is full symptom supression realistic for most of us?

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theacidrefluxman
Veteran Member


Date Joined Oct 2009
Total Posts : 739
   Posted 12/23/2011 5:43 PM (GMT -6)   
Oftentimes when I worry about getting Barrett's or never getting better I often think its because I can't completely control my symptoms. Is full symptom control the realistic for someone with long-term GERD? In other words...barrett's doesn't often progress to cancer, but does your average person with Barrett's have full symptom control now? Or does your average GERD sufferer struggle as much as many of us here seem to?

Is it realistic to battle GERD for decades without full symptom suppression, or does everyone struggling with GERD have more or less consistent symptoms throughout their battle? Am I a normal GERD patient if I can't get symptoms under control, or am I an abnormal GERD patient?

As some of you know I am 28, so I wonder if my long-term experience with this is going to be one of feeling symptoms but still getting by...Personally, I have had GERD since the beginning of 2008, had full symptom suppression for 1.5 years but have been struggling since then with no end in sight. I have also been advised against the surgery for now, and would prefer somehow being able to avoid it myself...

Post Edited (theacidrefluxman) : 12/23/2011 4:46:23 PM (GMT-7)


opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 12/23/2011 5:47 PM (GMT -6)   
ARM-

For me the only way I got full symptom suppression was from my nissen. Before that I always had symptoms to varying degree even with PPIs twice a day. After 17 years of uncontrolled GERD I opted for the surgery.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 12/24/2011 3:57 AM (GMT -6)   
Hey ARM,

This is a question I myself have been struggling with - am I ever actually going to be back to normal? The doctor who did my gastroscopy said he couldn't see that the surgery would fix anything (since all the anatomy was normal) but here I am, still suffering. My normal doc is e-mailing a GI to see what can be done, but I'm worried that this might be it.

I can't remember why, but why have you been steered away from the Nissen? Did your doc say he didn't think it would help?

I'm sorry that these thoughts are coming now. I myself am running quite low on optimism so I definitely understand.

Merry Christmas!
Ashley

sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 795
   Posted 12/24/2011 6:29 AM (GMT -6)   
In the rest of my life I have learned to live with some degree of discomfort. I have a lot of arthritis, and a neurological problem from my back. So I will continue doing all I can to feel good, but also expect that things just won't go back to where they were before all this started.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 12/24/2011 7:15 AM (GMT -6)   
I think we see a skewed representation of GERD here - all the people for whom medication is very successful are out there leading almost normal lives (the lucky things......) and not visiting us here on the forum. The forum users seems to be mostly made up of people who are headed for surgery, recovering from surgery, weighing up surgical options, or (like us) are not being put forward for surgery but medication isn't a 100% success.

And I do personally know one or two people who are on Omeprazole and have complete symptom resolution and no side effects. To all intents and purposes they lead normal lives - whether or not life long usage will catch up with them at some point is another question, but if I felt as well as them I wouldn't be worrying about it!!

MMM
New stuff: GERD. Interstitial Cystitis
Lifelong stuff: Food allergies, eczema, asthma

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 12/24/2011 7:34 AM (GMT -6)   
Hi ARM,
I think MMM is absolutely correct...others out there are doing very well with PPIs and are GERD free when using them.  Unfortunately it's likely that those of us who frequent this forum have much less of a chance to be helped in this way.
 
Actually my first GI doc felt that PPIs were more than sufficient, and his only answer was to double up dosage.  He did not think much of the surgery or any of the newer options.  Rather, he felt that PPIs had made the surgery unnecessary and the newer options were untested.
 
I wish you all a way to find full relief.  If you can get ALMOST complete relief, that might just be all you can expect.   I also think some of us have systems that react more strongly and experience more pain than others with the same amount of GERD.
 
Try to enjoy the holidays!  I hope you can find some yummy treats that don't cause problems...
Denise

lanab
Regular Member


Date Joined Nov 2011
Total Posts : 136
   Posted 12/24/2011 11:53 AM (GMT -6)   
I was diagnosed with GERD 20 years ago. i had endoscopy back then and put on Zantac for 6 months, i was healed and it never came back until now so i managed to stay away from it for many years so yes it's possible

WJF
Regular Member


Date Joined Sep 2011
Total Posts : 273
   Posted 12/24/2011 9:27 PM (GMT -6)   
"You become what you think about".

If you have not a single doubt that you can fully control the symptoms, chances are you will be able to do so.

I tried, i failed, I tried again, I sought help, I experimented with several tips, suffered from several sleepless nights, before I finally recovered from it.

Have faith in your body. It has amazing ability to heal.

Post Edited (WJF) : 12/24/2011 8:32:33 PM (GMT-7)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/24/2011 10:16 PM (GMT -6)   
With me, I spent 10 years starting from occasional tums to 80mg of nexium and 300mg of zantac.
I never got better, so I chosed the surgery. I'm very happy that I did the surgery. I was scared of it, but I felt like anything that would stop my constant coughing and gagging on reflux was worth the chance.
Joy

mock turtle
Regular Member


Date Joined Mar 2011
Total Posts : 467
   Posted 12/24/2011 10:48 PM (GMT -6)   
all

never give up hope that there will be big scientific breakthroughs in the coming decade

and amongst ourselves we can make the best of the anatomy we have, as we share what little things we learn, that make a bit of difference for the better, here and there

dont give up hope

im just not gonna let this gerd-lpr thing beat me down...lets duke it out!

merry Christmas
mock turtle

ps

theacidrefluxman, regarding your question...keep in mind that even "normal" people dont have full symptom control...normal people reflux ! ! !

best wishes
mt
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