Metoclopramide/Reglan

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judy02
Regular Member


Date Joined Jun 2010
Total Posts : 126
   Posted 7/23/2012 9:34 AM (GMT -6)   
Hello,
 
I was just wondering if anyone has ever been prescribed and taken this drug?
 
 
I just wondered if I could get anyones thoughts on this. I've been reading up on it online, and quite frankly, some of the side effects are just plain scaring me...stuff about involuntary muscle movements and spasms, formal term "Tardive dyskinsia" or something... I know there are serious, rare side effects with any drug, but it didn't even describe this side effect as unusual...

I just wondered, what did you think of it? Would you consider it a safe druf, or would you suggest trying something else?

My doctor just prescribed me for me today, and I didn't realise it was Reglan (as that's not a brand name we use over here). I was under a great deal of stress over the weekend, after something upsetting happened, and I tend to get symptoms of nausea, and sometimes headache, when under a lot of stress. An yway, I find it hard to cope with dealing with constant nausea all the time, as sometimes it can last for a few days and it can become really debilitating you know? So I was hoping a doctor could prescribe me something just to mask the symptoms until I get over the stress so to speak...I've had domperidone, and whilst it might prevent me from vomiting, it's not doing anything for the nausea...

But I'm not altogether convinced that the side effects of Reglan are worth it...VIEW IMAGE Honestly, if anything, the thought of taking the pills is making me more anxious, which will probably just make me feel worse.

Just wondering if I could get any experienced views on the issue. I know ymost of us are not doctors, but every experience helps.

I'm wondering about whether to call my doctor and ask if they have any safer alternatives, what do you think? I didn't actually think doctors prescribed it that often over here...
 
Thanks for any help! :/
 

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 7/23/2012 9:39 AM (GMT -6)   
Nausea is my main GERD symptom - I use metaclopramide occasionally and the only side effect I get is feeling drowsy. Sniffing an aromatherapy oil containing peppermint helps my nausea, as does chewing DGL or just sucking mints. If reflux isn't an issue, you could try peppermint tea. I do sympathise - I can put up with a lot of pain but feeling sick drives me nuts!

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/23/2012 9:43 AM (GMT -6)   
Hi Judy,
Sorry to hear you're having stress and stomach symptoms.  My primary care doc had me on Reglan for many years.  I'm sorry, but I can't remember the dosage, but I can tell you that I took it for several years.  I finally quit, because I really couldn't see that it was doing anything for me.
 
I agree that the side effects listed are scary.  You know your body, and it's a choice you need to make for yourself.  I can just tell you that I didn't get any of the side effects at all.
 
I would think that you could take it, but be on the lookout for any evidence of neurologoical symptoms. 
Good luck!
Denise

judy02
Regular Member


Date Joined Jun 2010
Total Posts : 126
   Posted 7/23/2012 10:40 AM (GMT -6)   
Thanks...and just to confirm, I don't actually technically suffer from "GERD" although I thought that's what this was when I first joined the forum. But I've found the people here so kind and helpful with general stomach issues compared to other places, so have wanted to stick around (hope that's alright!)

To be honest, I just feel so frustrated :'-( I feel rotten, and so sick, and from what I've read, there are dozens of drugs on the market to treat nausea and vomiting, so why did they have to give me this one??! The risk of permanent body twitching...no thank you very much

I can't speak to a doctor until Wednesday now, so it's 2 more days of feeling crummy! *sigh* By the time I speak to a doctor again, I might be feeling better...but I suppose it's for next time!

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/23/2012 10:55 AM (GMT -6)   
Judy,
I'm certain your doctor wouldn't prescribe Regan for you if he/she thought it would be harmful or dangerous.
 
Why not take it for the few days before you see your doc again, so you can get symptom relief, then request a change in prescription?
 
Just a thought.
Denise
PS...we're happy you've joined us!  Many here have reactive stomach and other issues...not just GERD.  Good luck!
 

Carrie48
Veteran Member


Date Joined Mar 2010
Total Posts : 638
   Posted 7/23/2012 1:37 PM (GMT -6)   
judy

My persoal opinion is that i would not touch it. My gi doc (and i have heard that others) will not even Prescribe it because of the risk of tardive dyskinesia. Before i switched to my current gi doc and when i was having gallbladder issues my old gi doc prescribed it to me. 4 pills 4 times a day! I knew nothing about tardive dyskinesa but he said it was safe to take longterm. Anyhow after a couple of months i realized that i was making a funny movement with my face and did not even realize it. Then i went to another gi doc and she noticed a quiver in my tongue. I got off the drug immeditely and i would never touch it again.

Im telling you it is a really scary drug with a black box warning. It worked great for me but the benefits were not worth the risk. Also since all our bodies are different, what may seem safe for one person nay not be safe for the next. I have read many stories of people that only took it for forca very short time and developed movement disorders.

So, my two cents..... Go with your gut instincts on this. A temporary cure for your nausea would never be worth a lifetime movement and possibly disfguring disorder.

I do not mean to scare you but on thus subject,i have done a lot of research. If you do decide to take it, watch yourself very closely and have your family watch you because many times you will nit even realize that you may be developing an issue because it causes involuntary muscle movements.
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/23/2012 2:24 PM (GMT -6)   
Stay away from reglan!
I started having the side effects just three months after taking it.
I couldn't hold things and if I extended my arm holding out something I'd shake something terrible. I still shake in my hands first thing in the mornings and when I'm tired. Also I grind my front teeth and chew my lips a lot.
Joy

judy02
Regular Member


Date Joined Jun 2010
Total Posts : 126
   Posted 7/23/2012 2:24 PM (GMT -6)   
Thanks Denise, you're probably right. I'll probably just take it for a couple of days before trying something new. Thanks for everyones replies.

Maybe it's riskier than some meds, but I wouldn't think just 2 days would cause serious, permanent damage...

judy02
Regular Member


Date Joined Jun 2010
Total Posts : 126
   Posted 7/23/2012 3:00 PM (GMT -6)   
Carrie48 said...
judy

My persoal opinion is that i would not touch it. My gi doc (and i have heard that others) will not even Prescribe it because of the risk of tardive dyskinesia. Before i switched to my current gi doc and when i was having gallbladder issues my old gi doc prescribed it to me. 4 pills 4 times a day! I knew nothing about tardive dyskinesa but he said it was safe to take longterm. Anyhow after a couple of months i realized that i was making a funny movement with my face and did not even realize it. Then i went to another gi doc and she noticed a quiver in my tongue. I got off the drug immeditely and i would never touch it again.

Im telling you it is a really scary drug with a black box warning. It worked great for me but the benefits were not worth the risk. Also since all our bodies are different, what may seem safe for one person nay not be safe for the next. I have read many stories of people that only took it for forca very short time and developed movement disorders.

So, my two cents..... Go with your gut instincts on this. A temporary cure for your nausea would never be worth a lifetime movement and possibly disfguring disorder.

I do not mean to scare you but on thus subject,i have done a lot of research. If you do decide to take it, watch yourself very closely and have your family watch you because many times you will nit even realize that you may be developing an issue because it causes involuntary muscle movements.
Carrie, if you don't mind my asking, do you still have these twitching symptoms now that you're off the drug?

Carrie48
Veteran Member


Date Joined Mar 2010
Total Posts : 638
   Posted 7/23/2012 4:34 PM (GMT -6)   
Judy - i have lots of twitching and stuff but that is from my lyme disease.

What i noticed from the reglan was this: i would be sitting on the couch and i would realize that i had moved my lower jaw to the side. It was weird (and not attractive!). Anyhow, i would keep noticing that it was happening and i would think "why do i keep doing this" but did not EVEN relate it to the Reglan. Then a doctor pointed out that my tongue was quivering and told mt to get off the Reglan otherwise i might start developing Parkinsons type movements. I stopped taking it that day.

The facial thing did stop once i stopped the Reglan and my tongue seems better too. However, tardive dyskinsea isnt always reversible. I would. I would not chance it. I am so thankful i saw that one doctor who happened to notice my tongue. I shiver to think that those facial movements i was making could have been permanent!
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/23/2012 6:34 PM (GMT -6)   
Judy,
I totally understand the concerns that you and others here have had.  However, Reglan has been on the market and prescribed for many, many years.  Can there be neurological consequences?  Probably, but as you know these side effects listed, while they can occur, are unlikely.  Most likely they occur in patients who already have neurological issues, and therefore are more susceptible.
 
My son, when he was young, had nervous tics.  When he was in HS and getting ready for college, and he was embarassed by them.  A neurologist prescribed Haldol, a heavy-duty drug similar risks of long-term irreversible side effects as Reglan.  It was prescribed in a small dose for a short period of time to stop the nervous tics before he went off to college.  It worked, and we were glad that we were able to send him off to college tic-free.
 
I bring this up because there are risks to everything.  Carrie's GI doc probably doesn't prescribe it because he/she doesn't want to deal with the black box warning and take any chance that someone could get a side effect.  I continue to stand by the fact that your doc must consider the risk small in your case.
 
As I said, I took it for several years with no short or long-term side effects.
I also know that there have been others here who have taken Reglan and have found it hepful.
 
My allergist would always quote St. Thomas Aquinas when we discussed risks of certain drugs or procedures.  He said, "If the highest aim of a captain were to preserve his ship, he would keep it in port forever."  There are always risks and benefits.
 
I don't take Reglan now, nor would I, as I don't have any symptoms it could help.  Would I take it again?  Yes, but I would be on the lookout for symptoms.  The drug would not still be on the market if the consequences were as dire and as common as the discussion here seems to imply.
 
Good luck with your symptoms and decisions!
Best wishes,
Denise
 
 

judy02
Regular Member


Date Joined Jun 2010
Total Posts : 126
   Posted 7/24/2012 10:02 AM (GMT -6)   
Thanks for all the feedback...

well I took one today and I feel fine. Well, the tablets haven't made me feel any better than I was but I'm not feeling worse either.

I'm sure as a one off for a day it shouldn't be too much of a problem. Most people who mention side effects have been taking them regularly for at least a month or two it seems. I wasn't even planning on having these on a regular basis in the first place.

Anyway...I've made my decision. I appreciate everyone's replies and feedback, but I'd prefer it if people didn't keep saying how wrong I am for taking them today. I've made my decision, and would like it if people could respect that now :) Thanks

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 7/24/2012 3:21 PM (GMT -6)   
Hi Judy,
Sounds like a plan.  I hope they help your stomach and you feel better soon. 
Best wishes!
Denise
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
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