I have gotten so much helpful information here since I began my journey to find a cure for my chronic coughing and losing my voice. This has been going on for over two years now and I feel like an elephant is sitting on my chest and I can no longer breathe.
I have had every scan and scope you can imagine and "acid reflux" is only showing up in a biopsy of my esophagus tissue from an Upper GI (EGD). I have esophagitis based on those findings and my vocal cords appear to have nodules and folding with lumpy things underneath. Before I can even look into repairing my vocal region, I have to find the cause of my coughing that causes me to lose my voice. To top it off, I am a Kindergarten teacher and I need my voice.
My esophogram, barium swallow study, nuclear scans, and others that I can't even remember all show "no acid". I am doing the Bravo monitor next week. I am concerned that it will show "no acid" as well, and I will be back to square 1. I really feel like it is acid causing all of this damage. I have no quality of life anymore and can barely walk without being totally winded. My pulmonologist says I have no asthma and my lungs look fine. He writes it off as "sinus issues". However, I started with my ENT and even had surgery last summer on my sinuses and repaired a deviated septum in an attempt to give me relief. I actually got worse after all of that. I have gained about 40-45 pounds during the last 18 mos. because I have no energy and can no longer do much.
Can someone give me some hope that despite other scans showing "no acid", the Bravo monitor may show that acid is actual the culprit. I am so desperate to find the answer so I can find a treatment plan that works. By the way, I have been on Zegrid 40mg in morning and 20mg at night for the last 18 months with no real help.
Thanks for any help!