Question for Denise~

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jan 2012
Total Posts : 33
   Posted 3/28/2012 1:46 PM (GMT -6)   
I have much of what you had with aspiration into lungs causing lung nodules.
What kind of issues were you having and did your lungs ever improve after
Doctors are so worried about my lungs they think I need surgery.
I am first trying lifestyle changes and a very strict diet.  Loosing weight has helped my gerd along with non
acid foods, and bed raised. But I'm getting hungry!!!!
Just wanted to know how bad you were and if it was reflux that caused it or a combo of other things.
I tested at 51% lung compasity.  My main problem now is coughing green phlem (yuck).  Don't know if that is infection back or post nasal drip from my sinus problems, which I also need surgery for.
Any help you can give me, I would appreciate turn
I have:      Gerd   LPR    Asthma   Sinus impacted   IBS

Forum Moderator

Date Joined Feb 2009
Total Posts : 7188
   Posted 3/28/2012 5:14 PM (GMT -6)   
Hi Poortummy,
Sorry to hear that you're having lung issues because of GERD.  It's very common, and not something to take lightly.  If you're refluxing enough to create nodules in your lungs, then you need to get that stopped, so your lungs aren't further damaged. 
A friend that I met here on the forum (her handle was LadyJane) had bad lungs from GERD and went to National Jewish ( in search of answers. They sent her directly to a Nissen surgeon for reflux surgery.
The problem with trying to take care of it through diet, is that if your reflux is severe enough it will continue to migrate into your lungs anyway.
My reflux was nearly "normal" (high end) and yet it created havoc with my lungs.  My problem was more asthma related.  The reflux that I got was making my lungs very sick, and my family doc and asthma doc could not get it into control.  I had one lung infection after the next, and I was constantly coughing up very nasty gunk.
Yes, my lungs improved tremendously after my surgery.  I was on high doses of steroids to help me breathe and now I'm just taking a tiny fraction of what I took before my surgery (I do have allergy-induced asthma still, but my lungs are now clear).  But before surgery, even though I took all those steroids, I still had horrible lungs.
Your issue is even more critical in my opinion.  You've apparently had some physical damage to your lungs, which hadn't occured with mine.  Instead, mine just made my asthma very bad. As I said, I was not a high volume refluxer.  The more you allow your lungs to be washed in reflux, the more permanent the damage. 
My friend (LadyJane) was told that the surgery was critical for her to have, because left the way it was, her lungs would continue to deteriorate and her lung capacity would decrease. 
I can't empasize enough the importance of listening to your doctor and protecting your lungs.  You need those lungs to provide you with air for a long time.  Like me, I think you're one who doesn't have the luxury of deciding to forgo the Nissen surgery.  It's a matter of life and death for people like us.
Take care of those lungs.
We'll be here to support you through it all!
Very best wishes,
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”

Post Edited (dencha) : 3/28/2012 8:10:15 PM (GMT-6)

Regular Member

Date Joined Jan 2012
Total Posts : 33
   Posted 3/29/2012 9:01 AM (GMT -6)   
Thank you so much! You really opened my eyes because I was told it was a life and death matter but I wanted to
try the diet way first.

I told surgeon that if I did it I wanted to wait until late summer/fall. I've spent most of the winter in bed and want to have a nice summer.

I'm also going to ask for a new cat scan to see if it has healed any. Doc said it would eventually heal unless I keep
aspirating then my lungs would abcess.

I read this board several times a day and it really helps with hearing some success stories. Other boards I found are all doom and gloom.

My biggest problem is my 93 year old mom that lives with me and I care for. I don't know how bad recoveryis and don't want to put her in nursing home for a month or so if my recovery is longer, which it usually takes me longer to recover than most. Poor immune system. Or I could get a nurse in the day, but if she needed something big at night I'd hate to have my husband have to do it. He is great with her, but draws the line with depends or changing.
I'll be hanging around.
I like your philosaphy....where is spell check
Hugs to you. You are a darling hanging around to help others

Forum Moderator

Date Joined Feb 2009
Total Posts : 7188
   Posted 3/29/2012 7:38 PM (GMT -6)   
Hi Suzie,
As long as your husband helps you with the lifting, you should be able to manage your mother's care.  You just won't be able to lift.  Also, you might want to get some help for at least a few days up to a week, because depending on your surgery, you might just want to get a little TLC yourself. 
 It's major surgery, even though it's laproscopic.  Your outsides will heal and you'll feel like going dancing long before your insides are healed and adjusted to the changes that have been made.
I believe your lungs are the best indicator of whether you're better or not.  If you're coughing up gunk, they're still getting attacked by reflux.  Honestly, you should have heard me before my surgery.  I was constantly coughing and raising terrible stuff.  My husband would do lung PT on me to help pound the mucous and loosen it so I could get it out.
It took two and a half months for my lungs to show improvement after surgery, but improve they did, and they're finally healthy again!  What a difference. 
As I said, people with lung involvement don't really have a choice.  It's either get the surgery or take the chance of developing long-term lung damage and possible disability as a result.  I am so happy to have my healthy lungs back!  What a difference.
I'm very glad you joined the forum! It's a great place to be as you contemplate surgery. 
Good luck with your decision! 

Post Edited (dencha) : 3/29/2012 6:45:16 PM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 5:46 PM (GMT -6)
There are a total of 3,006,618 posts in 329,364 threads.
View Active Threads

Who's Online
This forum has 161840 registered members. Please welcome our newest member, 6catlady.
312 Guest(s), 9 Registered Member(s) are currently online.  Details
HeartsinPain, paul_t, timcebu, oceanfisher58, jberda1, Tredye, Admin, Cashed Out, garyi