Upcoming Nissen surgery

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JTF2mbr
New Member


Date Joined Dec 2011
Total Posts : 14
   Posted 1/17/2012 11:13 AM (GMT -6)   
As a new member, I have been reading with ernest as to the abundance of views regarding G.I. complications. Personally, it has taken me 3 years of testing and preparing as to making a decision whether to have Fundoplication surgery or forgo and remain in a negative quality of life situation. My decision to agree to surgery was not made in haste, I "chaired" a meeting with my Doctors, 2 thoracic, 1 G.I. specialist and the asesthesiologist who would care for me. They effortlessly explained all pre-op, surgical and post-op situations that I may experience. Needless to say, along with my relentless studying of all available resources it came down to one issue, that being quality of life. The last 10 years of my life have been hell. I became more aggressive in the last year as the "light at the end of the tunnel", became dark and the will to remain in this situation became a struggle to live. If not for my wife and my children, I may have not remained in a living spirit. As well I have much gratitude to my doctors who could recognize that walking in my shoes was an endless torture to spirit and mind and body. I was scheduled to have surgery on the 13th of Jan., however my date was moved to the 23rd., for unknown reasons. Here in the Great White North, our health system has taken a hit, but I remain totally confident and quite positive that the right decision was made. As I read over the staggering numbers of suffering souls in this forum, my own personal view that is worth conveying to the members is everything comes down to quality of life.

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 1/17/2012 11:38 AM (GMT -6)   
Hey JTF,

I couldn't agree more on the value of quality of life. I myself took it for granted, and here I am suffering. Oh well.

I'm glad you had such a great team to help you make your decision for surgery. How reassuring that they all took the time to sit with you and explain things. A lot of complaints here post-op are about the lack of preparation; kudos to you for researching your own health and options thoroughly.

Best of luck to you, and please keep us posted after your surgery. Don't forge that swelling peaks at about day 14, so don't feel discouraged if the results don't come right away. I hope they will, though :)

Which Great White North do you hail from, if I may ask? **EDIT - I got it. I've never heard of that before!**
Take care,
Ashley

dbaseii
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 1/17/2012 2:03 PM (GMT -6)   
I investigated the fundi surgery years ago and found that all the patients I interviewed, still had to take the anti Gerd medications and did have repercussions from the surgery as well. Only less than 50% of those I talked to, had experienced a total remission of symptoms. No one I talked to, recommended it.

Having had GERD all my life due to an inherited Hiatal hernia, I suffered for years, slept sitting up (and still got GERD), avoided acid foods and more. Then I, by serendipity, discovered a cure for me. What happened is my hubby of many years, went to the hospital and I lost my appetite (he got a brain bleed from the daily aspirin he was taking ** sigh ** confused ). I knew if I stopped eating completely, I would get sick so being a member of Weight Watchers online, I decided to force myself to eat what they said I should have, per day, about 1200 calories a day. My GERD went away. Completely! I still do avoid the acid causing foods, most of which one shouldn't have anyway, but haven't had any GERD at all since 2008, February. I ended up joining the classes (Weight Watchers) and became a lifetime member in Oct 2009. I had also lost 110 lbs and have kept this off since March 2010.

I avoid all fast food, junk food, high fat food etc. I don't know if this would help everyone (following the Weight Watchers program) but I think before one has invasive surgery, one might consider trying this if they haven't tried it. I don't think of myself as cured but rather in remission - but I do sleep lying down now. I think during 2010, I consumed ONE Tums all year - that's pretty good for a person who used to take so many TUMs I got a kidney stone! (in 1998). I also used to need a nightly alkaseltzer - the one time I had GERD in 2010, we didn't even have any alkaseltzer. I took one TUMS tab and was OK. tongue

You can get a partial fundi which doesn't close off the stomach completely like a fundi does - the partial is very new and sounds like a better option. Hope this helps - if you have not tried the WW program, it might be worth a try. (and no, I don't work for WW) nono
Sue Joan
http://healthread.net

JTF2mbr
New Member


Date Joined Dec 2011
Total Posts : 14
   Posted 1/17/2012 5:51 PM (GMT -6)   
I appreciate the sincere comments and look forward to many more exchanges. dbaseii, I am presently on a very bland diet , which took a very agonizing long time to get accustomed to. My weight situation is very controlled: 6ft,190lbs. My previous occupations have taught me many insights and discipline about body metabolism and structure. My doctors have enlightened me about a partial Nissen, however I also have Barrett's esophagus and the risk of a cancerous anomaly weighs heavy on my decision. My reflux is absolutely out of control and as you are aware the threat of aspiration pneumonia is of utmost concern. I have been hospitalized 3 times in the last 10 months with full blown pneumonia, along with the development of pleurisy with lungs filled with fluid. In a nutshell the proposition of this continued struggle with my health has further hastened my decision. I find some solace in being involved with others in this forum. Thank-you.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 1/17/2012 8:09 PM (GMT -6)   
Hi JTF,
 
From your description of your problems, there is absolutely no doubt in my mind that you'll benefit greatly from the surgery.  You're a Nissen surgeon's dream.  People like you are a sure thing...large amounts of reflux can be stopped, and you can regain a normal lifestyle.
 
I have also been hospitalized for GERD induced lung issues.  I have asthma, so though the reflux wasn't as severe as yours, my asthma made my lungs even more reactive.
 
I had a Nissen done in February 2009 after four years of severe lung issues.  My asthma doc and PCP were pushing me toward surgery, and my GI doc was pushing me away from surgery.  My asthma doctor said that GI docs are only concerned with high amounts of reflux that can cause esophageal damage, and have no idea how much damage a small amount of reflux can do to someone's lungs.
 
Unlike you, I'm one of those patients who are not a sure thing.  I could have had the Nissen surgery with no improvement in my lungs.  Fortunately, I had tremendous improvement in my lungs, and today I'm healthy again because of the surgery.
 
If you haven't read my recovery journal in the Resources section, you might find it helpful in giving you an idea of what the first couple weeks of recovery will be like.  Here's the link:
 
I'm very glad you've joined us! 
Be sure to continue to ask questions that come to mind.  We're here to share our own experience and offer lots of support!
Best wishes!
Denise
 
 
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