So frustrated!!!

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babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 639
   Posted 5/15/2012 8:40 AM (GMT -6)   
I started seeing a GI specialist 2 hours away because the local GI I was seeing and my surgeon turned me away, said they couldn't do anything else for me. My new GI did a scope and said my wrap was herniated, twisted, and broken down. It needs to be redone AGAIN but he won't redo it until I have another manometry. He was going to do a flex sig (separate issue) and put the manometry tube in while I was sedated and finish the test after I wake up. The issue is they have to schedule it for the first appt in the morning, at 7am. There's no way I can leave at 5am to get there by then. I talked to his assistant about it and she said I could have my local GI do the test so I scheduled it. I just got a call from my 'long distance' GI and said he needs to do the test, I can't have part of my care here and the other part done there. I told him I don't want my care here but I can't get there at 7am to do the tests! I just want my wrap fixed!!!! He said it could keep coming undone if I have a motility problem but I'm pretty sure I read about people that have had motility problems and still got a wrap?
Michelle

~Diagnosed with POTS 10/11~
~Nissen redo #3 coming soon~
~Nissen redo again 12/13/10~
~Nissen redo 05/10/10~
~Nissen 12/14/09~
~Colostomy 07/30/06~

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/15/2012 9:08 AM (GMT -6)   
Oh dear. No way round the logistics - can you stay overnight somewhere the night before and go straight to the hospital for 7 am? Even if you drove there to arrive late evening and had a poor night's sleep, it may be worth it to get things done in one go?

I feel for you- I tried to schedule cystoscopy with gastroscopy and they wouldn't play ball !

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 639
   Posted 5/15/2012 9:56 AM (GMT -6)   
I can't stay overnight. I have 3 kids, 4 after school gets out and my fiance doesn't get done with work until 6am. I told the nurse if she can schedule it later in the day I can find a babysitter but it has to be the first appt of the day. I was supposed to get a flex sig with mac sedation and he was going to put the manometry tube in while I was sedated. So it's 3 different departments they have to schedule.
Michelle

~Diagnosed with POTS 10/11~
~Nissen redo #3 coming soon~
~Nissen redo again 12/13/10~
~Nissen redo 05/10/10~
~Nissen 12/14/09~
~Colostomy 07/30/06~

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/15/2012 10:10 AM (GMT -6)   
You got no one who could stay overnight and get the kids off to school? We have no relatives nearby, so I can relate somewhat. I ended up with two GAs for similar reasons - and I had to go by taxi each time cos couldn't drive home of course!

Why does it have to be the first appointment of the day?

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 639
   Posted 5/15/2012 10:17 AM (GMT -6)   
No, everyone I know works in the morning. They let you go by taxi? I asked about that because there's a hotel down the road from the hospital and they said no taxis.

He said first thing in morning for easier scheduling between anesthesia, the manometry dept, and my gi.
Michelle

~Diagnosed with POTS 10/11~
~Nissen redo #3 coming soon~
~Nissen redo again 12/13/10~
~Nissen redo 05/10/10~
~Nissen 12/14/09~
~Colostomy 07/30/06~

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/15/2012 10:39 AM (GMT -6)   
I think I went by taxi and got picked up by OH and the kids!! You have to have someone around to watch you, or be able to stay in hospital longer til the drugs have worn off.

Is it worth a try pushing back a bit and saying the earliest time you can get there is .... and see what they say. How would you get back in any case - and you'd still need childcare for the rest of that day?! Wish I had some better ideas for you!

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma
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