About to schedule Fundoplication Number 3...

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MultiFundo
Regular Member


Date Joined May 2012
Total Posts : 46
   Posted 5/3/2012 1:18 AM (GMT -6)   
I am 32 years old and just visited the surgeon again today to see about *another* redo. I went through my original procedure and the first redo without any online support, but figured I might reach out and see if I could help others or possible skim a little advice out of others. :)

I had life-long reflux without even knowing that there was such a thing as life without heartburn until I collapsed in 1999 after drinking a glass of wine as a freshman in college. (I know I wasn't 21 yet -- guess that was my punishment.) It turns out that I had 2 bleeding ulcers by then, and a rather large hiatal hernia. I lived for a year on 40mg of Prilosec and 4 doses of Propulsid each day and was still suffering reflux. So, in 2000 I had a Nissen at a hospital that was an early adopter of laparoscopic surgery.

Everything was great for 8 years. Then, very suddenly, I found myself dry heaving after almost every meal. Granted, I had ballooned up to 220 lbs and was probably not eating very well, but I didn't think I did anything so terrible as to cause such a sudden onset of symptoms. So, I found myself a new gastro, who promptly told me "lose some weight and everything will get better."

80 lbs. later, nothing was better. I found a surgeon willing to attempt another laparoscopic procedure, and flew to him to have my second procedure in 2010. Turns out I had more than 50% herniation -- don't think losing weight was going to fix that.

Since that surgery, I suffer from occasional dumping syndrome and have not been able to tolerate super thick foods (bread, rice, etc.) or any meat at all. In January, I began having lower chest pains, right by the stomach, which gets worse after eating and when lying down. My newest gastro got a bit worried and sent me for an Upper GI and endoscopy. Guess what? Looks like some herniation and signs of erosion again.

I don't even know what to eat anymore. I'm basically a fat-free, sugar-free, vegetarian who can't handle raw vegetables, bread, rice, or anything acidic. Try to find *that* on the menu.

The first surgeon I saw last month told me that I'm too young to be in this position. I ran from him. Too young? That's helpful. I'm back to the second surgeon, who is willing to go in and see what he can do. He's already doing a refined procedure on new patients and thinks I will get better results if he anchors the stomach.

Here's hoping I don't lose my esophagus before my 33rd birthday.

Post Edited (MultiFundo) : 5/3/2012 1:21:26 AM (GMT-6)


btrflygrl24
Regular Member


Date Joined Mar 2012
Total Posts : 28
   Posted 5/24/2012 9:32 PM (GMT -6)   
Hi there,
Your post caught my attention as I'm 31 and had my fundo almost 2 years ago. The last few days out of nowhere it seems I've been having symptoms such as abdominal pain, coughing, and now queasiness. Food makes the pain worse, bad enough in fact that I went to the ER the other day. My GI Dr says it's possible my wrap came undone or it could be something simple like an ulcer (I can only hope!!). I had a large hiatal hernia which no scan, procedure, or test ever showed until the surgeon physically got in there :-/ (and I had dozen upon dozens of different tests!). I too am back on a fun filled diet of sorts along with PPIs. I get an EGD tomorrow so I can only hope for good news. It's nice to know I'm not the only one possibly looking at a repeat. So sorry you're on #3 tho!! I'm a vegetarian by choice but I can't imagine all your other restrictions, that must be tough! Oddly enough I heard the same thing "you're too young to be in this position" many times and it's completely frustrating. I just want to yell at them "tell me something I don't know"!! lol Anyways, third time is the charm right? :) Wish ya luck!

Carolyn

MultiFundo
Regular Member


Date Joined May 2012
Total Posts : 46
   Posted 5/25/2012 6:44 AM (GMT -6)   
Thanks so much Carolyn. I am glad there are more of us "too young" people on here to stick together. I hope the EGD goes easily - and shows something that can be fixed.

I hate when we're subjected to invasive tests that are inconclusive...

Jonh71
Regular Member


Date Joined May 2012
Total Posts : 121
   Posted 5/25/2012 9:36 AM (GMT -6)   
I think there is a big misconception with doctors who are general practitioners that heartburn for want of a better description is something that is related closely to age. I had my fundoplication at 39 after being diagnosed following a hospital admission for gastritis at the age of 37 which the doctor admitting me stated was alcohol related (I was none too happy about this as it was blatantly incorrect). After talking with said doctor for some time he finally admitted it could be acid related and referred me for tests at which I failed manometry and had some interesting ph results. Anyhow when my fundoplication failed I had considerable chest pain and found it difficult to take a full breath which got me admitted again, I also immediately started belching and having stomach ache and reflux. I would suggest that you keep pestering your gp until you are happy.

I now wait a manometry and 24hr ph test after a gastroscope showed it had failed completely. Even after this experience I would certainly look to get the surgery done again as the benefits I felt are worth it anytime but everyone has to make their own decisions. Good luck.

MultiFundo
Regular Member


Date Joined May 2012
Total Posts : 46
   Posted 7/11/2012 8:24 PM (GMT -6)   
Just an update, if anybody is interested. It took several months to get on the schedule, but I have officially scheduled "round 3" on July 24.

buzzmoz
Regular Member


Date Joined Mar 2012
Total Posts : 52
   Posted 7/11/2012 8:40 PM (GMT -6)   
12 days to go then Multifundo. Good luck with your 3rd round. I do hope all goes well and you have a swift recovery.
Regards
Buzz

ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 7/11/2012 9:11 PM (GMT -6)   
This all sounds terrible, I'm sorry for u all. I'm also young, 29, and I was diagnosed at 22. The last 6 months have been awful for me. It's a major flare up which led me to testing. I'm on nexium 40 mg and gaviscon. Gluten free, dairy free, low sugar, low acid, low carb, low fat. Still have symptoms even that way. This condition sucks at any age but when u are young it really affects your social life. I'm also afraid to get pregnant for fear it will get worse. Good luck to us all
Diagnosed GERD, no other medical conditions (this one is enough)

babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 639
   Posted 7/12/2012 12:33 PM (GMT -6)   
I had my 3 nissens within a year and I'll find out Monday if my GI will do a 4th. I'm 28, had my first when I was 26. I, too, was told I was too young to have these problems. My issues started when I got pregnant with my daughter and they haven't went away. Like you, I couldn't eat much of anything. During my pregnancy I lived on a handful of cheerios a day and just enough drink to get my omeprazole down. I couldn't stomach much more. My EGD last year showed my wrap is now herniated, twisted, and broken down, not sure how all of that happens.

Good luck to you! And I hope this is the end of your journey. Please keep us updated.
Michelle

~Diagnosed with POTS 10/11~
~Nissen redo #3 coming soon~
~Nissen redo again 12/13/10~
~Nissen redo 05/10/10~
~Nissen 12/14/09~
~Colostomy 07/30/06~
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