Canceled the Nissen Surgery

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Regular Member

Date Joined Apr 2011
Total Posts : 116
   Posted 3/28/2012 1:37 AM (GMT -6)   
Hi All,

Lost my nerve, canceled my Nissen Surgery for next week and then called one of my Doctor's patients who has had the NF and then changed my mind. She is an elder lady and she told me it has changed her life to the good. I can't believe how worried I am to have the surgery. I'll be re-scheduling again as soon as the Doctor's office calls me back. I checked into the Linx and I would have to travel from Oregon to London to get it and the cost is $12K so that's out.

Thanks for the support



Regular Member

Date Joined Oct 2011
Total Posts : 338
   Posted 3/28/2012 6:03 AM (GMT -6)   
Also the Nissen is considered to be "the gold standard" for reflux surgery.

It is not an easy first few months, but after just 4 months I am starting to see some major improvement in my quality of life.

Don't be afraid. Just make sure your doctor is very experienced with Nissen Fundoplications. Check around this board to get a good idea of what that means.

Other than that, just do it, then settle in for a few months. The outcome will be worth it.

Forum Moderator

Date Joined Feb 2009
Total Posts : 7180
   Posted 3/28/2012 7:13 AM (GMT -6)   
Hi Sal,
I totally understand your fear of having major surgery.  It would be foolish to go forward without very seriously considering all your options.
As Dave said, the Nissen fundoplication surgery is considered the "gold standard" reflux surgery.  The others are very new and untested. 
Like you, I tried hard not to have the surgery.  My lungs were in very bad shape and my family doc pushed and pushed for me to get the surgery.  As I'm sure you did, I also went online and read all kinds of very negative posts and warnings (from people who'd had poor results--likely due to an inexperienced Nissen surgeon) to not have the surgery.  My GI also held me off from surgery because my reflux levels weren't very high on the DeMeester scale.  Because of what I'd read online, I didn't push him at all.
In the meantime, my lungs were very bad and my asthma and family docs were tearing their hair out trying to keep me breathing.
Enter this forum...I finally decided I didn't have much choice because my lungs were out of control.  I found this forum and discovered people with a positive, yet realistic attitude toward the surgery.  They helped me gain the courage to go forward, and supported me throughout my recovery.
It is important that you have educated yourself and are prepared for your recovery.  The symptoms you are living with need to be worth the recovery time. 
Yes, it takes courage to go forward with this surgery.  If it will improve your health and quality of life, it is so worth the effort. 
I'm so happy I had the surgery, and I only wish I'd had it sooner.
Very best wishes,

Regular Member

Date Joined Oct 2009
Total Posts : 175
   Posted 3/28/2012 9:22 AM (GMT -6)   
Hi Saleen,

If you were considering the Linx it's just been approved for the U.S. by the FDA. They are saying it will be available here within 30 days. See the Linx thread for more details. I don't know how urgent your situation is, but if you're nervous about the NF, you could wait a month or two and see where the Linx might be available close to you.

Regular Member

Date Joined Nov 2011
Total Posts : 146
   Posted 3/28/2012 9:42 AM (GMT -6)   
I had a few days where I got really worried before my surgery. I don't know why... I knew it was the right thing to do, and it was my last option after trying everything else. I just had never had surgery or even been in a hospital before, so it was a hard thing to do. I even told some of my family that I was going to cancel it, but I was luckily talked into going through with it.

As the person you talked to, the surgery changed my life for the better. I am a night and day difference than pre-surgery. I used to have such terrible chest pain, I could barely leave the house. Had trouble going to work, couldn't go out to eat, couldn't go on vacations, couldn't do anything. I am engaged, and our wedding was basically on hold because I had trouble even participating in the planning. I didn't think I could even physically make it through a wedding. When I look back now, it was a terrible existence, and I kick myself for not taking the surgery step sooner.

This surgery is a miracle. I now feel great. I can do anything, eat anything. Since November, I've traveled on vacation twice (one to New Orleans to eat everything I couldn't eat before), I'm more social, I'm doing more with my life. Its like I was given a second chance. Wedding planning is back on track full steam, date set for 12/2/12! I had a job that over the years caused me tons of stress and anxiety, it was rough. I had the confidence to finally look for a new job... and this coming Monday I start at a job that I am going to love.

Good luck to you! Better days are definitely ahead!

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 3/28/2012 9:54 AM (GMT -6)   
I can understand why you cancelled but glad to know your back on track.  The anticipatory anxiety can send us into a tale spin but knowing you are rescheduling sounds like the right thing to do.
We will be right here to cheer you on and support you.

Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

"Life is not about waiting for the storms to pass...
It's about learning how to dance in the rain."~ Vivian Greene

Regular Member

Date Joined Apr 2011
Total Posts : 116
   Posted 3/28/2012 10:41 PM (GMT -6)   
Thank you all for the words of encouragement. I would love to wait and try the Linx first, but I'm sure my insurance would not pay for something so new. I'm still waiting to re-schedule the NF. I'll let you know the date as soon as I have it. I'm feeling more positive about the NF every day after reading all the posts and talking to people like you all. In the interim, I'm going to call my insurance just to see what they say about the Linx. I've had heartburn for 12 years, so whats another 30 days.

Thanks to all


Veteran Member

Date Joined Oct 2009
Total Posts : 4970
   Posted 3/29/2012 7:53 AM (GMT -6)   
There are lots of reasons for each type of surgery, but your doctors chose the one they think is right for you. I was given a Toupet, a looser type of Nissen, because my swallow is too weak to get past a full Nissen. I needed something in the Nissen-type because I had a giant paraesophageal hernia and needed the hernia closed.

I would have rejected a the types of surgeries that put metal in your body because I need MRIs for my shoulder and spine.

My doctors have tried everything experimental since the early '90s and have rejected them all because of poor results. They get 98% positive results with Nissen-type proven surgeries.

Ask the surgeon why he chose the type of surgery.

Regular Member

Date Joined Jan 2012
Total Posts : 36
   Posted 3/29/2012 11:33 AM (GMT -6)   
I came very close to also cancelling my surgery. It was reading all the horrible outcomes and post-surgery symptoms that really scared me. And I had had back surgery many years, which was a much more difficult and painful surgery with much less anxiety! Finding this forum allowed me to feel better prepared for the surgery and it made the recovery easier too.

I had my 7 week post-op visit yesterday and I am doing so much better then I had anticipated. While it is to early for me to know for sure what the ultimate success will be, I can now eat whatever I want to. I just have learned to eat slowly and chew well. The first two weeks were rough, but after that each day I felt so much better!

Forum Moderator

Date Joined Feb 2009
Total Posts : 7180
   Posted 3/29/2012 6:27 PM (GMT -6)   
Hi Stella,
Glad you're doing well and have found the forum to be helpful to your recovery.  I found the same thing.  I'd read all kinds of scary posts on the internet and avoided having the surgery for at least four years when I should have had it.  This forum gave me the courage to move forward.
Best wishes,

Regular Member

Date Joined Apr 2011
Total Posts : 116
   Posted 3/29/2012 10:42 PM (GMT -6)   
Hi All,

I think I'll forget about the Linx, would just take too long to change Doctors and start all over again. As soon as my Surgeon's office gets back from spring break, I'm going to schedule the Nissen. I really don't like the idea of magnets anyway.


Regular Member

Date Joined Dec 2011
Total Posts : 133
   Posted 3/30/2012 12:38 PM (GMT -6)   
Saleen, if you trult cannot wait and are in misery, you should definitely go forward with the Nissen.  The FDA did approve the Linx, and its trials (and medical review) show that it is extremely efficient, and most importantly it requires no significant cutting and/or altering of the GI tract.  I personally was scheduled for the Nissen in December 2011, but I decided to cancel it.  I am holding out for the Linx and will be getting one as soon as Torax makes them available for commercial sale (they are preparing for significant demand once it is released).  My concern is only being 34 and the fact that the Nissen has a greater than 50% chance of failing after 10 years, making later surguries more difficult due to scar tissue.  Fortunately, though, there seems to be a good amount of success stories here, and more importantly, a high-level of support from the "wrapped" club! 
Best of luck to you and your decision!
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