Sorry that you're having so many problems. I know it's hard to deal with, and very frustrating when you can't get any help from the medical profession. Sometimes symptoms aren't clear-cut and can point to a wide variety of causes. That's when it's really hard to nail down a diagnosis or course of action.
Do you have a really good primary care doc? That can be a big plus, if you can find the right one. He/she can be the "orchestra leader" who supports you through this process as well as offering some help in uncovering what's going on.
That said, it sounds as if you've been around the block and probably already have a good doc sending you to all these specialists. I'm assuming you're not in the US? Another member who hasn't posted here in a while had very good luck at the Jewish National Hospital in Denver, Colorado. http://www.nationaljewish.org/
They specialize in lung problems and are tops in that area.
If a pulmonologist has already diagnosed you with acid and food damage to the lungs, why haven't you been referred for Nissen fundoplication surgery? It is extremely important to protect the lungs, as persistent assult by acid can cause irreversible damage. It seems to me that it's time to pursue that avenue of possibilities.
I had severe lung problems because I've got asthma and my lungs are very reactive as a result. I never had the amount of reflux you must be experiencing, but the nearly normal amounts I lived with were enough to make my lung condition "life threatening" and land me in the hospital at one point.
After about 5 years of severe lung issues my GI doc finally (after constant prodding by my primary care doc) sent me to a surgeon without much confidence that the surgery would help my problems. After some healing time, (about 2 and a half months post op) my lungs healed and have been better ever since. What a difference it has made in my life! I have allergies, so I still get some lung problems and coughing, but it's NOTHING compared to what I experienced for YEARS before my surgery. My lungs are 100% better.
Hang in there and be persistent. If you can find a good PCP who has your back and understands that continuing as you are is not an option, it can help. I don't know what would have happened if I didn't have a confident and knowledgeable PCP who wouldn't take no for an answer.
Glad you've joined the forum. There is a lot of support and information here. MMM has given you a lot of great information, and was the one who pointed me in the direction of your thread. Thanks MMM, for everything you do!
Very best wishes,
PS...I also found cold water provided great heartburn relief. It always seems to put out the fire for me. Some here have said it makes things worse for them, though. Go figure. Everyone seems to react differently to everything!
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”
“Worry pretends to be necessary but serves no useful purpose”
“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Post Edited (dencha) : 6/15/2012 7:14:19 AM (GMT-6)