Symptoms returned while on treatment

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sophie 66
Regular Member

Date Joined Aug 2009
Total Posts : 31
   Posted 8/12/2012 8:29 AM (GMT -6)   
Hello all. I was diagonosed with LPR about 5 years ago by an ENT. He prescribed me every reflux med on the market to no avail. He sent me on my way and apologized for not being able to help me. Over time my symptoms would come and go and I just learned to live with them, miserable as they were. My symptoms include:
* Lump in the throat sensation
*Hoarse voice
* left ear pain
* Sour taste in my mouth
* difficulty swallowing
From time to time the symptoms would go away only to come back a few months later with no pattern or obvious triggers. Last spring I had a terrible case of bronchitis which seemed to really aggravate my symptoms.A new symptom I experienced was a burning tongue and loss of taste. My family dr. referred me to a gastro dr. who did an EGD. All the report said was that there was inflammation at the opening of my stomach and he took biopsies. He prescribed Prilosec twice a day for 3 months but said nothing about diet modifications or any other lifestyle changes. After about a month of therapy I actually noticed my symptoms improving. I could taste again, burning was gone, and hoarseness was gone. I still had a cough but I was so happy that I was getting better that I didn't care!
All of a sudden yesterday all my symptoms came back!! My tongue feels like it is on fire, my throat is raw, and I can barely talk! What would have caused this sudden flare up? And is it normal to have symptoms return while on treatment? I have an appointment with the dr. on the 29th so I will discuss it with him, but am wondering in the meantime if someone can give me some input or advice! I am miserable again!!!
Thanks for your time!!!

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Date Joined Feb 2009
Total Posts : 7188
   Posted 8/15/2012 9:09 AM (GMT -6)   
Hi Sophie,
Sorry to hear you're struggling. Yes, sometimes symptoms can come back even on treatment.  That's why so many of us have decided to go the Nissen route.  At some point it becomes obvious that whatever treatment we're on is no longer working.
Still, you're a long way from even thinking about surgery.  There are many different PPIs out there, and some work much better than others.  I am pretty sure your doctor will try a change to see if something else does the trick for you.
In the meantime, be very careful with what you eat and stay away from any food that might remotely be considered a trigger. You'll want to do whatever you can to help your healing.
My symptoms were atypical as well, and mainly involved lung problems and incessant coughing, wheezing, and bringing up mucous.  People like us are harder to treat, and on top of that GI docs are more hesitant to suggest surgery as an option, since what we're experiencing may have nothing to do with reflux (allergy, etc.)
Hang in there!  It's very likely that another (and perhaps stronger dose) PPI will do the trick!
Sorry you're dealing with this. I know how hard it is.
Best wishes!
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
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