LPR - Diagnosis -- without Esophageal Manometry

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PJess
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 4/26/2012 11:37 PM (GMT -6)   
Hello Everyone,
First of all, I want to thank you guys again for all the super info along my journey to figuring out what is wrong with me! I have heard about Nissens Fundolplication and think it will help me, but of course, I am in process of all testing done prior to surgery. My ENT referred me to a Cancer Specialist (also an ENT) who specializes in RARE throat disorders....that would be my problem! My vocal cords are shot; swollen, red, and I have lumpy folds in the tissue below them. And, I have a horrible chronic cough, sore throat and complete voice loss at times or hoarseness at times when I do have a voice. He referred me to a GI doc to have tests / scopes, etc. done. So far, I have had:
1) Esophagram
2) Barium swallow study
3) Upper G.I.
4) Colonoscopy -- they threw this one in for good measure (It's a good thing, too, because they found a large pre-cancer polyp and removed it!)
5) Hida scan (for gallbladder function)
6) abdominal ultrasound
7) Nuclear Reflux study (this may be stomach emptying study)
8) Bravo Monitor -- went for this today, but they had an equipment malfunction with the only available monitor left at hospital, so I could not get it done.........

So, I go back for the Bravo Monitor on Monday. Do I have to have an esophageal manometry done in order to have NF surgery? My GI said he did not want to do it (yet?) or possibly not at all. So far, all studies have shown little or no reflux activity, although all symptoms point to LPR. ONE test (biopsy of Upper GI endoscopy did show esophagitis/ probably caused by acid reflux). Is it necessary to have the manometry in order to do the surgery? Why would they be putting it off? Also, my GI said if it is not ACID reflux, it may be alkaline reflux causing the damage and it could also be helped by NF surgery. I just want to move on with this..........each day goes on and I am completely miserable. I have NO quality of life at all. I can barely breathe as a result of this. I also went to a pulmonologist who said that my lungs are clear and breathing is mostly normal, however, he did not test me when I was having an attack. I also had sinus surgery last summer in an effort to correct if it was caused by sinus issues........apparently not since it got worse after that surgery...........Help....I would like some answers.....please let me know if you have any experiences like these......

Thanks so much!
PJess

PJess
Regular Member


Date Joined Feb 2012
Total Posts : 26
   Posted 4/28/2012 12:06 PM (GMT -6)   
Thank you, JPT! Good luck with your LINX. My ears DO hurt. A LOT! My ENT would check them and say they looked fine. It was so frustrating......What doc checks for Pepsin? GI or Pulmonologist? I have absolutely no confidence at all in my pulmonologist. I think I have done more research on this than he has in his entire career. He said, "oh, you probably have a sinus infection"............duhhhhh........I didn't even have a response to that statement....this has been going on my whole life and now it is so bad that I feel like I already have cancer. I will look up that diet. I have tried so many things already, but will be willing to try ANYTHING at this point. I want to have the Fundoplication surgery, but not if it will not improve my symptoms. Will keep you posted!

Thanks for the reply!
PJess
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