First Round of Tests Back

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ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 7/2/2012 5:49 PM (GMT -6)   
Hi All,
 
I just received word that my stomach emptying test came back normal, my chest x ray came back normal and my ultra sound came back normal. I am relieved but not...was hoping for some answers but it looks like I am going for another round of tests. I gave blood today to test for Celiac, Vitamin D Deficiency and C-Reactive Protein. My Dr. wants to do the PH study as well as the Mamotry test which I am NOT excited about. I am having trouble keeping weight on due to the diet restrictions for GERD. I look ok but I am concerned still. I do not want to be underweight. I am trying to keep it together during this phase of testing because I have 2 jobs,  a husband, a house, 2 kittens, friends and family...life still has to go on. Just and update.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/2/2012 6:05 PM (GMT -6)   
Hi ericapeace,
Glad to hear that your tests provided good news.  I know it's hard when you're trying to get answers.  Don't worry about the manometry and PH monitor.  It's mind over matter...you can do it!
Here's hoping you get to the bottom of what's causing your problems.
Best wishes,
Denise
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 7/2/2012 9:22 PM (GMT -6)   
Hey Erica, I feel you. All of my tests were perfectly normal, which in a way is even more frustrating. My ph monitoring showed reflux during the night but that's it.

Also, please don't be too worried about pH and manometry. Not to say anything about about anyone else's experiences, but I wasn't bothered too much by either of them. You will get through it! :)

Ashley

ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 7/2/2012 9:34 PM (GMT -6)   
I hear that a lot from people with GERD... Tests are "normal" yet symptoms persist. What a tricky condition. All of this is annoying.
Diagnosed GERD, no other medical conditions (this one is enough)

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/3/2012 12:20 PM (GMT -6)   
Erica,
 
Oh yes, I agree it is very tough to be told every test is normal when you know something is wrong.  Grrrr.  Vent away and know I understand just what you feel like.  If your really upset and feel the need to throw things - try paper plates.  turn smilewinkgrin turn
 
Lots of hugs to you,
 
Kitt

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/3/2012 4:48 PM (GMT -6)   
I know how you feel Erica. I'm now facing my 3rd gastroscopy even though the other 2 didn't reveal much. But I now officially have 'medication failure' so I have to get though the tests, even though they give me nightmares. I have 2 young children, husband, house and one overgrown kitten and a new job. GERD isn't easy to fit round your life!!

The thought of manometry brings me out in a cold sweat but the consultant has already mentioned it :-(

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

horizon
New Member


Date Joined Nov 2011
Total Posts : 19
   Posted 7/3/2012 7:19 PM (GMT -6)   
 Erica, my biopsies from the EGD were OK also. Other than the inflammation he saw during the procedure, that leaves me a little in the dark too. My esophagus is irritated and I have a lump in my throat-but there isn't anything obvious to fix.  I have my f/u next Monday, but I am not sure what he will say other than take your PPI or antacid.  Arggh..
 
  In my case, I am thinking perimenopause might be a culprit-but I haven't had any doctor agree with me on that.  I just want it to be something that will pass with time and not mess me up in the meantime and not have me paying deductibles and coinsurance for the foreseeable future (yet grateful to have insurance).  I have  disabled child and a busy life and I would love to bid good-bye to throat mucus,chest tightness and burping!!! 
 
  I hope they can find the cause for you-but I feel your pain!

guddan
Regular Member


Date Joined Jun 2012
Total Posts : 32
   Posted 7/4/2012 6:04 AM (GMT -6)   
Horizon, I have experimented a lot with my GERD.
What I see for myself is if I use, Manuka Honey, GoldenSeal, Slippery Elm or DGL, I get lot of mucus. Since most of these are in cheawable form and not capsules, I get mucus in throat too. I don't know if its good or bad sign. Healthy mucus glands and yellow mucus is a sign that WBCs are working overtime. I do believe healthy mucus glands means more fightig abilitles.
When I did get fedup with so much mucus, I limit there usage. Drinking ACV (very small diluted amount) helps with mucus. Ensure not lying down for 2-3 hrs after ACV as it has acidic properties (even though I dilute it a lot with Apple juice or Water)

As for burping, I found good help with correcting my back posture (straighten up). Its not completlely gone but it helped.

Still experimenting while on PPI (20mg in morning)....

ericapeace2000
Forum Moderator


Date Joined Mar 2012
Total Posts : 1110
   Posted 7/4/2012 1:54 PM (GMT -6)   
Thank u all for your support and I hope we all figure out how to make life easier. I've come a long way since the start of a major flare up 4 months ago. Maybe I'll know more after the ph study and mamotry. This condition is tricky.

drtinsac
Regular Member


Date Joined Apr 2012
Total Posts : 458
   Posted 7/4/2012 8:01 PM (GMT -6)   
One bit of advice on the 24 hr PH study. Try to go about your day as normal as possible, e.g. if you normally sit in an office chair 8 hours a day, sit in an office chair at home. Do your normal routine.

This is because reflux can be dependent on body position. Some people have only upright reflux and if reclining or supine, do not have any reflux. In my case I had a "normal" # of reflux episodes, but I spent most of the day in my ez chair watching TV. Much different from the position I am at work, or when I use the computer at home.

I'm going to ask an ENT doc if I can have another 24 hr test, this time on PPIs, where I will try my hardest to mimic my normal workday here at home.
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