Doing much better

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aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 7/19/2012 3:58 PM (GMT -6)   
Hi all,
 
I don't know where to start or what I'm really even purporting, but I wanted to share the story since I've been through a year of absolute hell and finally seem to be on the other side. I would like to add that I would not advise anyone to stop taking medication without consulting their doctor first. I've posted so much here on HealingWell that everyone knows my story and background so I'll skip all that unless someone has questions.
 
about two months ago, I had to stop my PPI (Nexium) for pH monitoring. The initial rebound effects were terrible but I made it through somehow. I was eating very healthily, exercising, and was in normal BMI range after being pretty overweight for my entire adult life. This was exactly what I had been doing before but was still having symptoms.
 
Since then, I have been vacationing in California and have not been watching what I eat as carefully as I do back home in Finland. But, somehow, I've been fine. I've even had some trigger foods (like a slice of pizza yesterday) that have given me no adverse symptoms. I rarely feel bloated and I never have heartburn anymore, both of which were my main symptoms.
 
Now, I cannot say for certain if my acid reflux - if that's even what it is - is cured. There are times when I think I feel "stuff" creeping up my esophagus, but I don't know how much of that is me being hypersensitive and how much of it is really happening. There is never any pain when this happens. I also rarely regurgitate anymore.
 
Again, I'm not suggesting that anyone do anything, and I feel really unsure writing this post because I don't really know what I'm saying. But I always liked to hear people's resolution stories, and this very well might be mine. I will still keep my appointment with my GI in August. My theories are either a) I had some type of esophageal damage which caused my initial symptoms, and then the continued Nexium caused some kind of hypochoridic situation which made the symptoms worse, or b) I have no idea.
 
Take care all,
Ashley

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/19/2012 4:13 PM (GMT -6)   
Hi Ashley

Glad you're doing well. Perhaps it's the water in Finland?!

My first run in with GERD resolved when I started taking DGL - it didn't come back for 3 years. I've often wondered whether the DGL was just coincidence (certainly doesn't help much now), whether there was some other factor that resolved, or whether I got better because I came off meds (due to side effects) and just rode out the rebound! I think sometimes there just aren't any answers!

My consultant is suggesting all my symptoms are hernia related - but how can you have a 3 year hernia remission?!

I think you should just enjoy being well and see what happens when you get back to Finland. And if Finland turns out to be the cause you'll just have to emigrate!!

MMM

ericapeace2000
Veteran Member


Date Joined Mar 2012
Total Posts : 1110
   Posted 7/19/2012 4:53 PM (GMT -6)   
Ashley,
Glad to hear you are doing better! This GERD stuff does not make sense to me either. I have no answers but enjoy not being in pain, just make sure you do not over do it and wind up back where you started. I am making slow progress myself. Still in pain but not where I was a few months ago. For me I guess I can attribute it to diet changes. And medication change to Nexium. Or who knows what??
Diagnosed GERD, no other medical conditions (this one is enough)

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 7/19/2012 5:07 PM (GMT -6)   
Hey Mud, I've thought about that... nothing bloats me like water, but non-GERD people tell me they feel the same way... it's so strange. I was having a problem with water for a while, but it went away on its own. Sometimes none of this makes any sense to me! Just like your three year remission... definitely nice, but why didn't it stay gone?!

Hi Erica, I'm with you. I read your posts all the time and I really know how frustrating it is to have no idea what's going on in your body. I'm so glad to hear you're making progress!

ericapeace2000
Veteran Member


Date Joined Mar 2012
Total Posts : 1110
   Posted 7/19/2012 5:14 PM (GMT -6)   
Thanks Ashley. I really hope I get better. I hope one day I wont have to be so restrictive with my diet. I atarted taking vitamin D, magnesium, b12, papaya enzymes and omega 3 fish oil and that has helped also. My friend's birthday is this Saturday and they are going to a Mexican restaurant for drinks and dinner. I am not a huge fan of Mexican anywayu, but I decided not to go because there is nothing I could find to eat there and I have not been drinking at all. And I think I would be very uncomfrotable sitting there while everyone else is eating and drinking. Sigh.
Diagnosed GERD, no other medical conditions (this one is enough)

Carrie48
Veteran Member


Date Joined Mar 2010
Total Posts : 638
   Posted 7/19/2012 5:43 PM (GMT -6)   
Aeshly,

OMG....I LOVE good endings! I am sooo happy for you. I am in the middle of issues right now and I cannot take PPI's because they make me feel like my reflux is a million times worse and they bring on the lump in the throat and the whole bit. I agree with you on your theory! I noticed when I was out of town recently that I had NO symptoms. I think my anxiety is playing into this whole picture big time. Problem is, this is a vicious cycle with symptoms/anxiety/symptoms, etc. I'm sure you get it.

Enjoy yourself in California (that's where I am) and thanks so much for posting your success story. I read it about an hour ago and then got off and kept thinking, if someone else can get better, than so can I!!! :)

Carrie
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 7/19/2012 8:07 PM (GMT -6)   
Hi Ashley,
Glad to hear you're feeling better!  Don't second guess--just savor the moment!  I'm happy to hear that you were able to enjoy your visit to the States. 
Here's hoping that your good GI luck continues FOREVER!
Take care,
Denise

theacidrefluxman
Veteran Member


Date Joined Oct 2009
Total Posts : 739
   Posted 7/19/2012 8:12 PM (GMT -6)   
Hey Aeshley,

My jealously of you is only surpassed by my happiness for you (however slightly, haha).

@ ericapeace - when I go to mexican restaurants they usually have an option that is steamed vegetables in tortilla with shrimp. No spices or anything. But maybe that is just around here (North Carolina).

ericapeace2000
Veteran Member


Date Joined Mar 2012
Total Posts : 1110
   Posted 7/20/2012 10:05 AM (GMT -6)   
Acid reflux man: Thanks for the tid bit. I have no idea if they have it around here, it just is hard at restaurants for me right now especially when there are a bunch of people. I am still getting comfrotable being specific. It is hard not drinking too, especially during a celebration. I am hoping I am able to tolerate a drink or two on my 30th birthday in September. The non acidic drink of rum and water may be the best option, although it still may relax the LES. I plan on taking Gaviscon immediately after the drink, maybe that will help. I do see some improvement with my condition, so I am hopeful.
Diagnosed GERD, no other medical conditions (this one is enough)

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 8/14/2012 3:54 AM (GMT -6)   
Hey everybody, just a small update and something I need to clarify: I am NOT taking any PPI's any longer. I stopped my Nexium 40mg/day for the pH test and haven't taken one since mid-May. I think that was the turning point.

I got the results/letter back from the GI clinic here. They said my manometry was normal and that my pH monitoring showed episodes of reflux, but only at night. They did not correlate with my symptoms at all, so they said that the Nissen is not recommended for me (as it might make my main symptom - bloating - a lot worse). They gave me a laundry list of things not to eat (we know them all) and said for me to follow up with my PCP in the future if I have any more problems.

Now that I'm doing pretty much fine (slight discomfort here, but I can't quite remember if it's normal or not?) I'm okay with the doctor's findings, but it would have sent me into a tailspin had I gotten it before I left. I am so thankful that my only problem seems to have been that the pills were hurting me. I really hope there is a quick fix for the rest of you too.

The other thing is that I have no idea where the "don't cross" line is. I am fine eating spaghetti, but I got a bit of burning when I had a beer last weekend (but was ultimately fine). It's confusing.

I hope everyone is doing well!
Ash

fireworks
Regular Member


Date Joined Apr 2012
Total Posts : 178
   Posted 8/14/2012 6:21 AM (GMT -6)   
Wow Ashley! Happy for you! I wonder when will be on turn to be fully recovered...

ericapeace2000
Veteran Member


Date Joined Mar 2012
Total Posts : 1110
   Posted 8/14/2012 7:50 AM (GMT -6)   
So glad you are doing better! I also have been doing better but I am still on my nexium. Hopefully I will be able to get off of it. I don't want to try until I am symptom free for an extended period of time. Congrats to you. It seems like you are on the road to recovery!
Diagnosed GERD, no other medical conditions (this one is enough)
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