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WJF
Regular Member


Date Joined Sep 2011
Total Posts : 273
   Posted 5/9/2012 6:11 AM (GMT -6)   
I had some bad flare-up episodes that gave me severe heartburn, mainly caused by overeating or wrong food.
I decided to temporarily abandon the natural healing route, and put myself back on PPI.

Now I'm taking Pantoprazole 40mg before breakfast + Ranitidine 150mg at bedtime daily. Symptoms are well controlled by the medication. I still felt the reflux, but it wasn't painful (due to lower acidity). Seems like the medication has taken away the heartburn but does nothing to the loose LES.

Give myself four weeks to heal and see what goes from there.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/9/2012 4:46 PM (GMT -6)   
Ah poor you. It's just a merry-go-round isn't it! I'm just having to reduce my PPI again . . .because of some nasty side effects . . again. I'm right back where I was a year ago!!

Enjoy your symptom holiday!

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

WJF
Regular Member


Date Joined Sep 2011
Total Posts : 273
   Posted 5/9/2012 6:35 PM (GMT -6)   
I have begun to feel some side effects. I think 40mg is the dosage where you will feel some side effect, yet still tolerable. I had no side effect when on 20mg rabeprazole, terrible side effect when on 80mg Nexium. The dosage is the clue.

Jonh71
Regular Member


Date Joined May 2012
Total Posts : 121
   Posted 5/10/2012 5:21 AM (GMT -6)   
I take lansoprazole 40mg and have the acid under control but as yourself the loose LES is no different for me and my issue was a failure on the manometry test as well as PH. I can only assume that the acid I have is somewhat nuetralized as I do not get so much of the burning, however I have a constant low lying stomach ache that sometimes results in gastritis and in general the feeling of liquid in the back of the throat and regurgitation. This is what I have found difficult to explain to the doctor - yes my acid is under a reasonable control but it is not only acid it is the other symptoms and general feeling unwell that are my issue. My first Nissen failed at just under 12 months and it has took another 11 months to finally get a referal and an endoscope to confirm what I knew - the fundo failed completely 11 montsh earlier. I suggest "but this is only my opinion" that you keep challenging your doctor until you are happy and satisfied, in my experience it is hard to explain to someone who does not suffer what it is like.

Good luck.

WJF
Regular Member


Date Joined Sep 2011
Total Posts : 273
   Posted 5/10/2012 8:01 AM (GMT -6)   
Sorry to hear that, are you planning to go for a redo?

Today I felt more reflux after I ate a bigger lunch. Again, it wasn't painful, just irritating. PPI has done nothing to stop the reflux, it just lowered the damage. I wonder why the pharmaceuticals put so much effort into developing drugs that lower acid level after omeprazole came out, no one seems to research how to restore LES function.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/10/2012 9:00 AM (GMT -6)   
WJF,
 
I do believe research is going on re LES function restoration :
 
http://clinicaltrials.gov/ct2/show/NCT01578642
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

www.healingwell.com

"Life is not about waiting for the storms to pass...
It's about learning how to dance in the rain."~ Vivian Greene

Carrie48
Veteran Member


Date Joined Mar 2010
Total Posts : 638
   Posted 5/10/2012 10:06 AM (GMT -6)   
It says on that attached that they are recruiting participants for the study! I read through it and wow....I sure hope this works and gets approval.

I am tempted to apply for the study because I am so tired of the reflux but I'm still determining what the cause of mine is.
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.

Jonh71
Regular Member


Date Joined May 2012
Total Posts : 121
   Posted 5/10/2012 11:05 AM (GMT -6)   
HI WJF, I intend a redo as I think my fundo failed after I lifted some bikes into a car boot (trunk) and the height/position/depth was tricky with me blancing the weight at full stretch. I think I would have been good had I not done this after a meal, immediately I new I had hurt myself and later that day I started to get issues and within 3 days I ended up in hospital (I had belching, reflux and a hel of a lot of pain giving shortness of breath). After examinations and a gastroscopy my doctor said there was no evidence I had ever had a fundo and that it could only be as a result of pressure effectively bursting the fundo.

Anyhow I will advise on my progress via this site for anyone interested.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/10/2012 12:19 PM (GMT -6)   
Hi John

Don't forget you are entitled to a second opinion - if you have a large teaching hospital not too far away it may be worth asking for a referral to someone else just to confirm the advice you are being given. I would ask your surgeon if he's done many redos - find a non-accusing way to ask e.g. "when you've done other redos, what was the relapse rate" (rather than "so how many of these have you actually done?!). Another option, if you're wanting a second opinion; if you've got a private hospital nearby see if you can work out who has a big private practice amongst the GI surgeons - then look for where his or her NHS base is and ask to be referred.
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

Jonh71
Regular Member


Date Joined May 2012
Total Posts : 121
   Posted 5/10/2012 1:40 PM (GMT -6)   
Thanks for the advice mud magnetum I had a conversation with the consultant/surgeon and he stated a 5-10% failure rate but can't remember if timescale was 5 years. He was bothered by the fact that I was admitted as an emergency assessment when the fund failed and the doctors there ignored what I said and told me I had a pulled muscle. I had to keep plugging at my gp's surgery to get a referral back to him as I had been discharged, and this took 4 visits to the gp. I will I think take a second opinion outside the area as the consultant/surgeon is the only upper gi specialising in this within a considerable radius and is also the only near private consultant. Interestingly enough he did state he had never seen a failure of this type, it was instantaneous and total with no herniation. Why did I have to be the exception?

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/10/2012 1:44 PM (GMT -6)   
Sorry - lost internet connection in the middle of posting my reply - it did have the following ending: -

Hope you're on your way to getting sorted now,

MMM

!!
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/10/2012 1:57 PM (GMT -6)   
It could just be that you happen to have had an unusal confluence of circumstances/events, but if it were me I think I would want a second opinion. It may take some persuading to get a referral outside of the area on the NHS, but it should be possible, especially if you are in an area without a specialist centre or teaching hospital. If you can manage the cost of a one off initial consultation with a different consultant, it may be worth the fee - make sure your GP sends copies of all the correspondence from the hospital you've been to. BUPA will give you a list of their approved consultants, which may help, they may even be able to find out who does a lot of redos for you.

If you've got any friends or colleagues with private medical insurance, they may also have ideas for where to go or who to see 'over the border'. But best way is to suss out who is Top Dog at the nearest big teaching hospital and contact their secretary for advice on their private practice and their waiting time for NHS referral.

Hope that helps,

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma
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