Hi again --
The fact that you're gathering a pretty cohesive history with your symptoms and treatments is good! Make sure your doctor is following all of this. I think it's significant that your eosinophils seem to be concentrated in the lower region of your esophagus. I also had the "rings" when the EoE was first diagnosed, although, in my case, the counts were fairly evenly distributed from top to bottom, and no higher than 14 per HPF. Now the rings are gone, and it's managed with the swallowed inhaler I mentioned.
It's possible that the "fullness" you described in your esophagus is simply a mucosal response to certain foods, and not necessarily a symptom of either the EoE or reflux. I used to try to eat those big pretzels when I was younger, with mustard, and it would cause a strange stricture of my esophagus that would result in me choking and gagging. It wasn't because I was nauseated, because I loved eating them! (Or trying, anyway!) Something in that combination would cause the response, but it was long before I had anything resembling EoE or reflux.
I'm really surprised about
the rice causing heartburn, as rice is one of our "good" foods. You know yourself, of course, and how you feel. I wonder if it's possible that the rice is difficult to swallow because of the EoE, and tends to clump a little at the LES? Is it all rice, or just certain types that may have more starch in them? Sometimes foods will do that to me. I am vegetarian, too, although not because of health reasons. I include dairy/eggs in my diet.
It's also good to maintain a little skepticism about
medication, sometimes, and ask questions like "...what's all this for?" Trying to manage your life being heavily medicated is not a good solution, either. I'm relieved to hear that your family is so supportive! So important!
I can't take PPIs because they all cause massive headaches, so I understand where you're coming from about
the side effects. I had the TIF procedure in August, but it was unsuccessful in stopping all the reflux...so I'm still trying to manage the LPR symptoms. I don't eat past 3pm, go to bed at 12-1am, sleep on an incline, and chew two Gaviscon tablets before bed. It's not a perfect solution, to be sure, but it's all part of the "drill"! ;-)
I was a professional singer before the symptoms took my voice away, and was working on my first CD. I still stay up late each night, working on the mixes of my songs, expecting that someday I'll be able to add my vocal tracks. Maybe it sounds silly, but that's how I keep the hope going -- even though it's been well over a year since I could sing...
What do you love to do? What motivates you, or makes you really happy? Focus on that when you're feeling down, and cast your troubles aside for awhile. In just the few words you've written here, I can see how well-spoken and introspective you are. There's a lot of good going on inside that head of yours!
Keep the faith!
Post Edited (bcfromfl) : 1/6/2012 10:51:48 PM (GMT-7)