UK member looking for help; Iatus hernia, singing, surgery operation...

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hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 4/22/2012 9:37 AM (GMT -6)   
Hello

thank you for entering in my post

I'm new in this forum, I'm from Italy and I've been in England (Stafford) for 2 years and I've been suffering for iatus hernia for 9 years

first of all I l kindly ask if this forum is also for English people because I saw its profile and it looks it has been made in USA …

Hoping that in this group I can find useful information about British National Helth Service, I'm going to try and explain my problem …

I've got a iatus hernia of 1,5 cm of diameter, diagnosed with endoscopy made on the 27/06/2009...
This hernia it has been caused by a bad use of my diaphragm studying opera, and I had to completely give up my biggest passion that is singing

The 29/05/2012 I will do my new endoscopy...

My question is:

Why here in England getting health service is so difficult?
I had almost to argue with my previous doctor to get this new endoscopy but now I changed him, I just hope the new-one will be better

I want to do a surgery operation because I'm having a really crap life because of this hernia and my previous doctor told me that here in England they do not do any more this kind of operation

I can also come back to Italy to do this operation or at least, to see if I'm or not a candidate for a surgery operation, but I don't understand why I have to come back in Italy if I am here in England and I'm regularly employed, if I have to do England – Italy every medical visit will be very expensive for me

any suggestion according this subject will be very appreciated

Please if this forum is not for English people, may you suggest a suitable forum to my matter?

Thank you very much in advance for your help
 
Edit: I added a bit to the title of your thread.

Post Edited By Moderator (stkitt) : 4/22/2012 11:47:51 AM (GMT-6)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 4/22/2012 10:02 AM (GMT -6)   
Hi hoezap,
Welcome to Healing Well!  Yes, this forum is for people all around the world.  We have quite a few members from the UK who have had the Nissen sugery, so hopefully they will see your post soon. 
 
I will ask our moderators to revise your thread title to include a reference to the UK or England, which will catch their eye more quickly.
 
I'm sorry to hear that you're having such trouble and that you've had to stop singing opera for a time.  Like you, I don't understand why the surgery can't be done when your career, your passion, and livelihood depends upon it.
 
Hopefully someone from the UK will be by very soon to comment on your post!
I'm glad you've joined the forum!
Best wishes,
Denise
 
 
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 4/22/2012 11:29 AM (GMT -6)   
Hi hoezap --
 
Sorry to hear of your difficulties.  I know exactly how you feel.  I was a classically-trained, professional baritone before reflux finally took my voice away two years ago.  Like you, singing was my life, my passion, and my livelihood.
 
There are some things you should understand.
 
First, it is IMPOSSIBLE that singing caused your hiatal hernia.  Just won't happen.  Hiatal hernias occur in many people naturally, mostly as an aging phenomenon.  Sometimes being overweight/obese can cause them, or lifting heavy weights.  But singing...no.  No matter if you were singing correctly or incorrectly, any diaphragmatic support you give to your breath will flex and tighten the diaphragm, not loosen and/or pull apart the hiatus.
 
Secondly, with a small to moderately-sized hernia as you have, there has been no definitive link to reflux.  Larger, paraesophageal hernias, yes, but smaller ones, the jury is out.  (You don't even mention reflux in your post, so I don't know what your symptoms are.)  Also, a common type of hernia, known as a "sliding hernia," can appear from a poorly-done EGD, or be diagnosed by an inexperienced GI.  What happens during an EGD/endoscopy is that the stomach is inflated with air, and if it is inflated too far, the fundus pushes through the hiatus, making an instant hernia.  Normally, a sliding hernia doesn't appear for long -- perhaps when your stomach is full of food, or if your body is bent over at an angle.
 
There are many folks on this messageboard from the UK.  I'm sorry I don't know anything about your healthcare system.  Before you explore/commit to surgery, you need a better diagnosis, and also need to explore more conventional means of controlling your symptoms first.  Perhaps if you shared your symptoms here, we can offer suggestions.
 
Best wishes.
 
-Bruce

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 4/22/2012 3:27 PM (GMT -6)   
Hi there and welcome,

I am also in the UK.

We certainly do have the hernia repair operation here and in some areas you can pay privately to get the magnet ring device fitted. The standard hernia repair is available on the NHS. After your endoscopy you could also ask about other tests to help define the structural defect - barium swallow or CT scan can be done with contrast I think (that right Bruce?). If you are eligible for surgery (I.e. They confirm the hernia) then they will do further tests on your swallowing to make sure you wouldn't have complications after Fundoplication surgery.

I am very surprised you had to fight to get an endoscopy - I fought very hard not to have it repeated and lost!!

If you are struggling to find a GI surgeon you like you can ask for a second opinion. Another way is to find a consultant with a busy private practice and pay for 1 private consultation. After that you can be transferred to their NHS list (doesn't speed up the op but if you can afford the consultation it may be worth it for the length of time you get with the consultant).

I had a very bad experience with an NHS consultant who basically had no input channel. I looked through the website of my local private hospital and read through the profiles of the consultants, choosing one whose NHS base was local but not at the same hospital as the rude bloke I saw. It was well worth it for having someone listen to me properly.

If you have some money (e.g. Enough for an expensive consultation but not an operation) it may be worth ringing one of the music schools and asking them where they send their sick opera singers - I bet Glynebourne has specialists in London they use.

There was a charity that helped sick musicians - I'll look into it and see if it's still going. If you go for surgery you need someone who can tell you what the impact on your diaphragm etc will be long term.

Hope that helps - am happy to guide you through the NHS if you have any further queries,

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 4/22/2012 3:32 PM (GMT -6)   
http://www.helpmusicians.org.uk/help_you/

This is the charity - give them a ring and see what further guidance may be open to you. They may be able to help organise an NHS referral to someone experienced in hernias in singers.

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 4/22/2012 4:20 PM (GMT -6)   
Thank you so much Denise I believe I'm in good hands now I getting very intresting replies thank you so much again

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 4/22/2012 6:20 PM (GMT -6)   
hoezap-

Welcome to our little family. Well maybe not so little, lol.

This is a great place for information and support for everyone. Glad you found us. This nasty disease doesn't care what country you live in and neither do we. We all suffer from this and try to help as much as we can.

I agree with Bruce, the hernia is just something a lot of people are born with. Some have problems and some don't. I don't believe your singing caused any damage. I too sing and know I don't do things correctly, but it hasn't effected the hernia I had. Noe do I notice any difference after it has been repaired.

Stick with us and add to the great conversations and information here.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 4/22/2012 6:24 PM (GMT -6)   
Thank you so much Bruce for your reply

I'm sorry to hear that you had the same problem, I know how you feel too, but how could a reflux finally took your voice away? … I really hope for you that one day you will start to sing again …
I will try to answer your question and explain better my situation

“it is IMPOSSIBLE that singing caused your hiatal hernia”

Yes, several people told me like this, but what I actually know is that I have a sort of little ball, visible also to naked eye, between the stomach and breast, since I started to have the early symptoms of reflux during my exercises of breathing to strengthen the capacity of my diaphragm, so that's why I believe that singing caused that little ball that is my hernia …

so you want to say me that the endoscopy caused an instant sliding hernia! I didn't know that, this information really shocked me now …

My symptoms are:
pain in the central part of my stomach,
feeling of burning in my esophagus
feeling of presence of foreign body in my troth
rarely small spills of gastric material from my mouth (regurgitation)
when I have these symptoms I can't even talk more than a few minutes because I start to feel burning in my vocal cords, and I remember what my singing teacher use to tell me when I feel this kind of irritation, she always told me that I had to stop to use my voice otherwise I could cause problem to my vocal cords...

Thank you very much indeed Bruce for your kind attention

Paolo

hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 4/22/2012 8:02 PM (GMT -6)   
Thank you so much MMM for your reply

I really wish to pay privately to get the magnet ring, I know about it, and I know also several people who did this new repair operation system for hiatus hernia, and now they are really well, even though they are not opera singers, I really wish I will find here some singer who did this kind of operation or at least somebody who solved this problem somehow... I'm going to follow your suggestion as soon as I get the result of my new endoscopy...

Are you sure that I can ask further tests after my new endoscopy straightly in the hospital? Because it has been told me that the hospital can't do any test without my doctor's referral, that's why I asked to my former doctor to do that further test and he was very rude to me and he told me that I couldn't ask everything in one time and I had asked just a simple esophagel ph monitoring, and after that further bad reaction I decided to change him...

fortunately I don't have problem of money, Do you roughly how are the costs for a visit and a possible operation?

I will definitely ring them as soon as I get the result of my test

“If you go for surgery you need someone who can tell you what the impact on your diaphragm etc will be long term”

yes, that's why I believe that talking to someone who already solved this problem is good solution, but i've never found anyone so far, this is that make me worried...

Thank you so much indeed MMM for all you time and kind attention

Paolo

hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 4/22/2012 9:00 PM (GMT -6)   
Thank you so much Bill for your reply

“This is a great place for information and support for everyone”

I can see thank you so much for everyone

“This nasty disease doesn't care”

Yes I heard a lot of people, doctors, read a lots of threads... saying that there's no care for this kind of disease, but I know that medicine found new methods to care it, and even if this is still experimental I want to try it any way because only who had the same crap life like my-one can really understand I feel now

“I agree with Bruce, the hernia is just something a lot of people are born with”

Yes, actually I can't say with certainty that I wasn't born with it, but I started to see this little ball just under my ribs when I started to have the early symptoms of reflux during my singing exercises (you can read still more details about it on my reply about Bruce's post)

“ I too sing and know I don't do things correctly, but it hasn't effected the hernia I had. Noe do I notice any difference after it has been repaired”.

What do you want to say me here? that you had a hernia and it has been repaired, didn't you? If it's like this, How did you repair it?
You didn't notice any difference in your voice when you sing from when you had the hernia and now that it has been repaired, didn't you?
If it's like this I believe you've never had reflux, haven't you?

Thank you very much again Bill for your time I hope to see you soon again

Paolo

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 4/22/2012 9:48 PM (GMT -6)   
Paolo-

I had very severe reflux since I was about 18. I had a Nissen Fundoplication with hernia repair 6/06. I had to have the Nissen redone on 5/09 because my first was done incorrectly. I then had a 3rd redo on 8/24/11 due to complications from an esophageal tear being repaired.

www.healingwell.com/community/default.aspx?f=45&m=2337138

Here is a link to my history in the resource section of this forum.

I didn't have LPR, just normal GERD. People with LPR can have issues with their vocal cords from the acid going so far up the esophagus.

Yes, I don't notice any difference between my voice prior to surgery and after.

Take care,
Bill devil
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Post Edited (opnwhl4) : 4/22/2012 8:55:04 PM (GMT-6)


bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 4/22/2012 10:31 PM (GMT -6)   
Hi again, Paolo --
 
First of all, I don't know what the "ball" is that you're describing between your stomach and breast, but a hiatal hernia can not be seen visually in this manner.  The esophagus passes through the hiatus within the chest cavity -- not close enough to the chest wall to protrude.  It's not like an intestinal hernia that can be visible through the skin...it's that the stomach can pass slightly above the diaphragm through the hiatal aperture.  Completely different pathology.
 
As for your symptoms you describe:
 
"pain in the central part of my stomach" -- this could be any number of things, and could possibly be exacerbating reflux symptoms.
 
"feeling of burning in my esophagus" -- this could be heartburn, or other, related conditions.
 
"feeling of foreign body in my throat" -- sounds like you are describing globus sensation, a symptom of LPR.
 
Your other symptoms of throat and mouth issues are also reflux.  I completely identify with how it impacts even your speaking voice, and I agree wholeheartedly with your singing teacher.  DO NOT SING with these impairments!!!  As you know, singing requires a special embouchure and strain, that singers train to control.  The irritations from the reflux take away your ability to maintain the embouchure safely while projecting your voice, and further damage can occur as you try to compensate.
 
Before I understood what was happening to me, my voice started slowly collapsing, over a period of months.  My upper register took more effort and strain, and those notes started disappearing.  I could no longer support softer notes for any length of time, because my vocal cords wouldn't close and limit the amount of pressurized breath escaping from my lungs.  I could no longer complete a repertoire of songs before my voice would completely collapse, until I couldn't even finish one song at a stretch.  I began popping throat lozenges.  Trying to sing also caused a stinging irritation in the back of my throat as well, below the palate, presumably because this is where most of the acid would burn as I sleep on my back. 
 
On a good day now, I could probably sing "OK" for about 30 seconds or so, but I will be hoarse for a couple of days afterwards.  I can't even speak for long periods of time before my voice begins getting "gravelly", something that ENTs call dysphonia.
 
Any of this sound familiar?
 
The good news for you is that chances are good that you can find relief without surgery.  You need to make changes in your diet, and how you eat.  There are certain trigger foods that may make your reflux worse.  Do not eat or drink within 5-6 hours of bed, and raise the head of your bed in the neighborhood of 10-14".  I find this easiest with a special foam wedge that starts at my hips.  Don't just use pillows -- as that will make it worse.  I'm 6'1", and I need to augment the wedge with folded towels and blankets to support the pillow at the top.
 
You have a formulation of Gaviscon available in the UK called Gaviscon Advance, I believe.  Take this product before bed.  It won't protect throughout the night, but it will limit your exposure.  Also, while you're at the drugstore, talk with the pharmacist and start with what is known as an "H2 blocker."  There are several to choose from, and these should limit the acid your stomach produces.  There is another line of defense available to you if the H2 blocker doesn't work, called a PPI, or Proton Pump Inhibitor.  There are over-the-counter PPIs available, and other, stronger formulations available from a doctor.
 
What you're doing here is some preventative medicine, as well as some investigation that a doctor should find helpful.  If you improve using what I've described, it will help a GI doctor quickly zero in on a course of treatment.  You need to find a doctor you can trust, to help you sort through all of this.  This "ball" you described, as well as the stomach pains, need further investigation.  Surgery is a last resort -- don't rush it!
 
Hope something here is helpful.
 
-Bruce

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 4/23/2012 4:24 AM (GMT -6)   
Hi Paolo

If your endoscopy is not normal then they may offer you further tests, or should at least be receptive to the idea of them. You can't request them yourself as you say. If you are able to see a consultant privately, however, there may be less resistance to getting extra things done - however, if they feel it's not indicated clinically then they will explain that to you.

When you see the NHS consultant, push the point that this is also a career issue as well as a health problem. It's also OK to ask the consultant if he has any colleagues that he can recommend in the private sector who are doing the Linx surgery.

A private consultation may cost somewhere between £100 and £200 depending on the area, more in London. But I wouldn't rely on my estimate there. Find your local private hospital e.g. Nuffield Hospital in Newcastle under Lyme, and ring them for a quote on fundoplication surgery and the Linx if they do it. If you want to go down the private route after your endoscopy, just give the name of the consultant you want to see to your GP and ask them to write a new referral to that consultant. You then collect the letter when it's ready and take it with you to the private appointment.

First things first though - see what the endoscopy brings! Good luck,

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 4/23/2012 4:27 AM (GMT -6)   
PS: I think (from Google) there's a place doing the Linx device in Birmingham.
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 4/23/2012 4:30 AM (GMT -6)   
PS: Gaviscon Advance is available over the counter in some chemists. You can also buy a H2 blocker (Ranitidine also known as Zantac) over the counter but the dosage is very low at 75 mg and is only intended for the relief of occasional heartburn. Has your GP not offered to prescribe any medication?

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 4/27/2012 4:20 PM (GMT -6)   
Dear Bill

I've read all you vicissitude and i can just immagine all your pain and I'm very happy to hear that now you are well and you can it everything you want and finally you can have a normal life...

thank you very much indeed for sharing your experience with me

all the best
Paolo

daddypig
Regular Member


Date Joined Aug 2011
Total Posts : 90
   Posted 4/27/2012 6:14 PM (GMT -6)   
MMM has given you great advice on the nhs. If you are lucky enough not to worry about cost then absolutely try private, try the bupa.co.UK website. If you find someone with an NHS practice then you can always ask to transfer to their NHS list later. It iisnt the system, its the individual, keep pushing.

Kevin- hh and wrap Aug 2011,

hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 4/27/2012 6:20 PM (GMT -6)   
Thank you very much indeed Bruce for your time

“First of all, I don't know what the "ball" is that you're describing between your stomach and breast, but a hiatal hernia can not be seen visually in this manner.  The esophagus passes through the hiatus within the chest cavity -- not close enough to the chest wall to protrude.  It's not like an intestinal hernia that can be visible through the skin...it's that the stomach can pass slightly above the diaphragm through the hiatal aperture.  Completely different pathology”

Yes a lot of people told me like this and also a Doctor (from a very good italian forum) but nobody explained me yet, why I have this ball exacltly at esophageal hiatus level, which gets harder, more painfull and more visible just when I have the symptoms of reflux, and in addition I've got this ball just since I started to have the symptoms of reflux wich let to me give up studing singing, the Doctor mentioned above told me that it's an abdominal hernia, so, is it mean that I've got 2 hernias? I'm very confuse and desperate now I'm not understanding anythingelse, I've just sent a new post to this doctor for more information about it and I hope he will reply me soon...

“On a good day now, I could probably sing "OK" for about 30 seconds or so, but I will be hoarse for a couple of days afterwards.  I can't even speak for long periods of time before my voice begins getting "gravelly", something that ENTs call dysphonia.
 
Any of this sound familiar?”

Yes I had exactly the same vicissitude unfortunately :-(

Bruce please share you vicissitude with me give me more information about it like:
Do you have a hiatal hernia too?
If yes, How did you cause this hernia? for example, doing exercises of breathing to strengthen the capacity of you diaphragm?
Have you never thought to do a surgery operation?
Why did you give up singing so easily?
I will never give up, I will fight against this beast for all my life because I love singing too much :-(
you informations about it are very important for me...

I didn't know about a foam wedge, I will buy it soon

I've nevere tried Gaviscon and H2 blocker, I herd a lot about the first one but i've never hear about H2 blocker, I use to take ppi like lansopranzole 15mg and after 30mg and the last-one was omeopranzole 40mg...

“What you're doing here is some preventative medicine, as well as some investigation that a doctor should find helpful.  If you improve using what I've described, it will help a GI doctor quickly zero in on a course of treatment.  You need to find a doctor you can trust, to help you sort through all of this.  This "ball" you described, as well as the stomach pains, need further investigation.  Surgery is a last resort -- don't rush it!”

yes I'm going to follow your suggestions, most of them I've known already as I've been suffering for hiatus hernia for 9 years now but I've never had yet a good diagnosis, I hope I will have it here in England

thank you so much again Bruce for all your time

Paolo

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 4/27/2012 9:02 PM (GMT -6)   
Hi again, Paolo --
 
My reflux symptoms first began significantly impacting my voice in 2008, although it probably began a year or two before that point.  I saw my first doctor, an ENT, in November of that year, when I completely lost my ability to sing.  As a result of that visit, he prescribed Zantac.  After about nine months, I was able to sing without limitation again.
 
I didn't understand what reflux was, really, and thought erroneously that I was "done" with it.  The ENT certainly didn't explain anything to me.  Obviously, when I stopped taking the prescription, the symptoms returned.  But what had happened was that I had developed a tolerance for H2 blockers, which is a common occurrence with long-term use.  So, they were no longer effective. 
 
From January of 2010 through October, I tried just about every homeopathic remedy I could find, as well as adjustments to my diet, sleeping on an incline, etc.  My symptoms progressed, and quickly became worse than before.  Between October and May of 2011, I tried most of the available PPIs, but they all caused massive headaches and heart arrythmia.  They worked, I just couldn't tolerate them.
 
During this time I was also going from doctor to doctor, and had several exploratory tests.  During one of the endoscopies, I was told that I had a 2.5cm hernia.  The next endoscopy, six months later, found no evidence of that.  It was then that I was told about the inflation problem, which makes a sliding hernia appear worse than it is.  A small to moderate hiatal hernia probably does not "cause" reflux.  There are those with hernias who don't have reflux, as well as those without hernias who do.  I don't know when my hernia first appeared, nor can I feel it.
 
I had the TIF surgery in August of 2011.  I was symptom-free for about four weeks following the procedure, because the surgical site was swollen and tight.  The symptoms reappeared after that.
 
While the TIF was successful in reducing my reflux into what's considered a "normal" range, I am still experiencing airway/LPR symptoms.  I am completely out of medical options at this point.
 
I did not give up singing "easily".  I can't tell you how difficult this has been, how many times I have cried, or wished my life would just end.  I had just purchased thousands of dollars of equipment, taught myself how to run complicated recording software, and was working on my first CD.  A more cruel twist of fate is impossible.
 
I remember clearly the last time I tried to sing in front of others.  I couldn't make it through a single, simple religious solo as written, and had to quickly think through all the notes ahead and shift my voice an octave lower.  I was afraid that this might happen, and had said a prayer for myself ahead of time, asking God to give me my voice one more time, like he gave Samson his strength.  As you can imagine, I was absolutely crushed.
 
As awful as all this sounds, please do not take this as a "sentence of doom" for you.  As I said before, chances are very good that you can find relief, and return to singing.  My story is different, because of my sensitivity to medication.
 
Best wishes.
 
-Bruce

hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 4/28/2012 5:09 PM (GMT -6)   
Dear MMM thank you very much indeed for your reply

“If your endoscopy is not normal then they may offer you further tests, or should at least be receptive to the idea of them. If you are able to see a consultant privately, however, there may be less resistance to getting extra things done - however, if they feel it's not indicated clinically then they will explain that to you”.

I wish it'll be like you say I will confirm you 29th of May hopefully

“When you see the NHS consultant, push the point that this is also a career issue as well as a health problem”.
This is a really good suggestion. I will definitely do that

“It's also OK to ask the consultant if he has any colleagues that he can recommend in the private sector who are doing the Linx surgery”
I will do this too thank you

“Find your local private hospital e.g. Nuffield Hospital in Newcastle under Lyme, and ring them for a quote on fundoplication surgery and the Linx if they do it”.
Thank you, I will definitely do it, Newcastle is really close to Stafford

If you want to go down the private route after your endoscopy, just give the name of the consultant you want to see to your GP and ask them to write a new referral to that consultant. You then collect the letter when it's ready and take it with you to the private appointment”.

Yes, this is what I wish to do, but I realised that GP doctors here do not issue referral easily or at least my former doctor was like this, but I don't know this new-one how it is...

“Gaviscon Advance is available over the counter in some chemists. You can also buy a H2 blocker (Ranitidine also known as Zantac) over the counter but the dosage is very low at 75 mg and is only intended for the relief of occasional heartburn”

Yes also Bruce suggested to me exactly the same medicine I will definitely try them

Has your GP not offered to prescribe any medication?

Yes, I use to take lansopanzole 15mg and after 30mg in Italy and here in England they give me omeopranzole 40mg? But when I take them I was more sick by the medicines than for my hernia, because headache and nausea...

Thank you so much MMM for all your time
I'll let you know as soon as I have news about my problem

best regard
Paolo

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 4/28/2012 5:26 PM (GMT -6)   
You're welcome. Hope you make good progress after your next appointment.

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

AnotherDay
Regular Member


Date Joined Feb 2012
Total Posts : 20
   Posted 4/28/2012 6:52 PM (GMT -6)   
Paolo,

I'm only 30mins from Stafford. The doctors and surgeons I've seen at Telford are excellent. Might be worth switching.

hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 5/3/2012 4:41 PM (GMT -6)   
Bruce

Dear Bruce,
thank you very much indeed for sharing your experience with me

“My reflux symptoms first began significantly impacting my voice in 2008, although it probably began a year or two before that point.  I saw my first doctor, an ENT, in November of that year, when I completely lost my ability to sing.  As a result of that visit, he prescribed Zantac. After about nine months, I was able to sing without limitation again”.
I had my first reflux symptoms in 2005 and I was 22 years old, my first doctor was also an ENT, but he didn't understand what my problem was and from that period I've never started to sing again, so in 2008 I gave up completely studying singing and I started to study English, and my aim was leaving Italy soon to go in a different country with better health service, that's why I'm in England now, but now that I'm in England I've found out that in Italy the health service did an important improvement to care this kind of desease ...
May I ask you how old were you when your symptoms started?

“I didn't understand what reflux was, really, and thought erroneously that I was "done" with it.  The ENT certainly didn't explain anything to me.  Obviously, when I stopped taking the prescription, the symptoms returned.  But what had happened was that I had developed a tolerance for H2 blockers, which is a common occurrence with long-term use.  So, they were no longer effective”
I've never taken a lot of medicine for long term, I used to take lasopranzole 15mg but when I realised it was causing me just more troubles like, headache and nausea I stopped to take them and I tried to change my life style to be better rather than taking medicines and if I follow a very strict diet and I go to bed always with empty stomach I don't have so much symptoms but I can't sing anyway...

“During this time I was also going from doctor to doctor, and had several exploratory tests.  During one of the endoscopies, I was told that I had a 2.5cm hernia.  The next endoscopy, six months later, found no evidence of that.  It was then that I was told about the inflation problem, which makes a sliding hernia appear worse than it is.  A small to moderate hiatal hernia probably does not "cause" reflux.  There are those with hernias who don't have reflux, as well as those without hernias who do.  I don't know when my hernia first appeared, nor can I feel it”.
I did my first endoscopy in Italy on June 2009 and it was told me that I had 1.5cm hernia I have my next appointment fixed for the next 29th of May for my new endoscopy...
How could you your hernia disappear in your second endoscopy 6 months later and later-on a sliding hernia appearing worse than it is?
Is there any different between the diameter of the hernia (that little hole that you see on the picture) and a sliding hernia? Are they 2 different things?
Can hiatal hernia be a hereditary disease? Because also my mother has got it

“I had the TIF surgery in August of 2011.  I was symptom-free for about four weeks following the procedure, because the surgical site was swollen and tight.  The symptoms reappeared after that”
Why did you have TIF surgery instead of Nilssen or still better I believe the ring magnet? I know that with TIF surgery you had no incision on you chest so I believe you made this decision because of this, but I know also that TIF surgery is not as efficient as the ring magnet or Nilssen

“I did not give up singing "easily".  I can't tell you how difficult this has been, how many times I have cried, or wished my life would just end.  I had just purchased thousands of dollars of equipment, taught myself how to run complicated recording software, and was working on my first CD.  A more cruel twist of fate is impossible”
I know exactly what it means: you can't believe how many time I have cried too and thought that my life was finished,
But why you didn't try to do a different surgery operation?
I know that Medicine is doing a very important progress in caring this kind of disease you don't need to take your vicissitude as "sentence of doom" too,
today I was watching on sky news about a guy called Chris James, who had been totally blind for more than 20 years, is the first British patient to be fitted with a digital chip similar to those used in mobile phone cameras. Chris is able to see a rough outline of simple shapes.
Doctors believe that in time - as his brain 'learns' to see again - he could recognise faces. he said that he had always had that thought that one day I would be able to see again...
this is what you need to do you have never to lose that thought that one day you would be able to sing again, something that I really wish for both of us

Are you still looking for a new solution like: a new operation?

Thank you very much indeed Bruce for sharing your experience with me

I hope to hear from you soon again

all my heartfelt wishes for your recovery
Paolo

hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 5/3/2012 5:50 PM (GMT -6)   
Hi Bruce

here there is a very good news for you about the ring magnet, today in a hospital in Italy they've done th 100th succesful ring magnet operation against the reflux and now the operation can be done also in USA,
the link below is in Italian if you have any problem to translate it I'll do it for you

http://www.ilgiorno.it/sudmilano/salute/2012/04/11/695704-reflusso-gastroesofageo-collarinoi-magnetico-cento-policlino-san-donato-bonavina.shtml

hoezap
Regular Member


Date Joined Apr 2012
Total Posts : 29
   Posted 5/3/2012 6:27 PM (GMT -6)   
I'm only 30mins from Stafford. The doctors and surgeons I've seen at Telford are excellent. Might be worth switching.

I'm very happy to hear that I've found somebody near my Stafford

may you tell me more about these doctors? like any name to make a research

May tell more about your experience with these doctors?

any information according this subject will be very appreciated

I hope to here from you soon

best regards

Paolo
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