Can I hear some positive Nissen stories...

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LocalGuy23
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Date Joined Sep 2011
Total Posts : 620
   Posted 1/18/2012 10:09 PM (GMT -6)   
Ok guys, I have I believe is LPR. My symptoms is not typical...I get a burning sensation from my stomach to my mouth basically. Initially 9 months ago I had chest tightness, slight regurgitation, and later it went up to the throat and then mouth. It doesn't feel like liquid but more of a vapor.

I know lots of people who had asmatic symptoms is considered a form of lpr and got better through surgery with a nissen. I met with the surgeon and I told him my symptoms. I wasn't responding to the ppis. He said he can help me and can make me go from a 10 being the worst to a 2 as far as quality of life.

My Demeter score was about 23 and I have normal motility. Most of my reflexes was upright. I'm going to go through with the surgery no matter what but wanted to hear some positive stories. Thanks

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 1/19/2012 1:44 PM (GMT -6)   
I am doing great after my last redo in August. Eating anything I want. Actually my 1st redo in '09 was great also, but do to an esophageal tear I had to have it redone again.


Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

aciphexo
Regular Member


Date Joined Apr 2011
Total Posts : 377
   Posted 1/19/2012 1:50 PM (GMT -6)   
Hi Maximus ..

I remember you were looking to get LINX done from Italy last month - right?I'll be curious to know how you've moved away from that direction to Nissen. What about TIF? You think it may not be enough to tighten the LES?

Thanks.

Ryobe
Regular Member


Date Joined Aug 2011
Total Posts : 36
   Posted 1/19/2012 2:06 PM (GMT -6)   
My nissen and hiatel and abdominal hernia repairs were done August 16th.  I am pretty much eating anything I want now.  I had prime rib at Christmas.  I still have not braved salad or loaf bread yet, I am chicken but I am sure I could.  I am also waiting for a double lung transplant so if I can do it and come out kicking then anyone can.  Some amazing folks on this forum walked me through the early days and helped so much.  I am still on protonix but only because transplant does not want to take any chances.  Good luck!
 
Ryobe

imstarryeyed
Regular Member


Date Joined Nov 2011
Total Posts : 95
   Posted 1/19/2012 2:25 PM (GMT -6)   
Maximus,
I had nissen with large paraesophageal hernia repair on Dec 13th. Yesterday I ate a large chopped (raw) veggie salad. No pain at all. I have never suffered from heart burn or reflux but my asthma has disappeared. I am cautious when it comes to lifting and chewing but I have to remind myself I've had surgery. No complaints, no problems 5 weeks post op.

Starry

LocalGuy23
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Date Joined Sep 2011
Total Posts : 620
   Posted 1/19/2012 4:35 PM (GMT -6)   
Thanks guys.

Ppi less - the more I thought about...I wanted to go with the surgery that has been around and I have a surgeon here locally who can help me and if I have any problems.

I'm not so worried about the recovery but I just hope the surgery can help alleviate some of my symptoms.

For those with asthma...do you recall having your symptoms all the time or only after you eat? Also, do you recall if your ph test showed upright refluxing? Thanks

bowecho
Regular Member


Date Joined Nov 2011
Total Posts : 146
   Posted 1/19/2012 4:35 PM (GMT -6)   
I had my Nissen on 11/22. I am doing great, I couldn't be happier with the results. I've said it quite a bit on here, this surgery has changed my life. The last couple of years have been hell.

I'm back to eating everything, meat, bread, and foods I could never eat before. Only problem now is I am starting to gain weight since I can eat anything. I've gone a little crazy enjoying all of the foods I haven't been able to eat for years.

A couple of my symptoms were LPR symptoms (though I was never officially diagnosed with it, the term was thrown around quite a bit). Globus sensation and excess mucus in the throat. Those issues took a while to decrease (as the surgeon explained), now at 2 months out, I'd say they are 75% better. Most of the time I don't notice it. I am confident that in time they'll be completely gone.

Other symptom was classic GERD chest pain, constant pain all day long. That cleared up very quickly.

You'll read lots of negative stories online, but like with anything, people who are enjoying the benefits of the surgery are not online talking about it. They are too busy out enjoying their new lease on life! Its great that there are a number of folks who had positive experiences with the Nissen stay around here to share their stories.

Also, I've read every Nissen related post for about 3 months. You see a trend with almost every single case. The first few weeks are rough. You even have thoughts of regret. The diet sucks. The pain is no fun. The recovery is slow, and you feel countless odd sensations while your body tries to figure out what the heck happened. But, over time the posts become more positive, people are eating more, pain is decreasing, energy is returning. You finally realize, Denise (who is amazing on here) and everyone was right, things get better!

Hope this helps,
Tony

Post Edited (bowecho) : 1/19/2012 3:38:52 PM (GMT-7)


LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/19/2012 4:41 PM (GMT -6)   
Thanks a lot guys. I'm meeting with my surgeon next Thursday. Ill be keeping everyone posted on my recovery as well as if I have any questions.

My lpr symptoms are mainly a burning vapor feeling from stomach to my mouth....at first it was more chest tightness and nasal congestion...then changed to globes feeling and throat tightness....no real heartburn....but at times I could feel chest burning as well.

I hope the surgery helps. My surgeon said he could improve my quality of life by 80 percent going from a 10 being worst to a 2. No surgeon would say that if he didn't believe so after hearing my symptoms and seeing my test results right?

Do you think surgeons are more willing to pursue surgery than gis?

Thanks

bowecho
Regular Member


Date Joined Nov 2011
Total Posts : 146
   Posted 1/19/2012 4:51 PM (GMT -6)   
Its hard to say, every surgeon is different, but my surgeon used hard data to convince me. He knew he could help me because out of X number of Nissens, he's had this much success with people that have my symptoms. Seeing those numbers helped convince me. Your surgeon could be doing the same.

I saw 2 GIs. One thought the surgery was a good idea as long as you carefully choose a surgeon with experience and a record of success. The other felt the same and actually referred me to the surgeon I used.

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/19/2012 4:55 PM (GMT -6)   
My GI was hesitant about surgery because of my atypical symptoms. But I wanted to pursue it so I sought out the best surgeon in my area and spoke with him. After reviewing my case he believes he can help me.

I guess I'm just really nervous if it will work or not

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/19/2012 6:13 PM (GMT -6)   
Beware of anyone promising you an 80% improvement in your life style.  I am surprised that you have someone telling you that.  It is usually not what a surgeon will say re any surgery.   How much your life improves is subjective. 
 
Am I correct in assuming you have not met this surgeon in person yet ?
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/19/2012 6:16 PM (GMT -6)   
I have met him 2x actually. Didn't say 80 percent but he said he could make me go from a 10 to a 2. I know several people who had great success with him so it makes me feel a little better but still I'm cautious. I will still go through with it but just need some reassurance. You hear so many negative stories that kinda scare you

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/19/2012 6:25 PM (GMT -6)   
My surgery was over two years ago and although the GI wasn't sure it would help my lpr I found an excellent surgeon and had it done.
I haven't regretted one day of having it done. My healing was atypical. I was off pain meds in four days. I did restrict my diet for 12 weeks. My surgeon was strict with my diet plan. My GI released me at the 4 months mark.

I have no complants.
Joy

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/19/2012 6:27 PM (GMT -6)   
Joy can I ask what we're your symtoms? How was your oh test and motility results like? Thanks

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/19/2012 9:59 PM (GMT -6)   
Also, what kind of physical and eating limitations do you have after a nissen. I will go over this with surgeon but wanted to hear actual stories. Like when did you get back to work, exercise, up and about, etc. thanks

KITW
New Member


Date Joined Jan 2012
Total Posts : 7
   Posted 1/19/2012 10:56 PM (GMT -6)   
I just posted a long one on the other thread about my Nissen.

6 years ago, doing better now. Long long road to where I am now.

Changed gastro docs 2 years after surgery, and new one said he would NOT have had me have the surgery, instead he would have just had me take PPIs and watch it and possibly consider lazer later if it didnt clear up.

My dysplasia in the esophagus went from HI grade to MID grade now LOW grade... so I guess it's working.

BEST FRIEND is BEAN0 over the counter... stock up on it!

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/19/2012 11:39 PM (GMT -6)   
Also, what kind of physical and eating limitations do you have after a nissen. I will go over this with surgeon but wanted to hear actual stories. Like when did you get back to work, exercise, up and about, etc. thanks

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/20/2012 5:06 PM (GMT -6)   
Max,
I was told not to lift anything over 5lbs for six weeks and slowly add as I felt able to add. I was told not to bend over during that time also.
My diet was as follows:
weeks 1-2: liquids
Weeks 3-4: pureed foods
weeks 4-5: soft foods
weeks 6-7: firmer foods, but no raw fruits or veggies, steak, tough meats, or bread
weeks 8-12: Slowly add firmer foods until eating normal

*Anytime I had problems with the next step I'd go back one step and start over again.

I was able to go back to work after two weeks. I was able to drive to the grocery store on day ten and do a little light shopping. I couldn't push the buggy though it made me sore. I was only there 30 minutes. It did wear me out some.
I was able to walk around some the first two weeks, but really didn't feel like it. My stomach was tender and swollen. Speaking of which you need sweat suits one size too big for recovery. My belly swelled so much I couldn't button my jeans for three weeks.

You will need a small pillow to hold on your belly for when you cough, sneeze, hiccup or blow gas. It eases some of the pain it will cause. I had hiccups for 4 days after my surgery.
Like KITW said gasx and beano will be your best friend for a year or so. :P
Joy

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/20/2012 5:52 PM (GMT -6)   
When did to the gasx?

Also what symptoms did you have? Thanks.

Just getting nervous.....I know I need this but just hoping it helps

aciphexo
Regular Member


Date Joined Apr 2011
Total Posts : 377
   Posted 1/20/2012 6:08 PM (GMT -6)   
Maximus -
You say you get a burning sensation from your stomach to your mouth - which means you probably get burning sensation in your chest/esophagus area as well. So, why do you think this is not heartburn? I am curious to see how you are characterizing your symptoms as atypical.

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/20/2012 6:13 PM (GMT -6)   
The weird thing is that I had the chest burning several months back. PPIs didn't help much. It's like a constant symptoms but it changed over the months to what experiencing now. I strongly believe it is malfunction of my les or digestion. I have signs of dental erosion as well. I just hope nissen can help allievate some of the symptoms. I'm definitely willing to take that risk I just hope it helps. It definitely helps hearing more positive stories though. I also like to think that a majority of successful stories don't post on the web as well. All we can do is be hopeful.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/20/2012 8:19 PM (GMT -6)   
The gasx helped with the bloating the first two weeks after surgery. After the surgery for some reason we all swallow extra air for awhile and gasx gets it out so we don't hurt from it.

I coughed constantly from the acid getting into my lungs. Sometimes I hurt and almost blackout from the vegus nerve getting pinched as I swallow food.
Joy

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/20/2012 8:33 PM (GMT -6)   
Is the gasx usually taken before meals or only when you feel gas pains?

Also, do recall if your ph test showed lots of upright refluxing?

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 1/20/2012 8:46 PM (GMT -6)   
My reflux was off the charts laying or standing. All was good after I had the surgery.

Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/20/2012 8:54 PM (GMT -6)   
I majority of my reflux is in the upright position. Not really sure how if even if I should be interpreting the motility test but my symptoms are pretty constant....burning sensation from the stomach to my throat mouth. The weird thing is if I put pressure on my abdomen like near my chest it subsides.

I trust my surgeon that he can help me but I'm still cautious.

Have any of you had similar symptoms that got better from surgery.

I know asthma is an atypical symptoms and a lot of asthma suffers get better through surgery. I don't have asthma but I hope surgery helps
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