approaching full recovery

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WJF
Regular Member


Date Joined Sep 2011
Total Posts : 273
   Posted 6/3/2012 3:17 AM (GMT -6)   
Last month it was bad: Back to PPI.
I started to recover slowly.

Medication regimen:
Week1 - Taking 40mg pantoprazole before breakfast, 150mg Zantac at bedtime. Stopped Zantac after 3 days after nocturnal symptoms cleared up.
Week2 - Taper down 40mg pantoprazole to 10mg rabeprazole after healing is achieved.
Week3 - Stopped PPI and started to manage the acid rebound. Started to take traditional Chinese herbs.
Week4 - Still managing acid rebound. Still taking TCM herbs.
Week5 - Acid rebound has stopped. Still taking TCM herbs.
I also used antacid/zantac/metochropramide 5mg (reglan) to manage acute heartburn that doesn't stop.

Natural path:
1. Meditation daily to control stress / anxiety
2. I ate less in the first four weeks. I practiced meal splitting. Low-fat diet. No gassy, acidic, spicy, hot, alcoholic, raw, cold, stimulative, gas-producing, hard-to-digest stuff. No supper.
3. sleep on a slanted wedge.
4. I took ACV only after esophagus has healed. It helped to improve digestion, gastric emptying and reduce acid rebound! It works for me! 1 tsp + honey + half glass of water AFTER meals.
5. I use Slippery Elm / Manuka Honey as my soothing herb. They ease irritation, but they generally don't stop heartburn.
6. Acupunture / Acupressure, Reduce tLESr, reduce bloating, pass gases, reduce heartburn, very significant effect on me.
7. Took probiotics only in the first two weeks when I had lower abdomen bloating. I stopped after it cleared up.
8. Eat an antioxidant-rich fruit - blueberries, grapes, strawberries to prevent Barrett.

tongue
Now I am researching on how to stop it from recurring. I have had enough of GERD.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 6/3/2012 3:23 AM (GMT -6)   
Looks like you've done a lot of work and it's paying off - well done!

I have to stop my ppi due to side effects - GP has given me half dose supply with Zantac so I can taper down slowly. I was quite bad whilst away from home last week so haven't tried to reduce further. Have done half dose for 1 month with a lot of Zantac on top. Not sure how to do the next step - might try taking it every 36 hours then move to every other day. How bad was your rebound - am worried about not being able to go to work or get the kids to school, as I can be so bad first thing in the morning!

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

WJF
Regular Member


Date Joined Sep 2011
Total Posts : 273
   Posted 6/3/2012 3:49 AM (GMT -6)   
I had high level of acid production before meals. Whenever I felt it coming, I had to start eating something immediately to calm my stomach down. There was once I was slow, then it developed into heartburn. Usually I experienced relief after meals.

You mentioned Zantac. I discovered Zantac can cause acid build up. When I took Zantac at bedtime, I had a good sleep, but the next morning I waked up to high acid level which wasn't so bad if I hadn't taken Zantac. I believe it is because while Zantac is working, our body tries to compensate for the low-acid, so it tries to produce more acid and Zantac blocks it, then when the effect of Zantac wears off, we have a hypersecretion.

The other time I felt high acid level was 3~4 hours after meals, due to indigestion. since I could not eat a meal again, I took some soothing herb and did some acupressure massage, I took antacid when it failed.

I know how hard it is to taper off a PPI. Take good care. I hope you can find out some way to do it.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 6/3/2012 9:40 AM (GMT -6)   
Thanks. I think the ppis are worse for causing increased secretion when they wear off. I'm taking Zantac twice a day so there shouldn't be a time when it has worn off at the moment! I've had so little benefit from the drugs that there has never been a time when I've been symptom free, but fear of being worse keeps me locked into taking them.

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

VivianL
Regular Member


Date Joined Apr 2011
Total Posts : 111
   Posted 6/3/2012 3:03 PM (GMT -6)   
This sounds so encouraging. I started PPI again for almost a month now, my second time around. The first time I was on them for about 6 months and because they were killing my hair I decided to stop. As my throat getting better I am so tempted to stop them again. I just have a question about the Chinese herb that you were taking. Were they in powder form or did you have to cook them?
Thanks.

WJF
Regular Member


Date Joined Sep 2011
Total Posts : 273
   Posted 6/3/2012 7:14 PM (GMT -6)   
I once asked a doc "what else could you give me apart from PPI?". He shook his head. There is so little drug that targets GERD, so docs only prescribe PPI. We had Propulsid, but it was taken off the shelf in many countries. Maybe you could try Koufman's diet? Go off the Zantac only when you feel there is an improvement on your symptoms.

Hi Vivian, they are in powder form. The instruction is to mix them with warm water and drink the whole thing. I don't know what's their primary mechanism of action. It seems they have stabilized my mood and improved my sleep instead of directly acted on the GI trait. I noticed they did suppress acid like Zantac, but not as strong.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 6/4/2012 3:35 AM (GMT -6)   
Hi again,
I'm currently trying acupuncture, just started. I am already wheat and dairy free so don't feel I can cope with further dietary restriction - just too difficult with small children to cater for.

Did you do your step wise reductions regardless of whether you were feeling rebound or did you wait for a plateau each time? Very hard to tell what is rebound and what is just getting worse!

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

WJF
Regular Member


Date Joined Sep 2011
Total Posts : 273
   Posted 6/4/2012 6:25 AM (GMT -6)   
You remind me just how great mums are.... hope you get well.

I waited for a "plateau". I gave my body enough time to adjust itself, to adapt to the new dosage pattern, before making a judgement on whether things were better than when I started. If things got worse, I would up the dose. Luckily it never did.

:)
I classify heartburn into 3 categories. Irritation / Itch / Pain. First two are fine. Dull pain that comes and goes after a short while, is also fine. When you are doing the dosage reduction, you should not be feeling a constant bad pain that lasts, say, longer than 5 minutes. That would mean your mucosa has not healed or the acid is constantly refluxing in. And you would be better off taking the pills.

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 6/4/2012 1:59 PM (GMT -6)   
Thank you - useful guidelines!

I read a webpage written by someone who was wrongly prescribed ppis (never had GERD) and he described how he reduced the dose by 5 mg, taking the new dose on alternate days and then daily. I've got capsules however, so I can't taper it as finely as that (he was cutting tablets up!).

Will let you know how it goes........

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma
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