Hypochlorhydria post Nissen?? Too little acid now??

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btrflygrl24
Regular Member


Date Joined Mar 2012
Total Posts : 28
   Posted 7/25/2012 7:51 PM (GMT -6)   
Hi everyone,
I'm 2 years post Nissen and started having GERD-like symptoms again about 3 months ago. I had a repeat Bravo test that to my surprise showed no GERD at all but instead showed hypochlorhydria (too little stomach acid). Never in a million years did I expect that diagnosis given my history. My first Bravo test pre Nissen had a DeMeester score of about 50 while this most recent one had a score of 1.2. Normal scores are less than 14.7. Apparently there is such a thing as there being a too low DeMeester score! My wrap is still intact (after them thinking at first that it might have loosened or slipped based on my symptoms).

Has anyone else experienced this post Nissen?? I'm boggled how this could have happened. ANY help is greatly appreciated!! Thanks!!

Carrie48
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Date Joined Mar 2010
Total Posts : 638
   Posted 7/26/2012 1:30 PM (GMT -6)   
Very interesting! I often wonder if i have too little stomach acid instead of too much because ppis make me worse! Also, when i have had various blood tests done the things i am low on are usually things hat indicate low acid.

Could your resOlution becas simple as going to the health food stotr and getting some HCL?

Carrie48
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Date Joined Mar 2010
Total Posts : 638
   Posted 7/26/2012 1:32 PM (GMT -6)   
Sorry about typos. Using my iphone to post.
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.

btrflygrl24
Regular Member


Date Joined Mar 2012
Total Posts : 28
   Posted 7/26/2012 9:44 PM (GMT -6)   
I'm waiting to get additional labs done to see what I'm low in. I've been low in B12 and protein in the past but not sure about minerals and other nutrients yet. I know adrenals can be affected as well so I know that also has to be checked. Hopefully it's something a diet change and/or supplements can fix! PPI's don't seem to help me at all either. It doesn't make me worse it just doesn't seem to do anything. Apparently hypochlorhydria causes your stomach to not able to break down the foods properly which leaves them basically fermenting in your stomach (gross right?) which leads to indigestion and other symptoms such as reflux (even though it's not really reflux). I hear that digestive enzymes can help with that. This is definitely a learning curve for me because I never thought I'd be on the "low" end! Guess we'll have to wait and see!

Carrie48
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Date Joined Mar 2010
Total Posts : 638
   Posted 7/26/2012 11:23 PM (GMT -6)   
Bbtrfly
Can you please describe your symptoms to me. I feel like my issues always start with my tummy because i sometimes get gassy and burpy after eating. I was having issues with bloating too but that seems to be easing a bit. But, when the bloating starts, thenni feel like i start getting something like reflux but without burning if that makes any sense.

I have been taking a Lot of probiotics for a week and am going to keep it up for at least a month and just started digestive enzymes last week too. I am taking VSL 3 which i got from a doctor. I hope it works.

Do my symptoms sound similiar to what you are experiencing?

Thank you!!
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.

btrflygrl24
Regular Member


Date Joined Mar 2012
Total Posts : 28
   Posted 7/27/2012 10:20 AM (GMT -6)   
Yes, your symptoms do sound very similar. I'll occasionally have bad stomach pain (from indigestion apparently), my appetite will be off at times or I'll get full easily, nausea recently, severe bloating (regardless of how much or how little I eat), burping after meals, fatigue (probably from lack of nutrients/protein absorption), lots of stomach gurgling, I did have what felt like really bad heartburn a few times, and other times reflux-like symptoms without the heartburn as you described. What is VSL 3? I'm not familiar with it. I can't get in to see my Dr for another 2 weeks unfortunately so here I sit and wait. :-/

Carrie48
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Date Joined Mar 2010
Total Posts : 638
   Posted 7/27/2012 11:57 AM (GMT -6)   
Dont yOu hate it when you have a test done and then have to wait to see the doc!

Yes, i get a lot of stomach gurgling too. I dont have nausea though and can eat a full meal however when i feel bloated it makes me miserable and then i dont feel like i can eat. The VSL #3 us a medical grade probiotic and has 450 billion per packet. I was on antibiotics for over a year and i think they messed up my digestion so im trying everything to restore it. It seems like once one thing goes off then everything goes off. Also, i am dealing with a lot of constipation now too. Ugh

Well you please post back on the board after your doctOr appt so i know what your treatment will be?
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.

btrflygrl24
Regular Member


Date Joined Mar 2012
Total Posts : 28
   Posted 7/27/2012 5:18 PM (GMT -6)   
Oh ok. Yea I have a feeling probiotics and digestive enzymes will end up being part of my new routine. My appointment is on Aug 17 so I have a good couple weeks to wait unfortunately but yes very anxious to see what he's going to say. I want to start feeling better! I'll definitely keep you posted!

aeshleyrose
Veteran Member


Date Joined Jul 2011
Total Posts : 656
   Posted 7/28/2012 10:49 AM (GMT -6)   
Hi Carrie, just to let you know I had the exact same symptoms. They have ALL subsided (unless I go too long without eating) since I stopped my PPI. I see a GI in August, I will post what he says also.

btrflygrl24
Regular Member


Date Joined Mar 2012
Total Posts : 28
   Posted 8/21/2012 7:48 PM (GMT -6)   
Hi everyone, I figured it's time for an update. Symptoms are about the same still except for the addition of some diarrhea now...yippie. Apparently that's from there not being enough acid to kill off bacteria in my stomach. Great. Also, I found out constipation is a common symptom as well since there's not enough acid to break down the food which I guess stops ya up. Well after about a dozen Dr's appointments it is confirmed that I do in fact have hypochlorhydria after the preliminary tests. Apparently as a result of the Nissen, the way the wrap is done can sometimes create damage to the nerves that help produce HCL (stomach acid). I obviously missed that part of the conversation when I went it for my Nissen 2 years ago! Not that I regret my decision as I am still MUCH better off than I was before the surgery don't get me wrong! And yes! PPI's do make hypochlorhydria worse or can even cause it!! Anywho, the next step is just a couple more tests (gastric emptying study...yet again, and a colonoscopy...oh joy, and bloodwork to check for any deficiencies). Geez it's been a hurry up and wait kind ordeal with my Dr's and tests I tell ya!

My GI Dr says from his experience HCL supplements don't work that great so I'm not sure what the treatment will be at this point. Just gotta go thru the steps of the additional tests first to make sure nothing else is going on and then I can start treatment...whatever that will be.

Just thought I'd pass along the knowledge I gained from my appointment the other day since it sounds like I'm not alone with a million questions :). Never in a million years would I have thought my Nissen could have caused this. At least that's one huge question that's now solved :). Once I get my treatment plan I'll keep you updated!

Carrie48
Veteran Member


Date Joined Mar 2010
Total Posts : 638
   Posted 8/21/2012 10:48 PM (GMT -6)   
Aeshleyrose,

I just saw your post! How are you doing these days? I think you were on vacation and feeling better if I am recalling the right person...you were in California? How are you doing now?

btrflygrl24: I'm sure you've probably thought of this but have you tried any Braggs Apple Cider Vinegar with the mother? Just curious...
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.

btrflygrl24
Regular Member


Date Joined Mar 2012
Total Posts : 28
   Posted 8/27/2012 10:32 PM (GMT -6)   
Carrie48: I've thought about trying apple cider vinegar but I haven't been thrilled about the idea of drinking a vinegar/water concoction lol. Bleh..

I just got the results of my gastric emptying study back today and I definitely have very slow digestion (which was apparent when they had to give me an injection of Reglan towards the end of the test to get the food to digest quicker). I'm starting on digestive enzymes first and then I'll move on to HCL supplements in a few days. Still have bloodwork and colonoscopy to tackle before I get a full picture of the problem. I've heard good things about HCL supplements on other posts so I'm anxious to try them. Sounds like it should really help the insane nonstop bloating and heaviness I have in my stomach and help boost my energy, or at least I hope! I have also heard that being on HCL will help to retrain my stomach to produce the proper amount of acid and in the long run HCL supplements will either be minimal or not even needed. Again, all speculation based off of other people's experiences with it. I just hope they're right! :)

In addition, I also learned that low stomach acid can slow down your metabolism! If you have poor digestion, nutrients aren't being absorbed properly and those nutrients are needed to maintain a healthy metabolism. So even though I might get full quick (due to the residual food left in my stomach from my last meal) and I'm eating less, I've actually gained a few pounds! Ugh... Oh Joy lol. Well, on to the next round of tests and trial and error with the supplements. I'll keep you posted!
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