LPR desperate for help in Virginia!!

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New Member

Date Joined Apr 2012
Total Posts : 3
   Posted 4/9/2012 4:57 PM (GMT -6)   
I have been having mild and occasional symptoms of LPR for years, but they have been absolutely unbearable for the last 5 months. I didn't even realize what was causing all my problems until a couple months ago. I have a very weak voice that goes hoarse frequently. I even completely lost my voice for 2 weeks last November. I have some coughing and tickle feeling in throat, as well as sore throat. I had a sore throat for almost 3 months straight and that has started to let up, but it seems my voice is starting to go again and I have a new strange symptom. Everytime I swallow food or burp, immediately after I get this terrible feeling in my throat. Like it's squeezing and/or spasming. It's very uncomfortable and almost makes me feel like I can't inhale for a second or two. Eating has become quite the chore. I have seen my primary care doctor + an ENT, neither of which were helpful. The ENT said reflux was probably to blame for my sore throat and hoarseness, but refused to prescribe me anything because I'm breastfeeding my son. This was 2 months ago, btw. So I went to see my PCP who orginally tried to treat me for strep, but then agreed with the ent that this was most likely due to reflux and put me on Prevacid 30 mg once a day. I only took it for a week with no difference so I gave up on it and just used over counter stuff like Pepcid Complete and Gaviscon. I was feeling pretty good for about a month. My symptoms weren't gone but weren't nearly as bad as they had been. Then in the last week everything has gone downhill. Out of nowhere I start getting the sore throat again. Then the voice gets weaker and weaker, sometimes I can only whisper and sometimes it sounds almost normal. But I always have a weird feeling in my throat like when I have laryngitis. As well as a lump feeling in my throat and constantly having to clear mucus. Then this new weird throat feeling when I try to eat or burp. It almost feels like a mini laryngospasm or something. So I started the Prevacid again yesterday and I went back to the doctor today, actually my doctor couldn't see me so I had to see the nurse practitioner. She just told me to continue the Prevacid for 2 weeks and if I'm no better to make an appointment with a gastro dr. I told her that from the research I've done, I should be on a double dosage of Prevacid and she said no, that's not true. Well I refuse to wait 2 weeks to see if I'm going to improve because it sounds like no one does on a regular dose so I went ahead and called a gastro dr today and what do you know, he can't see me for a month! I'm so frustrated, I can't eat, can't breathe, and am tired of not being able to talk properly. I have a 4 year old and a 7 month old and my husband works 12 hr days 6 days a week so I'm worn out. I have a few questions for anyone who might know though....
1) Does anyone get better with PPI's? I have read so many things about people who have had zero help with PPI's or who say they actually made them worse. I have a pretty negative outlook after all the disappointing things I've read.
2) Should I go ahead and up my dose to 30 mg of Prevacid twice a day until I can see the gastro dr in one month? It seems pointless to me to take 1 a day if it's not going to help.
3) Should I even be seeing a gastro doctor? I've read many times that an ENT treats lpr. Should I try to get into see an ENT again while I'm waiting?
4) Does anyone know of a doctor in Virginia that is knowledable with lpr? It seems that doctors around where I live just don't know enough about it. With all the research I've done, I feel like I know more than they do, and when I try to tell them what I've learned, they don't appreciate it.
5) How does one get on with life living like this? I'm miserable. I had planned to homeschool my daughter this fall but now don't know if I'll even be able to with barely being able to speak.
and finally,
6) Has anyone benefitted from the surgery for this? I have read 1 or 2 success stories but mostly negative and certainly don't want to go that route if I could just end up worse off.
Thanks so much.

New Member

Date Joined Jun 2009
Total Posts : 3
   Posted 4/9/2012 8:01 PM (GMT -6)   
I have been going through similar stuff in the last (almost) year. Recently I had the burp and the spasm in my throat - really unnerving! I teach so this is pretty difficult when your voice starts to go. I also feel like someone is choking me which is not fun.
I have been to both ent and gastro docs - quit for a while because it seemed to get better. It got worse again a few months ago so I went back to the ent who ordered a barium swallow - they found I had esophageal spasms and acid - I have a few more tests coming up.
Drugs have not really helped with me - I read that with some LPR the PPIs are not necessarily helpful. Truthfully, I think it is hit and miss with doctors about this. I know that diet supposedly helps - and that when I had a bad night of eating I really paid for it the next few days. I understand that stress is a big factor too. Everyone I have talked to on the boards pretty much agrees that if you can do something to destress yourself it will help - I totally believe that.
I can see that someone with a baby and a young child - AND a husband who is working so many hours has some stress -my kids have been stressing out lately with just one baby, and there are two of them to share the load.
I think the first thing I had to realize to get myself to calm down is that it is not going to kill me and that the more I worry about it the worse it gets! I have been somewhat successfully lately distracting myself from thinking about it and trying to find ways to relax, if only for a few minutes. Someone suggested that deep breathing can be of benefit - which is something I am trying. Yoga is another good thing to try.
When my throat gets real bad I chew gum - this helps. They say peppermint is not good for this, so I have been using other types of gum. It keeps the saliva going down the throat.
Another thing that makes a big difference is to keep the bed elevated as much as you can (putting blocks under it). Pillows don't work, because you need to NOT bend when you are sleeping.
I would try to relax as much as possible, watch what you eat (read the boards about diet and google lpr diet), and NOT worry - you will be ok. I wouldn't even worry about surgery - there are many things to try before you have to go there. I would definitely see the gastro doctor and have him find out exactly what is going on.

Your letter could have been written by me - I think there are many people who go through what we are going through and come out ok. Have fun with your babies! I wish mine were little still:)

Regular Member

Date Joined Jun 2011
Total Posts : 225
   Posted 4/9/2012 8:35 PM (GMT -6)   
You could try this net


You also have to alter your diet in addition to PPI. Try looking at the koufman diet thread.

New Member

Date Joined Apr 2012
Total Posts : 3
   Posted 4/11/2012 2:08 PM (GMT -6)   
Thanks so much for responding. sk55, I will check that website out, thank you! redjb7, thanks for all the helpful tips. it's hard to stay optimistic, but i'm trying!! has anyone here taken prevacid? i've only been on it for 3 days and i am extremely dizzy...feels like the room is spinning at times, especially when i move my head or try to walk. it's really kinda freaking me out. i've put a call into the doctor, waiting for a call back, but has anyone else felt like this on prevacid? i don't know if it's the medicine or something else. also feel very fatigued.

New Member

Date Joined Apr 2012
Total Posts : 1
   Posted 4/16/2012 8:53 AM (GMT -6)   
This is Spam - using HealingWell to advertise your private practice is against the rules of HealingWell.

Post Edited By Moderator (stkitt) : 4/16/2012 4:31:48 PM (GMT-6)

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