Nissen Surgery Nightmare

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Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 5/26/2012 4:02 AM (GMT -6)   
 Hi,had nissen 360 three months ago and have been having lots of problems Palpitations, Belching,Nausea,reflux and generally not well at all.I ended up in casualty twice with no help whatsoever. Seen surgeon at his clinic on tuesday and i actually nearly passed out there,was rushed into hospital and after i dont know how many tests they found all liquids were just sitting in my esophagus,one test the liquid they gave was sitting there for over 15 minutes,thought i was going to die.It turns out the hiatal part of the repair was too tight around my esophagus allowing nothing but a drip through.So everything ive been going through with this surgery was not even related to my wrap.Ive now had another surgery and to start the whole process again. Wish i could turn back time! shakehead   Barry

hitThePost
Regular Member


Date Joined Dec 2011
Total Posts : 133
   Posted 5/26/2012 6:56 AM (GMT -6)   
Barry, sorry to hear this. Be patient. Obviously the too tight wrap explains a lot (irritated vagal nerve - palps, food not getting thru - nausea etc.).

I bet most of those disappear once they re-wrap it. Good news is that scar tissue should not have formed yet so a re-wrap is like an initial surgery outside of the double recoveries....

Best of luck.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 5/26/2012 7:09 AM (GMT -6)   
Hi Barry,
shakehead  So sorry to hear that you're having to go through all this. On the positive side, you now know what the problem has been and are moving on.  That's a very good thing.  You know we'll all be here providing support as you go through the process.
 
That error is exactly the reason that we're always emphasizing the importance of selecting a surgeon that is eminently qualified and highly experienced in doing Nissens.  It's definitely a learning curve, and while I know that they have to learn somewhere, I don't want to be the one who's the practice subject.
 
Nissens are a real art form, and they're not as cut-and-dried as some surgeries are.  Of course another piece of the puzzle is extensive testing prior to the surgery.  Sadly, some go through the surgery only to find that their problem is unrelated to their reflux, or that motility issues make their wrap unadvisable.
 
Whatever...it's all behind you now.  Be sure that whoever does your work now has done many, many, many procedures.  Yes, you're back to the beginning of the process, but you can look forward to a positive result and a more normal recovery.
 
Bill, one of the moderators here, had a first wrap that was done incorrectly.  He's been busy with his daughter's softball schedule so he hasn't been around much, but if you start a thread requesting his input, I'm sure he'd notice it and share his experiences.  Here's his explanation of what his experience was like:
 
Be happy that you've found out what's going on and can get it fixed.  I'm sorry that you had to go through all this, but if you can get things revised and begin a normal recovery process it's all for the good.
 
Hang in there, my friend.
We're here for you.
Denise
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 5/26/2012 7:46 AM (GMT -6)   
Hi,thankyou very much for the support! The surgeon that done my surgery is apparantly the top surgeon here in Northern Ireland for Nissen Surgery and he has done Hundreds maybe thats not enough i dont know.I dont understand why he went near my hiatal area when i didnt have a hernia? He has not explained to me what he has done,nurses and junior Doctors had to do the dirty work and in my opinion dont know what their talking about half the time.The problem here is the NHS system,its a real let down,the system seems to be more worried about costs than care for its patients.Im looking into complaining about the treatment and care i have had here. Sorry about the ranting! Barry

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 5/26/2012 8:30 AM (GMT -6)   
Hi,hitthepost,sorry i never read your post properly,at this point i know nothing about my wrap,how its functioning as food and liquid wasnt getting through properly.Everything was stuck at the diaphragm which is above the ge juntion where they do the wrap.As far as i know the original wrap is still there,not exactly sure until i speak to the surgeon if i ever can,its always a registrar or someone lower in the heirarchy here.I had 2 hour surgery late on Thursday and sent home the next morning absolutely wrecked.Ive lost 2 stone in weight from first surgery in March and have no energy from the lack of nourishment.The dietician signed me off two weeks after surgery ,told me i was doing great? Thanks barry

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 6/12/2012 11:45 AM (GMT -6)   
Hi, its been a couple of weeks from my second surgery and ive been in hospital again feeling really ill,my surgeon was on holiday during this stay and the registrars think im refluxing which is why if been so ill.So food and liquids were struggling to get through the diaphragm and when they got through ive been refluxing aswell.Total disaster! Ive been put on ppi,s again the last week and i think im starting to feel a bit better which proves the point.Registrar said i had a 360 wrap around a 54 french bougie which he called a floppy nissen which is the way they do all nissens now.Am i just really unlucky or is this a common problem.Dont know where to go from here. Barry

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 6/12/2012 12:21 PM (GMT -6)   
Hi Barry,
I know it's hard not to jump to conclusions and assume that both your Nissens have failed since you have evidence of reflux.
 
Not so fast.  Having 2 surgeries in this short a span of time will make your recovery much more difficult and longer.  It's not a bit uncommon to get some reflux during the early weeks/months of recovery.  This does not mean that in the long run the surgery won't work.  Taking PPIs during recovery can make a big difference in your comfort as you heal and recover.
 
Your GI tract has been doubly assaulted, so it is not happy.  It takes a good long time to heal under normal circumstances.  In your situation, be prepared for an even longer and more difficult recovery.
 
Please, please, please, don't fall into the trap of assuming that how you feel now will be how you feel after your recovery is complete.
 
Surrender to you recovery, and start thinking positively.  Visualize a positive outcome, and turn your thoughts around immediately when they start going into dark places.
 
Rest, recover, listen to your stomach and be gentle with it. A lot of reflux pain during early days and weeks of recovery is actually surgical pain that is interpreted by the brain as reflux.
 
We're with you!  Hang in there!
We'll support you either way...if you're scared and worried, we're here for you.  If you're trying to keep your mind in the positive, we're here for you, too.
Very best wishes,
Denise
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
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