Long term prospects for LPR

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Silas1066
Regular Member


Date Joined Feb 2012
Total Posts : 36
   Posted 3/6/2012 6:01 PM (GMT -6)   
I know that dietary changes and medications are needed to control LPR, but how long do I need to take these measures?

Is this something that ultimately goes into remission or gets much better, allowing us to go back on a typical diet? Or is this something that is going to require major lifestyle changes for the rest of our lives?

has anyone here gotten better?

I am going into a major depression over this condition: a LPR diet basically means 99% of foods are off limits, and I can't have alcohol or coffee. I would have to sleep upright, etc. For a person like me, who loves fine wine and food, to be told I have to give everything up forever is a major blow. It is almost life-ruining.

I am trying to find something positive here, but all I see are horror stories about failed treatments, failed surgeries, failed diagnostic testing.

Chuck T
Regular Member


Date Joined May 2011
Total Posts : 143
   Posted 3/7/2012 9:04 AM (GMT -6)   
I think for the most part, you can expect to have to make some life style changes. Either that, or just deal with the burn. That being said, I t hink there is hope on the horizon. Contrary to what you may see on this board, surgery generally has good success with LPR. The LINX surgery should allow a much less invasive option for those of us suffering. Im hoping it is the answer to my problems. PPIs started working for me after about 6 months (Dexilant), but gave me terrible IBS issues.

LocalGuy23
Veteran Member


Date Joined Sep 2011
Total Posts : 620
   Posted 3/7/2012 11:00 PM (GMT -6)   
Silas,

What kind of symptoms do you have?

Silas1066
Regular Member


Date Joined Feb 2012
Total Posts : 36
   Posted 3/8/2012 9:00 AM (GMT -6)   
I have globus off and on, graveley voice off and on, sometimes a mild throat irritation, sometimes feels like food is getting stuck in the back of my throat when I eat.

I mouth breathe all night because of sinus issues, and wake up because my mouth and throat are so dry.

I don't have any "burning" sensations, only the feeling of everything being totally dried out and irritated.

Dietary changes and medication don't seem to be doing anything. I've been on 40MG Prilosec for 5 weeks and no caffeine, alcohol, spicy food for 2 months.

I am in good shape and run 2-3 miles daily.

Just can't get rid of the throat issues. Initial scope by the ENT was negative: he didn't see any inflammation. I go in for a full endoscopy on the 20th.

aGAD
New Member


Date Joined Apr 2012
Total Posts : 1
   Posted 4/20/2012 8:39 AM (GMT -6)   
Hi Silas
Were you diagnosed with LPR? Are you on any meds? I am finding this depressing as well, I love fine food and wine, and it is a big part of my social life. Plus I am afraid to take PPIs because of possible rebound reflux and long term effects.
I was diagnosed last spring after visiting an ENT for what I thought were sinus issues (nasal drip, burning nose, sore throat). Barium swallow showed pretty normal. Over the last year it was pretty manageable - life and diet stayed pretty much the same, but I had a flare up a week or so ago with bad heartburn as well. I have altered my diet drastically and am taking natural remedies, but I am terrified it will get worse or not calm down again, and I am really concerned about the long term effect of acid on my esophagus/throat :(

poortummy
Regular Member


Date Joined Jan 2012
Total Posts : 33
   Posted 4/20/2012 9:07 AM (GMT -6)   
I have LPR, GERD and aspiration in lungs.  Afraid of the surgery and trying to stay away from it i have addapted a lifestyle change.  I eat every 4 hours, 4 times a day.
 
My diet consists of : oatmeal, pears, bananas, steamed veggies, fat free yogurt, baked or grilled fish and chicken, water, carrott juice, baked potatoe once in awhile, melon, sugar free pudding. Anything alkaline.
 
Gave up sodas, alcohol, citrus, tomatoes, white flour products, fried foods, fatty foods, chocolate, sweets, sugar. I treat myself with frozen yogurt sometimes.
 
I lost 20 lbs in 2 months.  Now weighing 115.  I feel better than I have in years.  I was poisoning my body with junk food, which I crave. 
 
I was so sick ended up in hospital on IV antibiotic for 4 days,  Spent about 3 months in bed from fatigue.
 
Was told by 3 drs that if I didn't get surgery I would end up dying because of aspiration in lungs, which are damaged from that.
 
I am doing great on this diet.  When it came down to my health or changing eating habits it was a no brainer for me.
 
Bought an temperpedic ergo bed and sleep with head raised.  Amazing difference.  I do still take Nexium 2 x day.  Sit up in bed 3 hrs  piror to laying down completely.
 
I am one with no will power, but you can find it in yourself if the alternative isn't good.
 
I am still keeping my eye on Linx...but that would be last resort. As long as what I'm doing is working I'll stick to it.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/20/2012 9:17 AM (GMT -6)   
aGAD,
 
Welcome to HealingWell.  I hope that Silas sees your post and will get back to you.  I understand how hard it is to accept that we must make lifestyle changes when we are dx with medical problems but remember change is a process and not an event. 
 
Relapse is common, perhaps even inevitable.  Experts urge a person not to be derailed by it but to think of it as an integral part of the change process. You learn something about yourself each time you relapse. For example,  you may find the strategy you adopted did not fit into your life or suit your priorities.  Next time, you can use what you learned, adjust, and be a little ahead of the game as you continue on your pathway to change.
 
If you find all of this is to much for you to deal with emotionally do seek out the help of a professional counselor who can work with you to learn ways to accept change while learning to control your anxiety.
 
Kindly,
Kitt 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"Life is not about waiting for the storms to pass...
It's about learning how to dance in the rain."~ Vivian Greene

poortummy
Regular Member


Date Joined Jan 2012
Total Posts : 33
   Posted 4/20/2012 9:21 AM (GMT -6)   
ps

These meals are small meals. Like a pear for lunch, steamed broccoli for dinner. Pretty much 1 thing at a time.
You don't get hungy because you can eat (must eat or you body will go in starvation mode) in 4 hours.
i also have terrible IBS...this diet helps that. Drink a ton of water.

sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 795
   Posted 4/20/2012 2:21 PM (GMT -6)   
The Koufman diet was developed for Lpr. I have had great success with it. Scroll back a few pages and you will find the thread.
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