think it's healthy for a human body to be on that much nexium for so long and have all these complications? I felt because my stomach was no longer producing acid that I wasn't digesting food properly and that it was contributing to my health problems... Including the bladder issues

Am I crazy for feeling this way? Is this a story I should share somewhere else on here?

Now on top of recovering from surgery, I have been knocked down from nexium to overthe counter prilosec. I wonder if that could be contributing to the bloating right now ?

I must also add that ever since I started ppi's my stomach has pretty much always burned. That can't be normal

So maybe that explains some things?

Nancy

Ps. Dencha... You have been wonderful! Thank you!!!!! Is there a link here somewhere to what your symptoms were b4 you did your surgery? How's your recovery going now?
I think I have everything under the sun! Lyme disease, fibromyalgia, interstitial cystitis, and GERD. Had my sugary dec 8, 2011

Nancy

lanab
Regular Member


Date Joined Nov 2011
Total Posts : 136
   Posted 12/21/2011 6:14 AM (GMT -6)   
Nal said...

I must also add that ever since I started ppi's my stomach has pretty much always burned. That can't be normal

So maybe that explains some things?

Nancy



It's not uncommon to get burning in stomach after PPIs. i can only take 4-5days and make a break for 14 days or so because i can't tolerate PPIs.

Everytime i stop i always get 1 or 2 day with burning that goes away eventually....

I beleive the body is trying to compensate for the loss of acid and actually produce more at some times.

What's the point of having surgery when you still have to take PPIs? didn't the doctor inform you about this?

My GI told me when i did the endoscopy last week that he beleived i had a Hernia but wasn't sure as it was difficult to see, he needs to do a CT as well to confirm, anyway he said they could do a small surgery and tighten it a bit, i told him no way i am going surgery for this as it can get worse with other problems so i am waiting for the results soon what they say.

Post Edited (lanab) : 12/21/2011 5:23:54 AM (GMT-7)


stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 12/21/2011 10:01 AM (GMT -6)   
Nancy,
 
Just wanted to let you know I am reading your thread and I so agree that Denise is giving you great support and caring as you travel this road she has already been down.  You have my support and I am here to cheer you on.
 
You will be OK.  Sending your many holiday blessings.
 
Kindly,
 
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 410
   Posted 12/21/2011 11:17 AM (GMT -6)   
Starting day 13. I hate even waking up right now. At least i sleep. I am slowly coming off the ppi's now. I have to be careful cuz I get severe rebound effects. I think my anxiety is taking a toll as well right now. Not just from this, but financial issues in mu life. It's crazy.

lanab
Regular Member


Date Joined Nov 2011
Total Posts : 136
   Posted 12/21/2011 11:31 AM (GMT -6)   
Nal said...
Starting day 13. I hate even waking up right now. At least i sleep. I am slowly coming off the ppi's now. I have to be careful cuz I get severe rebound effects. I think my anxiety is taking a toll as well right now. Not just from this, but financial issues in mu life. It's crazy.


Yeah i know, the wakening up in the morning is the worst part of the day, you slowly wakes but feels that nasty soar in throat and you force yourselfto sleep another hour or so.

Have you tried Probiotics in liquid form? you may try it and see if it helps, i take it and it helped me very mcuh, don't know what's happening but it does something to the stomach.

Nal
Regular Member


Date Joined Jan 2006
Total Posts : 410
   Posted 12/21/2011 2:53 PM (GMT -6)   
No i havent tried those yet.  Although i am eating activia which has probiotics in it.  I had something concerning today.  My drs office called and said my lipase numbers were elevated (pancreatic levels).  They say this is normal after surgery.  Can that be right?  Im still having the bad back pain when i eat.  I dont know what to do anymore. :(
 
Nancy
I think I have everything under the sun! Lyme disease, fibromyalgia, interstitial cystitis, and GERD. Had my sugary dec 8, 2011

Nancy

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 12/21/2011 4:27 PM (GMT -6)   
Hi Nancy,
Anxiety and worry can create problems all their own.  If your doctor says that the lipase levels are normal after surgery, it makes sense to believe that.  It's not worth the effort to add that to your list of worries.
 
Did your surgeon tell you to go off the PPIs?  With the issues you're having post-surgery, do you think it's wise to make that change right now?
 
Just remember that your upper GI tract has undergone a major revision and it will take time to heal and for your body to adjust.  Also, your organs were moved around by surgical tools, so your insides are not happy generally.
 
I can't really speak to the things that you experienced prior to the surgery.  I can just tell you that at Day 13 post op, your difficulties are totally within the realm of normal.
 
Try to relax and just go with the flow.  Take your pain meds during the day if you need them.  Try ice on the painful areas. 
With time you'll heal and things will be better.
Denise

Post Edited (dencha) : 12/21/2011 3:30:20 PM (GMT-7)


Nal
Regular Member


Date Joined Jan 2006
Total Posts : 410
   Posted 12/22/2011 11:54 AM (GMT -6)   
Well it's 2weeks today. My stomach is starting to burn. I may need to try some carafate to see if it helps. My surgeon wants me off the ppi's to see if o reflux at all. Rt now I'm on over the counter prilosec only. Well see what happens

Still getting back pain and pain that radiates to my left shoulder. Am able to eat a little bit more. Having a very soft scrambled egg now. I'm sooooo grumpy though! My poorl kids!

Nancy
I think I have everything under the sun! Lyme disease, fibromyalgia, interstitial cystitis, and GERD. Had my sugary dec 8, 2011

Nancy
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