New Member scheduled for Nissen

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SCjason
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/19/2012 1:22 AM (GMT -6)   
Hey Everyone,

This is my first time posting here but after doing a lot of research on Nissen's, this forum seemed to be the most updated. I am 32 and have been suffering from GERDS since I was 18 when I was diagnosed with it after it put me in the hospital for trouble swallowing, shortness of breath, and chest pain. One the 3rd day the Dr's did an Endoscopy and located several ulcers in my esophagus and said I had GERDS.

My family doctor treated me for about 8 years but every new medicine that he would give me would last around 2 years and stop working. Finally, he referred me to a digestive disease doctor. He continued with medications and performed an Endoscopy on me every two years. Again, around that time the previous medicine would cease working. Eventually, I ended up taking the most recent medication, Dexilant (formerly Kapidex). I started off at 30mg, then 60 mg. Back in December it stopped working and he then put me on a cocktail of Dexilant, Pepcid, and Protonix. That cocktail worked for 3 weeks and quit working in January.

My GI Dr. said I was a great candidate for a Nissen and referred me to a surgeon trained in performing the procedure. I hesitated at first and decided against it, but the symptoms were getting worse. My last Bravo gave an above average reflux reading every 15 to 20 minutes with or without food. He told me that there were no more medications on the market so I went and saw 2 highly recommended surgeons in my area. After choosing the one I felt the most comfortable with, he scheduled me for the motility test (which by the way calling it hell would be an understatement) and then he also did a stomach emptying test on me.

I am scheduled for the surgery in June. I understand that sometimes the Internet can be the worst of enemies but it seems like for every 1 feel good story that I read, I am reading 9 horror stories. Needless to say I am not wanting to have the procedure done to stop taking medications, nor am I wanting to have it done because I have had reflux for 6 months so I think after suffering from it for as long as I have, I would possibly have a more positive outcome. But needless to say, after reading forum after forum, this procedure really has me scared. I had a ventral hernia repair done 4 years ago so I am well aware of the recovery that comes after a laproscopic procedure and I am prepared to handle that. But I just can't get past wondering if the side effects of a Nissen is better than living with GERDS which has just become a common part of my life?

The surgeon was very positive (of course). He did tell me the recovery would be long, that I would not be able to burp or vomit, and that after 10 to 15 years the surgery MAY become ineffective so it wasn't like he blindsided me, but I am still very hesitant to have this done.

I am not sure if I am looking for support, reassurance, or just a reason to run but any comments would greatly help me either way.

Thanks everyone!!

Post Edited By Moderator (stkitt) : 4/19/2012 8:37:14 AM (GMT-6)


pegster
Regular Member


Date Joined Feb 2011
Total Posts : 95
   Posted 4/26/2012 10:42 PM (GMT -6)   
Sounds like you are an ideal candidate for this procedure. I would look at it this way. If you were a diabetic and had taken meds and dieted as directed, yet still ended up with circulation problems, would you beat yourself up if you needed amputation? It's a hard recovery. There can be unforeseen difficulties. It is a scary process. Would you rather continue to live with the problems you have and the prospect of more issues coming up as the years pass? You need to do what you feel is best. I took the chance on surgery and am thrilled with the results. I have developed hypoglycemia which is probably from dumping, food going through the system too fast. So, I've adjusted my diet further and have to poke my finger a few times a week to check glucose levels. I think it is a very small price to pay for the benefits of sleeping through the night, eating a normal diet and absolutely no reflux for more than a year. Set the fear aside and weigh the pros and cons. The answer will come to you. Good luck.

Peggy

daddypig
Regular Member


Date Joined Aug 2011
Total Posts : 90
   Posted 4/27/2012 6:06 PM (GMT -6)   
Try not to run!

Dr Google is very dangerous. What side effects are you worried about? Some people do have poorer outcomes, with any treatment for any condition, and many others dont.

Is it not more likely that bad outcomes are posted more than good? Tell us what you are worried about. I had my hh repaired and wrap done in august. Id do it again tomorrow, I got my life back. I might not be perfect but I am much improved, it worked for me. What are your main concerns?

Kevin

kyheart
Veteran Member


Date Joined Apr 2011
Total Posts : 515
   Posted 4/27/2012 11:28 PM (GMT -6)   
SCJason

I am 63 years old and I had my Nissen April 1, 2011. I was a victim of GERD and Hiatal Hernia. I suffered for 12-13 years taking every kind of stomach meds they could prescribe. After a year or 2 they would stop working. I would go to the doc and he would prescribe something else.

about 3 years ago I went to the GI doc and had an endoscopy done and I was told that I had a huge Hiatal Hernia and that he wanted to put me on 2 nexium (only one I hadn't tried yet) a day. This helped for about 9-10 months.

Finally i told my family doc I was sick & tired of being sick & tired. He referred me to a great surgeon and the rest is history. I got my life back and I have no more asthma because it was reflux induced.

Please don't give up.. talk to others who have been there.. as Kevin said, there are some who have difficult outcomes, but there are so many who have been given their lives back to them thanks to this surgery.

I would do it again in a heart beat if it was necessary. I feel as though I am alive again after only living/existing to treat GERD for sooo long.

Please ask all the questions you like here on the forum. Anyone who has been through this can answer and give you a history of what they have experienced.

Is this all fun, absolutely not, are the few days of pain and few months of inconvenience worth it?? WITHOUT A DOUBT... The sad thing is, most who have had an uneventful recovery will not post here, but the problems usually get posted. Do not run.. there are more benefits than negatives!!!!!

Look forward to hearing from you..

Reach for the Sunshine... Rainbows will follow...

Sandi smurf tongue turn turn tongue smurf

can't puke
New Member


Date Joined Apr 2012
Total Posts : 1
   Posted 4/28/2012 7:28 AM (GMT -6)   
I had the full wrap Nissen procedure done 12 years ago, the positives outweigh the negatives.
The only two complaints I have are you can't belch and you can't puke. To counteract the inability to
belch depending on diet etc. I take a product called Mytab For Gas which is Simethicone 80 mg antiflatulent, the relief from bloating is quite instant.....The other complaint is I can't physically puke, the only time this
becomes an issue is if you get food or drink poisoning or if you get a stomach flu .When this occurs I lay flat on my back and and with my hands push from the top of my stomach (with a little pressure) to the bottom of my stomach forcing the contents in your stomach to receed back down and then you let nature take it's course.
The stomach flu takes an extra day or two to run it's course.  They told me at the Clinic an option would be to
go to a Hospital and get your stomach pumped out However I talked to someone who did this and it wasn't a very pleasant experience.
If you have serious GERD issues I would recommend the Nissen procedure, but get as much information as you can about the two issues I talked about.
 
Good Luck and hope this is helpful
 
Tom

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 4/28/2012 8:50 AM (GMT -6)   
Hi SCjason,
Welcome to Healing Well!  I had a full wrap three years ago, and only wish I'd had it done sooner.  Actually, I can burp (actually my stomach decides when it's going to burp, but burp it does), and I discovered that I could vomit during two stomach virus episodes. 
 
It's important to have anti-nausea medication after this surgery just in case you get a virus.  Even if you can vomit you will want to avoid it as much as you possibly can.  Each time I vomited I used Compazine suppositories to stop additional vomiting episodes.  Vomiting and retching can be hard on your wrap.  I carry anti-nausea meds with me wherever I go, just in case.
 
It's true that some can't vomit or burp if their wrap is extremely tight, but many can.  My stomach was doing little burps in the hospital immediately after my surgery, which was very surprising.
 
I don't know if you've seen this as you searched the forum, but here's my early recovery journal.  It  might give you an idea of what to expect.  At the end of the journal I speak to the fears of this surgery, and all that is out there on the internet.  http://www.healingwell.com/community/default.aspx?f=45&m=2183443
 
Best of luck in making your decision!
Take care,
Denise
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/28/2012 9:14 AM (GMT -6)   
SCj,
 

Welcome ~ New Friend from all the members here... on HealingWell.com . I wanted to stop in and let you know I am glad you have found us and also it is good to see the great responses you have received from some of our wisest members.  Once you have made up your mind about having  surgery you are halfway to a good outcome.

When reading online experiences,  keep in mind that many people who have had the surgery do not join online groups for support especially people who have done well and have no desire to join a group to say they had a great outcome.  Also, each person comes with their own unique set of problems and perhaps co-exisitng medical conditions which all make a difference in how well they handle their surgery.

Keep talking with us as well. There is 100% acceptance and support here from those who understand.

Kindly,

Kitt

 

 


~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"Life is not about waiting for the storms to pass...
It's about learning how to dance in the rain."~ Vivian Greene
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