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joe1619
Regular Member


Date Joined Dec 2009
Total Posts : 293
   Posted 3/22/2012 10:59 AM (GMT -6)   
i read gaviscon can help with lpr. anyone know anything about this. the ent yesterday said theres nothing else they can do. wrap is intact. when i asked about the bile in my stomach he said ask gi. he did see bumps in my throat but said nothing..really impersonal. as far as pain in my throat and constant mucous he said everyone has mucous im just sensitive and the fundo makes you feel everything. he blamed the globus/mucous on the fundo saying i was just sensitive. funny diddy i had it before fundo, then went away post op now back. personally i think hes clueless. i know i post a lot everyone but does anyone have anything to offer. im sorry if im abrasive so many view then dont respond dencha did you say your wrap may have loosened but since its intact they wont mess with it. also, anyone know anything about bile. the gi doc. mentioned roux en y but said the surgeon didnt want to do it because im skinny. im refluxing 50 plus times many to the throat almost all non acid

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 3/22/2012 8:06 PM (GMT -6)   
Hi Joe,
Yes, I've heard others finding help with Gaviscon.  It seems to me that people here have found the Gaviscon sold in the UK is better than here.  Hopefully someone will weigh in on that.  I don't know if you can get that via the internet.  I may be wrong, but I thought I read that here somewhere.
 
Yes, my asthma doc wanted to make sure that my wrap was intact.  I have severe allergies and they can affect my lungs.  Since LPR can mimic allergy symptoms, he wanted me to go through the testing to rule out reflux. 
 
I had all he testing done and the surgeon concluded that my wrap was intact.  As you said, he would not touch any intact wrap.  He said that each Nissen that is done is more complex than the last one, and that it is important to proceed with caution.
 
While I take some reflux precautions because of my reactive lungs, I don't notice any reflux.  Still, I continue to sleep with the head of my bed elevated and take a Protonix before dinner.  My asthma doc and PCP request that I follow that protocol, and I don't mind a bit.  I know that a Nissen can't bring reflux to zero, or the wrap would be too tight to swallow food.  Still, since the surgery, my lungs have been GREAT.
 
I'm very sorry to hear that you're still struggling.  Do you think you ought to pursue the issues with another, new doc, who might have a fresh look at everything?  There is definitely SOMEONE out there who can help you.
 
Very best wishes, Joe,
Denise

joe1619
Regular Member


Date Joined Dec 2009
Total Posts : 293
   Posted 3/23/2012 7:54 AM (GMT -6)   
first thank you for responding. it is very discouraging right now. i find myself breaking down feeling hopeless. the depression is now full force too. my anxiety is so high as my worry..so u being there for me i appreciate. i am trying the regular and if it helps a little i will order from the uk. i am at a loss. there is one teaching hospital u of iowa and the gi said what u said not a surgeon is going to touch me... your right we need such a tight wrap we couldnt swallow. what i think happened is the wrap has loosened. the reflux episodes on impedance have tripled. i wish they could just tune us up every year. recently i was sick and wretched on and off all day. horrible. if i could have vomited i would have felt better. we have different problems but the same disease. the reflux used to impact me more like you then it switched..weird..i mean the respiratory stuff. i just need it a little tighter but it is such a risky thing. my gi doc told me preop in his opinion the fundo often starts failing after a couple years. anyone else with thoughts especially on gaviscon let me know. im at the end of the rope. as far as reflux i do feel it but again no one will help. im in my 30s. if i didnt have 2 kids i would just check out..the pain in the throat is too great. ugh. thanks again denise for being there for me and sorry for all the questions. my emotions are everywhere

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 3/24/2012 9:39 AM (GMT -6)   
Dear Joe,
I just had a response almost completed and it disappeared when I obviously hit the wrong button on my computer.  Seriousy, this has happened multiple times daily, and I'd appreciate any input as to what I'm doing wrong.  When I put my heart and soul into a response and it disappears, I often don't have the energy left to do it again!
 
I'll try though.
There are a few things that come to mind after reading your response.
 
First,  I suggest strongly that you seek help for your emotional response to this huge challenge.  Chronic illness is extremely difficult to handle, and you've been up and down with this, trying to find answers and solutions to your reflux issues.  Anxiety and depression go hand in hand, and are certainly understandable considering what you're going through.
 
You referred to your children as motivation to keep going, and I suggest you use that motivation to give you the strength to seek out help for the affects of the emotional roller coaster you've been riding.  My husband has also suffered with anxiety and depression, and I can tell you first-hand that your emotional state affects your wife and children greatly.  I'm sure they feel helpless and stressed in the face of what you're going through. 
 
If you can get your emotional issues into a more positive place it can provide you with more energy and strength as you seek help for your physical problems.  You've said that you're at the "end of your rope", and that's not a good place to be...you need more rope to guide you to the answers you are seeking.  Get help so you have the energy to seek help.
 
I still say that I believe that there is help out there for you.  I'm sure it will take time and energy to locate the right doctor, but that doc is out there.  If you can get your emotions in check, it can help you project a more reasoned explaination of your symptoms and what you're going through.   If your emotions are so close to the surface that you can't communicate calmly, it makes it more difficult for docs to sort out what's going on.
 
Don't give up.  There is help.  Keep seeking it out.  You're likely going to have to travel, but do the research and select the medical center/doctor very carefully.
 
Keep coming back here for support.  We're here for you, Joe.
Denise
 

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/24/2012 4:15 PM (GMT -6)   
Joe,
 
I am sorry you are still having issues.  Sometimes referred to as a globus sensation, globus hystericus is the feeling of having something stuck in the throat. The phenomenon is sometimes known colloquially as having a frog or lump in the throat. This condition does not actually interfere with the process of swallowing, although it tends to make the action somewhat uncomfortable. It is not unusual for people to experience globus hystericus when under a lot of stress or dealing with a situation that makes them nervous or anxious.
 
It can affect swallowing, but be sure to check out the swallowing problem thoroughly. You don't want to overlook something that could a more 'physical' basis. Trying Gaviscon should be OK.
 
Anxiety can also have a negative impact on the digestive system as a whole, so calmer is better - easy to say and harder to do, I know, but it is the truth. When it comes to defining causes for globus hystericus, anxiety is often cited as one of the more common reasons the condition develops. Stress, fear, and anxiety may combine to create this sensation of having something stuck in the throat. However, there is also the possibility that the condition comes about due to a developing inflammation in the larynx or hypopharynx. For some people, the lump in the throat is a precursor to the development of a sore throat or an impending head cold. 
 
If there is no inflammation present in any part of the throat, then some form of anxiety is often the culprit. Finding ways to alleviate the anxiety will often help to ease the sensation of having something caught in the throat and relieve any pain or discomfort associated with the swallowing.  
 
I know you have been extremely anxious pre-op and post-op and now this is driving your anxiety higher. 
 
Think about finding a new Dr., Joe, one with a fresh outlook and if anxiety is playing a major role then perhaps treating the anxiety will help you the most right now.
 
Remember we are always here for you and never feel that we don't care or that we are sick of you.  Everyone has a unique set of problems and we will do our best to support you.
 
Kindly,
Kitt
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"Life is not about waiting for the storms to pass...
It's about learning how to dance in the rain."~ Vivian Greene

kaylajane
Regular Member


Date Joined Nov 2011
Total Posts : 61
   Posted 3/25/2012 7:41 PM (GMT -6)   
Amazon had the other Gaviscon (can't remember the full name) and I ordered it and ended up with the Gaviscon in this country- bummer. Don't know why they got it confused. It doesn't seem to do all that much for me but I feel like it can't hurt either and who knows.....maybe it is helping but I'm just not aware of it. I can't hardly stand the taste or consistency but I guess it's better than nothing.

joe1619
Regular Member


Date Joined Dec 2009
Total Posts : 293
   Posted 3/27/2012 4:30 PM (GMT -6)   
Skitt...my throat is red, irritated and burned. I think the mucous is spasms. anxiety doesnt help i know. if i didnt have the sore red throat i definitely would go with anxiety. Im tired of putting my family through this. 5 yrs ago i was as healthy as anyone. now my 7 yr old says shes gonna miss me when im dead and i got 2 years to live. sad thing is she overheard me. my psychiatrist is at a loss and the stupid wrap once worked a bit now its not, but because its intact they wont do anything. thanks everyone..my wife has locked all my meds up so i wont od on them. i only want to get better and help others. i just lost my job a week ago and now my stomach hurts and i have had bloody bowels all day...grr

Chuck T
Regular Member


Date Joined May 2011
Total Posts : 143
   Posted 3/27/2012 6:54 PM (GMT -6)   
Joe,

how long have you had bloody bowel movements? Have you been tested for crohn's or other autoimmune diseases? If not, i strongly advise it, bc bloody bowel movements is not a symptom of LPR, but is of some autoimmune diseases. Have you had any other symptoms like rashes, sore joints, eye inflammation, or weight loss?

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 3/27/2012 8:54 PM (GMT -6)   
Hi Joe,
Chuck has offered you some very wise advice.  If your wrap isn't working to solve the problems you're experiencing, it's time to look elsewhere for their causes.  Remember that feelings of reflux in the esophagus can be caused by generalized pain symptoms...it's just interpreted by the brain as reflux.
 
It's not easy to get a diagnosis, but you definitely need to seek answers. Since your wrap is intact, it's time to look somewhere else for the cause of your painful symptoms. 
 
My allergist is also an immunologist, and he specialized in autoimmune disease as well as allergy (I guess they're related in some ways).  There are lots of blood tests that can discover whether or not you have an autoimmune disease.  It's pretty straightforward.
 
Please follow Chuck's good advice and make an appointment.
 
Did you see Halloweenbaby's recent post regarding her discovery that reflux issues post-op were actually autoimmune isues instead:
 
Worth a try, Joe.
Denise
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