Nissen 2 times any advice?

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Jonh71
Regular Member


Date Joined May 2012
Total Posts : 121
   Posted 5/8/2012 10:05 AM (GMT -6)   
Had a lap Nissen in July 2010 but 12 months later had severe pain in the upper abdomen that got me admitted to hospital, then got fobbed off by doctor who actually stated "I do not know what a Nissen fundoplicatin is but I do know your problems are not due to this". Anyhow after having lots of issues with burping, pain, heartburn and vomitting blood I saw my gp & his response was the same. 12 months later and lots of moaning I have had a gastroscope and surgeon stated that there was absolutely no sign of original operation left. I am now looking at repeating the fundoplication but I wondered if anyone could offer their own experience.
1. Is the recovery as before or harder 2nd time?
2. Is it possible lap?
3. Anyone else have similar symptoms (belching and pain Lh side of chest)

My symptoms this time are different in that I have issues with a lot of belching, pain in stomach (constant low level with occasions of more intense pain), acid reflux and general feeling unwell. Whereas before my first fundoplication it was just reflux.

Jonh71
Regular Member


Date Joined May 2012
Total Posts : 121
   Posted 5/8/2012 10:54 AM (GMT -6)   
Sorry meant to introduce myself but sent first post to early.

Hello all I am Nissen veteran after having heartburn issues, my problem was not a hiatus hernia but my les not closing after food. I am now 40 and consider myself reasonably fit in as much as I run 3 times a week an average of 5 km each time and do some other cardio and resistance training. Before my first Nissen I was much fitter and had op as it seriously started to affect my training. Anyhow thanks of hearing me out and any advice would be appreciated.

Gaviscon99
Regular Member


Date Joined Apr 2012
Total Posts : 53
   Posted 5/8/2012 12:23 PM (GMT -6)   
Hi. I feel just the same. Had redo 180 fund 3 weeks ago and think it's failed. I too feeling generally unwell, burping a lot, heartburn and chest pain. Combined with nausea and retching it's very unpleasant. I want to know what the next option is too.

Jonh71
Regular Member


Date Joined May 2012
Total Posts : 121
   Posted 5/8/2012 2:35 PM (GMT -6)   
Hi gaviscon99, thanks for the reply. I haven't had the 2nd fundo yet but will I think opt for it as after the first I felt so much better, I didn't realise how crappy I felt before until after the op when things had settled down. The worst of the symptoms are gastritis which I continually seem to be bordering on and again this was not present till wrap failed.

Anyhow I hope things work out for you.

MultiFundo
Regular Member


Date Joined May 2012
Total Posts : 46
   Posted 5/8/2012 5:09 PM (GMT -6)   
Hi John,

My first fundo failed after 8 years, and I was able to find a surgeon willing to do a second -- and to keep it laparoscopic. Unfortunately, every time the procedure is redone, you increase the likelihood of failure and increase some of the side effects. Whereas before, I was told I could eventually resume normal activity, this time I was told to avoid pulling, pushing, or lifting anything over 20 lbs. for the rest of my life. (Likely, some of that is due to the massive mesh repair that they needed to do to the diaphragm the second time. I have >50% herniation.)

Two years later, I'm having similar symptoms to you. Chest pain, terrible gas, fatigue, and "unwellness." I'm likely going in for #3... and the surgeon is still willing to do it laproscopically.

If you want it to be a close procedure, you need to search out the right doctors. If you hear scary things about the procedure, find other doctors. You may need to travel to do it. I get surgery done hundreds of miles away from where I live just because I think the doctor is right for me.

Jonh71
Regular Member


Date Joined May 2012
Total Posts : 121
   Posted 5/9/2012 1:18 AM (GMT -6)   
Hi multifundo

Many thanks for the feedback, I hope I will not have the weight restrictions as I have no herniation just the manometry failure. However any improvement on today will be welcome. One of my concerns is that the surgeon that I saw insisted on doing the endoscopy himself as he wanted to see himself what was happening and after he was very much "can you manage with ppi to control the condition". It was almost like he was not keen on a redo, however by the same token he does not suffer what I do.

Many thanks again and I hope all goes well with yourself.

babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 639
   Posted 5/9/2012 11:54 AM (GMT -6)   
Hey John! I've had 3 nissens and will be getting a 4th soon. All of my recoveries and restrictions were the same. I'm seeing a new specialist who did a scope and said my wrap is herniated, twisted, and broken down. I did have some scar tissue removed with the last nissen. The same incisions were used except 1. Of course there will be a higher risk of complications after every one but if you're symptoms aren't managed with meds, I would consider it.

Gaviscon, 3 weeks is way too early to tell if the wrap has failed. Everything has been redone and needs time to settle and let the swelling go down. Burping is good, you won't be as bloated. Don't lose hope just yet!
Michelle

~Diagnosed with POTS 10/11~
~Nissen redo #3 coming soon~
~Nissen redo again 12/13/10~
~Nissen redo 05/10/10~
~Nissen 12/14/09~
~Colostomy 07/30/06~

Cmac3721
Regular Member


Date Joined Dec 2011
Total Posts : 36
   Posted 5/9/2012 3:22 PM (GMT -6)   
Hey multi fundo, where did you get your re-do done, and what do you do if your wrap stops working but the doctors still say its "in tact" even though im getting acid, regurgitating, and im able to throw up again. Doesn't that mean the wrap has failed? wasn't that the whole point of the procedure was to hold things down, I was ok for four years now now I'm getting acid all the time now. The docs keep giving me the run around any suggestions on how to get this fixed.
'

MultiFundo
Regular Member


Date Joined May 2012
Total Posts : 46
   Posted 5/10/2012 6:33 AM (GMT -6)   
Cmac-

I had my redo done (and am scheduling the 3rd one) at Johns Hopkins. There is a very small club of American doctors that routinely do these redos. I saw another surgeon in Atlanta before returning to Hopkins (insurance requirement) who told me he does them "all the time," but then did exactly the same thing as John's surgeon -- telling me I should just try PPI's and that if he "attempted" it, I should expect to wake up with a feeding tube in my abdomen...

My Hopkins doctor told me that the feeding tube thing comes from the redo procedure used 20+ years ago.

If you can afford to travel for surgery, I highly recommend finding a doctor at a teaching hospital who does *research* on GERD, and gets to tweak and modify the procedure instead of just doing it the way its been done for 20+ years. After all, the failure rates for the "old" procedures are high.
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