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Juliz
Regular Member


Date Joined Oct 2011
Total Posts : 29
   Posted 12/21/2011 3:38 AM (GMT -6)   
skull   skull   skull    Hi all
 
      Been awhile since my last post, all is still on the iffy side. Went to a new Dr and he said everything seems to be working o.k.,would hate to see a wrap that is'nt!!!. I have pasted the one year mark 12-6 10 and things are still giving me heck on the eating front and issues with my throat. Im Sstill having tightnes in the breastbone and area along the esohagus ,do'nt feel like food is stuck and don't have food that feels like it's gets stuck. Thats a good thing.
       I'm still feeling like I HAVE indigestion but not really acid feeling just alot of pressure. They put me on h2 blockers to SETTLE down my stomach and throat and esohagus...not doing much that I can see skull skull skull
I also get a tight feeling across my upper back and shoulders...I THINK THIS OLE GIRL IS FALLING APART smhair smhair smhair
      Does anyone out there have these problems after a year in the post op stage or am I the exception.I was surfing and ran across the Facebook N/F site and many of them seem to be drinking wine and eating choclate at 3 weeks WHAT nono nono nono nono nono Dont know about that.
     As I said in my earlier whining.. I have done all the right things for my recovery and was  very careful so I truly thought I would be doing good by now ,that is why this is so frustrating for me.
     If anyone can tell me that recovery can take longer then I WON'T be worrying that this is a dismal failure . If anyone can let me know I will be grateful
        I still am very careful no red meat watch the glutan,and pasta,acidic foods etc. but it's frustrating since this is the reason I had the surgery so I COULD eat some of these things and not have Gerd.
         please help... Kindly Juliz sad   sad   sad   sad       
 
 

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 12/21/2011 10:52 AM (GMT -6)   

Juliz,

How long does it take ?  This varies wildly. I've seen some folks here report getting back to normal in one week. Since they never came back later to report anything else, I have to believe them.

I have also read posts from members that stated it  took them 10 weeks to get back to work, 8 months to overcome massive fatigue, and 10 months to eat anything they wanted, though they  still had to be careful at that point. Some members reported  12-14 months before they never ever had to think about their GI system at all. And then there are the folks that still have issues so to give you a time frame is difficult. 

Try to relax and keep on believing that you will  get better with time.

Kindly,

Kitt




~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 12/21/2011 11:30 PM (GMT -6)   
Hi Juliz,
Sorry that you're still struggling.  I am glad to hear that some things are improving. 
 
I can tell you this...at the one year mark I still had some quirks (for example, dumping episodes and loud gurgling), and somewhere into the second year I suddenly realized that I wasn't having those problems any more.  Hooray!
So I can say that you can continue to improve past the year mark if you're anything like me!
Good luck!
Denise

Juliz
Regular Member


Date Joined Oct 2011
Total Posts : 29
   Posted 12/22/2011 3:05 AM (GMT -6)   
 
 
     Thanks for the posts,
               I guess the frustration level is the fact that one I had this surgery to relieve my 30yr struggle with acid reflux and the impact it had on what I could and could not eat and all of the side effects from it and the medications and such. I now seem to be taking more pills than before and I STILL feel like I'm having some sort of reflux but the tests say everything is working right..hernia repair and wrap all intact. But I am showing slight reflux. SO h2 blockers to settle down my throat.I sometimes feel their running me in circles I get alot more info on this forum than anywhere else;for that I'm grateful.
              I still have so much trouble with eating and how foods effect me; I'm still eating pretty much what I was at 3mo post op...fish,chicken,mashed potatoes,soft veggies,soup cereal. If I eat bread, pasta meat or certain fruits and spicy foods I get indigestion. Part of the reason for the procedure was too be able to eat things that you had trouble with before and my diet is 10 times more limited than before the surgery!!!! Im still taking Beano,Maalox and Gasx,something I did not take before.
   I do take it a day at a time and I am getting on with life but it has been a hard road to climb. I HOPE I too will one day not have to think about my stomach all the time and that as year 2 is upon me one day things will be okay and I can say HOORAY!!!!!
 
  kindly Juliz
 
 

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 12/22/2011 9:37 AM (GMT -6)   
Hi Juliz,
Unfortunately, sometimes people who have this surgery have underlying GI issues unrelated to the reflux, so when they are healed still experience some of the same problems minus the extreme reflux they had prior to the surgery.
 
There's no way a surgeon can get reflux to zero and still have the wrap loose enough to allow food through.  They are going for a "normal" amount of reflux that shouldn't be a bother.  People who go through their lives without GERD do have some reflux...just not enough to cause any problems.
 
I also have underlying GI issues that aren't solved by my wrap.  I have a reactive stomach, and once it gets irritated it takes a long time to settle it down.  I take a PPI at dinnertime to help keep the acid down so it doesn't irritate further, and Carafate Suspension to keep my stomach coated.  Because my wrap is made out of my reactive stomach, it also gets irritated, which isn't fun.
 
That said, I'm thrilled with my results.  My lungs were extremely sick from my reflux (although I never had extreme amounts, it was enough to affect them tremendously).  With all the other GI issues I experience, I still consider the surgery a huge success, as it cured my lungs and made them much, much healithier.
 
A Nissen can't cure anything but extreme reflux.  Other stomach issues will still be there.  I still can't drink coffee (except on special occasions) and wine must be enjoyed sparingly, and only when my stomach is feeling well.  Raw veggies and popcorn can irritate my wrap and stomach.
 
Those things have nothing to do with my reflux.  When we have underlying, non-GERD related issues with our GI tract, we will still have them post-Nissen.  That's when we have to face up to the fact that we need to learn to accept what is and live happily with that.  I have to make adjustments to my life.  If I want to live happily, acceptance of what is, will help. 
 
If you have underlying issues, and you've been to specialists who tell you that there is nothing serious going on, you have a choice.  Fight against it, or accept it.  By all means get second, third, and fourth opinions.  However, when all is said and done, it is as it is.
 
Hang in there!  We can do this!
Denise

Post Edited (dencha) : 12/22/2011 9:54:37 AM (GMT-7)


Juliz
Regular Member


Date Joined Oct 2011
Total Posts : 29
   Posted 12/22/2011 12:03 PM (GMT -6)   
 
     
       Thanks Denise,
      
   I too have a very sensitive stomach and guess it could be called reactive , in that I get gastritis alot and my throat seems to have the same issues. It is good to know that I'm not on this boat alone..even if it feels very leaky at times :-) The Dr. also put me on carafate and h2 blockers and I felt when he did my surgery was a failure but I GUESS I read to much into things and as I said I hear people saying how they can do this and that and I forget that we all have different healing times and bodies react differently.I also tend to forget that I also had radiation last year as well as Breast Cancer surgery and that alone could be part of the problem with the healing.It sounds pretty weird to say I forget about that and more focus is on my stomach smilewinkgrin smilewinkgrin I know where my mind is Eating smilewinkgrin smilewinkgrin smilewinkgrin smilewinkgrin smilewinkgrin
   Thanks again for the info and it is great to get a glimse into other peoples recovery and that is why I LOVE this forum.
       Kindly Juliz

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 12/24/2011 11:15 PM (GMT -6)   
Hi Juliz,
You are so right.  Everyone is different, and we all react in unique ways to the surgery.  Things certainly aren't perfect with me, but the surgery can't improve my reactive stomach.  It did what it was supposed to do--protect my lungs.  My bouts with gastritis are better than they were pre-Nissen, when the acid would migrate into the esophagus.  I am very grateful for that.
 
Also, having a reactive stomach makes my wrap more sensitive...after all, the wrap is made from that same stomach tissue.  Still, I deal with it.  In the big picture, it's a small thing.
 
I think that your surgery and radiation have certainly played a role in your post-Nissen recovery.  I have said to others that I continued to have improvements past the one year mark.  Here's hoping you will, too.  Just remember that the surgery can't do anything for our quirky stomachs!
 
Hope you're having a wonderful holiday season!
Denise

Tandem Rider
Regular Member


Date Joined Jun 2011
Total Posts : 122
   Posted 12/26/2011 10:22 AM (GMT -6)   
I had a TIF instead of the NF last April. I also continued to have problems after 4 months although in some ways I was much better. A second pH test and scope showed that my reflux was much better. The post surgery scope did show two well healed ulcers, I had been on carafate for two months. I had 5 scopes previously and nothing was ever said about ulcers. I may have developed the ulcers after surgery.

On the diet after surgery I started eating and drinking more dairy produces. After the diet I continued to consume more dairy products. I read about lactose intolerance and reduced my dairy consumption. I improved from the less dairy. You may have a second problem such as some type of intolerance.

Good luck,
Sheldon
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