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PH Fan
Regular Member


Date Joined Dec 2009
Total Posts : 88
   Posted 4/2/2012 9:51 AM (GMT -6)   
Could anyone who has had the TIF Procedure give an update on how your doing,i'm looking into this procedure and just curious on it's success.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/2/2012 10:10 AM (GMT -6)   
Here is a link to a recent thread re their TIF. 
 

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 4/2/2012 11:10 AM (GMT -6)   
I don't know anything about you or your symptoms, but whether or not you should consider this procedure has to do with prequalifying yourself based upon your GERD category.  (You have had the tests and diagnosis?)  If your symptoms are typical (i.e. heartburn), and you respond to PPIs, then you most likely will be pleased with the results.  If, however, you have atypical symptoms (airway/respiratory), are overweight, or are a "volume refluxer", it's probable that you will not have complete resolution of symptoms.
 
At my worst point before surgery, I had a DeMeester score of 24, with over 100 episodes during the 48-hour Bravo.  I had the TIF in August of '11, and had four weeks of bliss while the surgical site was swollen and tight.  Airway symptoms quickly returned as the site healed and loosened.  Since I am intolerant of PPIs (they work, just can't take them), and my pH studies show that, numerically, I am now not that far from what a NF can achieve, there is nothing further that can be done for me medically.
 
The TIF is a safe procedure, and after recovery, for most folks, won't radically change day-to-day diet and routines.  But don't agree to this procedure, or any other, without critically evaluating your condition and how that relates to expectations.  No one else will do that for you...not even your doctor.  For more info, you should read this thread: http://www.healingwell.com/community/default.aspx?f=45&m=2297582
 
-Bruce

PH Fan
Regular Member


Date Joined Dec 2009
Total Posts : 88
   Posted 4/2/2012 12:52 PM (GMT -6)   
The only test that i've had is a endoscopy,i've had 2 in 5 yrs,the first one showed inflamation and barretts,the 2nd one 3 yrs later didn't show barretts,i've been on prevacid the entire time,2 weeks ago I went too see a TIF surgeon and he said the only way the insurance would cover this is if I couldn't tolerate the meds anymore,I told him some of the side effects I get from taking ppi's,so he put me pepsin twice a day until I go back on April 20.I do feel a little better as far as the confusing I felt some of the time being on prevacid,my neck pain is also less,but getting some rebound of acid,it could be worse though,I hope to get more testing like you talked about,I want too find out if my les valve is working at all.I could type a whole lot more but I better get back too work.lol

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 4/2/2012 1:10 PM (GMT -6)   
So, you've essentially been "diagnosed" empirically, i.e., throw medication at symptoms, and, if you improve, then you must have GERD. You need more tests before you get to surgery, and any doctor who tries to avoid or circumvent this process is borderline negligent.

Endoscopy can NOT diagnose GERD in most patients. The fact that you've had two procedures in five years, with no other tests, tells me you need another GI.

-Bruce

PH Fan
Regular Member


Date Joined Dec 2009
Total Posts : 88
   Posted 4/3/2012 9:11 AM (GMT -6)   
Yea,I know I need more testing,I was content to take meds until I started getting the side effects,last month I went too my GI doc and I told him that the meds were giving me bad side effects and I wanted to do more testing,he looked at me and said the meds have no side effects and then open the examination room door and walked out,needless to say i'm not going back to him,so I thought maybe I should talk to a surgeon and get somewhere that way.

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 4/3/2012 11:52 AM (GMT -6)   
This doctor needs to be reported, so he can't malpractice any one else. Malpractice can be defined as failure to serve a patient's needs based upon current medical knowledge...not just making a mistake on the operating table. The side-effects of PPIs are clearly documented, and stated clearly even on the manufacturer's literature and websites.

I'm sure the medical board would be interested to know that he walks out on patients, too.

-Bruce

hopeitworks
Regular Member


Date Joined Feb 2012
Total Posts : 30
   Posted 4/11/2012 9:46 AM (GMT -6)   
Hi, PH Fan...   I have had heartburn & reflux for about 10 years - but the past year it has gotten unbearable.  Several years ago I participated in a GERD study and had an endoscopy and toldI had a small hiatel hernia probably contributing to the GERD and given medicine.  The study med worked pretty good but not 100% as I still woke myself up with the horrid acid vomiting out of my nose & throat, choking on it, severe burning in my throat so even one episode of reflux in my opinion is too many!  It was horrible and I suffered terribly every time I would lie down even several hours after eating.  I have been sleeping sitting up for the past 3 years.    Ok - that is pre- TIF  ... I finally decided to find a surgeon and had the preliminary testing to see if I was a candidate for the procedure.  I guess if the hiatal hernia is too large it can't be done.  After testing I was a candidate and I had the procedure 2 weeks ago on March 17, 2012.  Stayed overnight in the hospital and released the next morning.  The doctor said the procedure went well and set up a follow up visit in 3 weeks which will be next Tuesday, 4/17.    So the surgery was successful he said - I wish they had told me how bad my throat & chest would hurt for the next few days.  I guess I should have realized it would but when I asked the nurse about recovery from the surgery and if I could resume normal activities because I have 4 pets and a house to clean and take care of.  I was told I could resume normal activities almost immediately.  It wasn't until the day of the surgery the doctor warned me that my chest would feel like I was having a heart attack (he didn't want me calling 911) and that they turn you during surgery on your shoulder and it too may hurt.  Well he was right about that, maybe I'm a baby but it hurt REALLY bad!  But it was better in a few days so I wouldn't not have the surgery because of the pain.  They put dillaudid (sp) in my IV a couple times and I fell asleep so I guess the pain med helped some.   The next day I went home and yesterday was 2 weeks.  I followed the liquid diet, had a lot of burping which they recommend you try to limit so was told to take Mylanta.  Also was told at the hospital to continue reflux medicine until my follow up appt which I've been doing.  I will say that yesterday the burping/gas was a lot less than it has been and actually I'm feeling pretty good.  I haven't wanted to chance laying down instead of sitting up to sleep yet because if somehow I were to get the reflux it would reap havoc on my new "tube" so I'll still sit up for a few more weeks so can't tell you if I would get reflux or not. 
 
The pain in my chest is also gone now - it's been about 3 or 4 days since that stopped.  So all in all so far I'm pretty happy with the outcome.  I've heard good things from people who have had the TIF longer than I have and it's got a very good success rate so I have no reason to think I won't be one of them.  Considering how bad my reflux had gotten I'm ecstatic at the prospect of not waking up any more to the nightmare of acid reflux in my mouth, nose & throat.  I can't describe it any better (or worse) other than it was HELL! 
 
My advice - get tested - see if you are a candidate - get a good surgeon - my doctor had done the procedure over 130 times so I felt good about him.  He said he only had one unsuccessful surgery and it was because the person didn't follow the diet or other guidelines and he was a mess!  lol  All the rest he said were happy with it.  Good luck - I hope you find a good surgeon.  You didn't say what part of the country you are in - but I'm in Knoxville, TN and I had to drive 60 miles to a place called Crossville, TN because there weren't any doctors in this area.  If you're near here, let me know and I'll give you his name.
 
 

aciphexo
Regular Member


Date Joined Apr 2011
Total Posts : 377
   Posted 4/11/2012 2:21 PM (GMT -6)   
Hi hopeitworks,

I was curious to know if your insurance covered your TIF - or did you end up paying out of pocket?

Thanks

hopeitworks
Regular Member


Date Joined Feb 2012
Total Posts : 30
   Posted 4/11/2012 8:25 PM (GMT -6)   
I imagine it will cover most of it, but I actually haven't gotten a bill yet since it was just 2 weeks ago. I should be getting one any day and I'll let you know. Why I think it will cover is I just had a test that cost $3200 and it covered all but $150.00.

PH Fan
Regular Member


Date Joined Dec 2009
Total Posts : 88
   Posted 4/12/2012 5:26 AM (GMT -6)   
I go back to my surgeon on April 20th,I saw him in March and he wanted me to go off prevacid and go on pepsid to see if the side effects of the ppi's went away,he said the insurance needs proof that there are side effects from the ppi's,I did notice a difference so we go from here,hope I have enough info to get this surgery done.

Tandem Rider
Regular Member


Date Joined Jun 2011
Total Posts : 122
   Posted 4/12/2012 8:12 PM (GMT -6)   
I had a TIF a year ago and I am much better. I can eat many foods that I could not eat before surgery. I just returned from a two week vacation and during the trip I thought about how I appreciate my TIF because the restaurant food and eating late did not bother me. It did take several months for my stomach to settle down after the TIF but I do have a sensitive stomach.

My back ground was reflux for 10 years, on PPIs for 8 years, and a DeMeester score of 28 before surgery. My DeMeester after the TIF was 5.8 (normal.)

Good luck,
Sheldon
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