lpr cobblestoning

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joe1619
Regular Member


Date Joined Dec 2009
Total Posts : 293
   Posted 3/28/2012 6:23 PM (GMT -6)   
got oto notes today he said i have an abnormal hypopharynx with lots of cobblestoning. when i saw him he never mentioned it. i told the nurse i am not going to pay them if they are not going to help. he basically copied the gi notes in his summary saying i have a normal duodenum and intact wrap. and the oto knows this how..by copying the gi doc notes then he referred me back to the gi doc. they send me back and forth. today i put my foot down and said you are the ent my throat is red, hurts, cobblestoned, etc. fix it or i aint paying. may be rude but i am tired of these guys collecting big paychecks and copying notes. reality is they cannot fix it because they cannot arrest the reflux completely..i know this but this clown said the globus was caused by the nissen. really. i had it before the nissen, then it went away after the nissen now its back. his statement holds no truth. maybe im just angry and bitter but i have been nearly suicidal about all this. these drs. are going to fix it or they arent getting paid..or at least be honest and try..no more crap. i cannot believe an ent does not understand the mucous is from the burned/irritated throat..for some as our wonderful moderator has stated it can be from anxiety. for me its 90 percent throat 10 anxiety. does anyone else have a cobblestoned throat..any luck on healing it. thanks and sorry for the attitude. im just tired of these docs who dont understand basic anatomy and well documented lpr symptoms. many still dont even know what lpr is

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 3/29/2012 8:02 PM (GMT -6)   
Hi Joe,
Sorry you're having such trouble with your specialists.  You're in a tough spot, and some the issues you're having can mimic symptoms of other issues (allergy for one).  They're harder to nail down.  Having an "intact wrap" is another tough one, as in the mind of some docs it eliminates reflux as the culprit or surgery as a solution. 
 
That's why I think you need to get some second opinions.  I don't know how you find the right doc to see, but there's got to be somebody out there who can help. 
 
Keep your chin up.  Your family needs you!
Hang in there,
Denise

joe1619
Regular Member


Date Joined Dec 2009
Total Posts : 293
   Posted 3/30/2012 4:04 PM (GMT -6)   
thanks. meeting with a surgeon in 2 weeks and my gi doc next week. i fall in that category if i did not have a wrap they would offer it, but since its intact its risky. my luck theyd take it down and pop a hole in my esophogus. im doing my best started an antidepressant, but ive taken it before with some results..its not perfect..ive recently lost my job..great and to boot 5 months ago after using a suppository for help with constipation i developed this urge to urinate like 20-30 times a day. im exhausted, cant sleep, worried, etc. i was scheduled for interstim yesterday but cancelled it as im not sure i can handle another surgery that is not more than 50 50. i wish i had diabetes or hi blood pressure so i could take a pill or insulin. but i suppose those people have similar wishes. thx for hanging in with me

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 3/31/2012 8:00 AM (GMT -6)   
Hi Joe,
I'm very glad to hear that you're seeing specialists the next two weeks.  I'm sure you have already thought of this, but if you write down all your points it'll ensure that you don't leave and then remember things you forgot to ask.  (I just did that myself...left the doc without asking something I'd wanted to ask.)
 
Good to hear that you're trying to deal with the understandable emotional fallout from all that is happening.
 
One day at a time, my friend.  Try to busy yourself with happier things some part of every day.  You can't worry and stress this issue away, and I'm sure you're aware of the part that stress can play in increasing symptoms.
 
As you so wisely said, people with other chronic health issues also wish for relief, and the grass is always greener on the other side of the fence!
 
Hang in there...
Very best wishes,
Denise

Post Edited (dencha) : 3/31/2012 12:48:10 PM (GMT-6)


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 3/31/2012 9:05 AM (GMT -6)   
Hey Joe,

 

Kudos to you for asking for what you need - help and no more run around from the Drs.

I am sorry that you are experiencing these troubling issues at the moment. I understand that level of fear that you are feeling right now, and I know that it is miserable.

Positive self-talk when you’re feeling anxious also counteracts the common tendency to do the opposite: to berate one's self with a barrage of negative statements.  This is one I use a lot and here is one example I use when my mind wants to wandere into "what if?" thinking - " I will stay in the present moment and notice everything good around me."

Keep on being your own best advocate and know that coming here and sharing your concerns and feelings is a good thing - we all need a safe place to express ourselves and you are safe here with us.

I will keep you in my prayers and hope your upcoming appointments go well.  Also I am sorry to hear of the loss of your job and I believe this is weighing heavily on your mind right now. 

I sense that you are a strong person going through a really tough time but keep on believing that you will get better.  I know what it feels like to think you will never recover but with help we will. 

Gentle Hugs,

Kitt

 

 

 


~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"Life is not about waiting for the storms to pass...
It's about learning how to dance in the rain."~ Vivian Greene

joe1619
Regular Member


Date Joined Dec 2009
Total Posts : 293
   Posted 3/31/2012 4:06 PM (GMT -6)   
thank you i know stress makes it worse. this all started with anxiety 5 years ago and a medication roller coaster. then i developed lpr out of blue. on valium..doesnt help. seroquel helps but dries throat out and makes it hurt. for everyone reading. ive been on a roller coaster and am pretty low. stkitt all i can do is say ive been here before and got better. it can again. thx for your support. so many of us have felt like quitting..i think this forum is so great
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