Help please with qusetions post op for tracheal stricture

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Taylynnsmom
New Member


Date Joined Feb 2012
Total Posts : 3
   Posted 3/1/2012 12:22 AM (GMT -6)   
 Wow I cannot believe that I finally found some people who are dealing with the exact same things that I am going thru.  I spent 2.5 years telling my G.P. that there was something wrong with my breathing and it was not asthma, but he kept trying different puffers and pills.  What a crock, when I finally got referred to a respirologist, within 1.5 months I had a diagnosis and was on my way to see a Thoracic surgeon.  I had two dilations last year and was wondering what the success rate was.  The surgeon seemed to be pretty optimistic that I would not be back, but I am starting to feel that my breathing is getting worse again.  Anyone have any comments on what their success rate has been.....  I had my surgery done at Toronto General in Canada, and I was used as a teaching case, I guess it is fairly rare to get this.  My gp just started me on a ppi (dexisilant- just new on the market) saying that I may have silent GERD as well.
 

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 3/1/2012 7:21 PM (GMT -6)   
Hi mom, welcome to the forum.

Your GP may be right this time. Anyway trying a PPI might help. Was he going with a guess on the asthma, didn't do any GI testing like barium swallow or manometry, which would have been diagnostic for a problem with the esophagus?

Can you explain how stricture in the esophagus affects breathing - which is through the trachea?

Taylynnsmom
New Member


Date Joined Feb 2012
Total Posts : 3
   Posted 3/1/2012 9:24 PM (GMT -6)   
Thank you for the welcome Alcie!!
 
My G.P. did some preliminary Pulmonary Function testing, but nothing else.  the stricture I have is about a centimeter long, and just below my vocal cords.  If you have ever heard an asmatic in the middle of an attack and how they wheeze, well that is what I sounded like all the time.  I had shortness of breath and didn`t even have to be doing anything, just trying to put a message on our answering machine in our office that we were closed.  I also had very noisy breathing.  When I finally went to the respirologist, he did a PFT, CT of the chest and thorax(neck) and a bronchoscope(where they put a small camera into the windpipe to see what is happeneing).  I had a diagnosis from him in about a month and a half.  Then I went to a Thoracic Surgeon at Toronto General Hospital where I under went another bronchoscope, this time with dialation of the trachea, after that I had another CT, and again another dialation.   Now I am in follow up with the respirologist, and I fell that my breathing is getting bad again.  I was sondering if anybody has under gone more than 2 dialations, and what the success rate might be.....My thoracic surgeon said that if I have to go back then it will most likely be a tracheal resection.
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