progression of diagnosis

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ny100
New Member


Date Joined Jan 2012
Total Posts : 3
   Posted 1/26/2012 5:41 AM (GMT -6)   
i was just diagnosed on monday with silent acid
reflux-dont fit typical profile and had no
symptoms except swallowing had been
different, but not painful for over a year.
2 others docs didnt consider this. new doc prescribed
3 months of prevacid, diet and lifestyle
changes. question is -if he suspected
esophageal cancer, would he have done
biopsy that day or would he really wait
3 mos after meds? thanx and grateful
for this forum

zeldagoblin
Regular Member


Date Joined Mar 2010
Total Posts : 204
   Posted 1/26/2012 7:09 AM (GMT -6)   
Hi there, welcome.

I was also diagnosed with silent reflux, still ongoing because the consultants can't agree. I would say that if cancer was at all a possibility they would have ordered the tests for as soon as possible to rule it out. I also find it hard not to think about cancer, and I live in an area where the health care is notoriously bad, but I figured if I am still OK now after 5 years then cancer is not a likely cause.

If you do worry about cancer you could voice your concerns, the doctor can then either organise tests to rule it out, or reassure you as to why he doesn't see it as a risk at this moment.

I hope you improve, LPR (silent reflux) can be a nightmare.

Much love,

Liz

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/26/2012 8:14 AM (GMT -6)   
Welcome to HealingWell and I am glad you found us. 
 
Reflux of digestive contents occurs when the one-way safety valve at the bottom of the esophagus fails to close correctly. Heartburn is the usual response to the reversed flow of harsh, acidic, digestive juices. However, many GERD sufferers do not signal this problem with heartburn. Called atypical/silent GERD, patients have little or no heartburn. They have numerous manifestations, i.e., hoarseness, lump feeling in the throat, runny nose, post nasal drip, ear pain, fatigue, chest pain, short of breath, cough, etc. (atypical GERD has been called “The Great Masquerader”).
 
I agree with Liz, if you have concerns re cancer do express them to your new physician.  Is it safe to assume your Dr. dx you on your physical exam and symptoms only ?
 
Kindly,
Kitt

 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"

ny100
New Member


Date Joined Jan 2012
Total Posts : 3
   Posted 1/26/2012 9:24 AM (GMT -6)   
thank you for replies! to answer kitt's question,
yes, the diagnosis was based on my
symptoms and a scope from
nose to throat. the diagnosis was unfamiliar
to me so i didnt have questions at the
time. he used term acid reflux, but not
barretts esophagus. i go back for recheck
after the 3 mos of meds. that sounds
like a long time for doc to wait if cancer
was a concern. hoping for the best.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/26/2012 9:40 AM (GMT -6)   
ny
 
Thank you for your answers. It sounds like you  had a flexible laryngoscopy which enables your Dr to get an immediate look at your throat and nasal passages.  When you return in 3 months or sooner, if your sx become worse, I would ask your Dr. about your concerns as well as having an Gastroscopy ( UGI scope).
 
I feel it is a good thing that you had the scope as many Drs. simply dx on symptoms alone.  Remember to be your own best advocate as well as continue to talk with the members here in the forum as they have a wealth of knowledge.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"only as high as I reach can I grow, only as far as I seek can I go, only as deep as I look can I see, only as much as I dream can I be"

ny100
New Member


Date Joined Jan 2012
Total Posts : 3
   Posted 1/26/2012 10:24 PM (GMT -6)   
thank you for the encouragement to call
my doctor. i spoke to the nurse today and
she reassured me that if he had seen
anything suspicious, he would have ordered
additional tests immediately. that is, he
would not
wait the 3 mos. I will still bring my list
of concerns to the next appt. thanks
again. i feel alot better.

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 1/26/2012 10:35 PM (GMT -6)   
Hi ny100,

I have GERD/LPR....my symptoms have changed over the course of 9 months. It started which a mild chest tightness, then to throat tightness (globus feeling), then a burning sensation from the stomach to throat/mouth area. I also have some dental erosion as well form the acid/bile/and other things that come up a faulty valve.

I initially went to my PCP and did a course of omeprazole which did not really help, went to see a GI, did an EGD with a course of protonix, prevacid, and finally nexium without much control of the symptoms.

I went to see another GI for a second opinion, he ran another EGD, PH Bravo Test, and Manometry test to see if I was a candidate for reflux surgery which I was...but my syptoms were atypical compared to the typical heartburn/volume refluxer. He was hesitant to fully recommend surgery because of my symptoms. I felt lost at the time. I went to seek the best bariatric surgeon in my state and had him look at all my records, tests, and listen to my symptoms.

He felt he could help me.

I am scheduled for surgery on February 6th and I will let you know how that goes.

Not everyone's case ends up in surgery but this my story. I hope you get relief some way. Good luck.
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