think I'm in trouble

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sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 8/28/2012 7:19 PM (GMT -6)   
this has been one of the worst days of my life.

had my NIssen two weeks ago today and with the help of wonderful folks like Denise and Joy, I have gotten by okay.

Until about 24 hours ago and I just had to take a percoset.

no, not the wrap. not swallowing. not bloating.

all I can think is that I drank coffee and had tomato soup yesterday and took vitamins and ever since, the stomach jpain- literally-- the stomach,-- is killing me.
I hardly slept. I called doc an

d Ive been taking caraftate like every hour. I see him tomorrow at 1:30.
this is some of the worst pain I have ever experienced. I was diagnosed with gastritis after an enioscopy months ago..... have I irriated things-- but this severely?
Oh , I had this tomotoe soup yesterday too----
but wouldn't you think Id be getting better?

I did not want to take a percoset, but I just had too. I can't even sleep.
all I had today were two Ensures and eve they hurt.

I would appreciate some prayers......
and any advice.....
the pit of my tummy just burning and aching-- I can my enitre tummy aching and sore and it hurts to sit up straight.

this s unreal.,
thank you

I also had peppermint tea last night, would that hurt? sad

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 8/28/2012 7:56 PM (GMT -6)   
Hi Meg,
Hang in there.  So sorry you're having so much pain.  It's a good thing you're being seen tomorrow, because what you're experiencing isn't typical.  There's some pain, and that's normal, but what you're describing is definitely atypical.
 
I don't think any one thing could create a problem like the one you're experiencing.  Certainly a group of irritants in succession can create problems, but it sure seems like your gastritis has gotten worse.  Remember that it's also likely that the peak swelling of the wrap can also be adding to difficulties.  Remember that your wrap is made of your stomach, so if your stomach is irritated, so is your wrap.
 
Wish I could offer a solution, but I think you'll have to wait for your doctor to provide direction.
Sorry you're struggling.
We're here to be your sounding board, for what it's worth!
Take care,
Denise
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”

MultiFundo
Regular Member


Date Joined May 2012
Total Posts : 46
   Posted 8/28/2012 9:38 PM (GMT -6)   
Meg -

At two weeks, you just hit the peak of swelling. I had a similar episode at the 12 day mark -- shooting pain from my stomach (10 out of 10) that made me think I had thrown a blood clot or that my stomach had perforated.

Neither happened. You need to stay calm -- breath slowly and try not to move too much. Go all the way back to clear liquids if you feel like consuming anything. (I strongly favor the UCLA diet over the Pittsburgh one specifically because I don't think most people should be eating anything like tomato soup before the two week mark.) Definitely go see your surgeon for piece of mind -- but don't fret yet. Pain like this is not necessarily anything to be too worried about.

Hoping you have a better tomorrow,
David
Diagnosed with GERD 5/99 -
Lap. Nissen 7/00;
Lap. Nissen w/ Mesh Repair (>50% Herniation) 4/10;
Lap. Nissen, Rivet Mesh Repair & Gastropexy 7/12

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 8/29/2012 6:40 AM (GMT -6)   
Meg,
There you go...There aren't many more experienced Nissen "recoverers" than David, so relax.  I think he is right on...peak swelling isn't a fun time.  Let us know how your appointment goes!
Denise

sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 8/29/2012 6:19 PM (GMT -6)   
My Forum Family _
God I hope I get well one day so I can somehow repay you for your support....

anyway--
today is my day 14 or 15.
as I told you, I was beyond in pain last night.

went to my surgeon this am and he was not particularly concerned! It was severe gastritis, let's face it--
Starbuck's was not a good choice and some other things so early on.

You guys--
he told me to 'START EATING".
This is is very well known surgeon for this realm. Dr. Kevin Gillian, in VA.
Anyway-- he says I'm not eating enough and wants me to eat, but chew chew chew.

so my boyfriend and I went to subway and I tired my first bit of food--
that seafood-- fake crab stuff-- chewed chewed, swallowed and literally, thought I would faint.
I thought about you guys-- and kept sipping some juice to get it down, but dear God was it scary. Did it a few more times, and darn it-- it just hurt and got stuck too much-- so I came home and had oatmeal which went down with no problem.

You guys--
here are some very imp questions. My doc was not concerned. He said I have not injured my wrap and that I cannot be refluxing from the work he did -- my biggest fear as I WAS a professional singer until reflux stole my voice, jobs, career..... etc.
i FORgot to tell this to my surgeon, but guys, I still feel stuff pool in my throat! I just drank some juice, bent over and good feel it-- do you know what I mean? But I guess it is not really reflux, right?
Has anyone experienced this? If I lay down too quickly as I have have been on all this percosette and stress--
I can still sometimes feel stuff come up in my throat.

My stomach was fine today. Now I ate a little-- what I am supposed to do- and it hurts a bit again. Why does my stomach hurt one min and not the next?

He seems to think all is well. Did you voices ever get a little horse from this pooling? I have also been taking tons of carafate the last two days.

Did Percosette hurt your tummies at all?

Is chamomile tea okay?

thank you.
My hernia surgery and nissen was aug. 14th.

any advice welcome--

warmly, megan



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dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 8/29/2012 6:59 PM (GMT -6)   
Hi Megan,
Glad to hear your surgeon isn't worried.  That's what I expected, but it's always best to be seen if you have concerns.  Better safe than sorry!
 
I'm three and a half years post-Nissen and when I chug water I can still feel it back up at the wrap site.  The barrier goes both ways.  It's harder for acid to get up, and harder for water/drinks/food to go down.  You don't need to worry, though.  At this point your wrap is very swollen, so it's holding things back even more.
 
Surgeons know how to do the surgery, and they understand the medical piece, but they haven't lived the recovery.  At two weeks/peak swelling you need to listen to your body and it's probably yelling, "Send liquids or very soft/smooth foods!"  Once the swelling subsides, it's time to try other foods.  Remember what I said about taking small bites (once the swelling has gone down) and chew, chew, chew until it's a liquid/smooth creamy consistency?  Make sure you do that.  No untoasted bread or steak. 
 
Review these suggested items:
 
 
If whatever you're eating (small bites) doesn't chew to a liquid consistency, don't swallow.  You'll always have to chew your foods more carefully.  If your wrap is working correctly, it will always offer some resistence to foods.  As you heal over then next months, you'll gradually move toward a more and and more normal diet.  I eat absolutely everything I want, but do chew more carefully and thoroughly.  I also have no trouble with beer, but recently found out I can't drink more han a few sips of champagne or I end up with bloating.  Go figure.
 
Did you get permission to take extra doses of Carafate?  I have always been limited to 4 times a day.  Don't forget to separate the Carafate doses from any other meds or foods you're eating.  An hour before eating, two hours after eating, and I was told two hours before or after medications.
 
I can't overemphasize the fact that most of the difficulty you're experiencing at this very moment in time is related to swelling.  Hang in there...until the swelling goes take it very easy with your eating.  Some stick with liquids until swelling recedes. Listen to your body.  If it hurts to swallow at this point, don't challenge your wrap with solids of any kind.  Back off the solid foods and give it a few days and reintroduce solids after you're feeling better.
 
Food and drinks that are held back by the wrap can ferment and be very irritating.  I certainly wouldn't rule out the fact that they could create some irritation in your vocal chords and lungs.
It will get better...hang in there. You're at the worst point of the recovery right now.
 
Percocet is very hard on the stomach in my experince. (I have a very reactive/sensitive stomach)  I recommend you switch to liquid Tylenol if you can manage it.
Hang in there!
Denise

Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”

Post Edited (dencha) : 8/29/2012 7:02:34 PM (GMT-6)


sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 8/29/2012 8:04 PM (GMT -6)   
one last worry...

so, if like dr. gillian said, you can't reflux, you are not refluxing....

then why do I right now feel burning in my throat and stuff?

I am sooo scared that something crazy went wrong.... but please just tell me to stop....

it is most likely a good sign, that it is difficult to swallow, b/c as Deinise says, it' s hard to go down, so it's hard to reflux.

one reason this freak me out so much guys, is my career and life are on the line as a singer.
this past sunday my voice was back!

then I had these two days of gastritis and whatever... and darn, voice messed up again.

thanks for listening.b

ciao...

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/29/2012 8:42 PM (GMT -6)   
Breathe, breathe, slowly breathe.....

Okay, what has happen is you have irritated your wrap with the tomato soup and the untoasted bread at subway.

Go back to liquids: tea, broth, jello, apple or grape juice, fruit juice pops, muscle milk, boost

Do not eat anything acidic.

Once you feel better slowly start introducing soft foods.
Stay away from bread, steak, and raw veggies until week 12.

Relax, and take a percet and put a heating pad on your chest (or a sock filled with uncooked rice heated 1 min in the microwave).
The heat will help relieve the spasms.
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/29/2012 8:42 PM (GMT -6)   
Breathe, breathe, slowly breathe.....

Okay, what has happen is you have irritated your wrap with the tomato soup and the untoasted bread at subway.

Go back to liquids: tea, broth, jello, apple or grape juice, fruit juice pops, muscle milk, boost

Do not eat anything acidic.

Once you feel better slowly start introducing soft foods.
Stay away from bread, steak, and raw veggies until week 12.

Relax, and take a percet and put a heating pad on your chest (or a sock filled with uncooked rice heated 1 min in the microwave).
The heat will help relieve the spasms.
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))

sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 8/29/2012 8:51 PM (GMT -6)   
I just thought of something....

I am taking a bunch of carafate.

4 - 6 per day right now. temporary.

I have soooo much anxiety-- even just physically, not just the emotional from the surgery.

has anyone experience jitters or nervousness from carafate?

thanks.

going to bed. My cat actually makes a nice heating pad for my tummy.......

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 8/29/2012 9:55 PM (GMT -6)   
Hi Meg,
Breathe.  Relax.  I've taken Carafate up to 5 times a day with no jitters.  I think you're worried and anxious, and that's the source of your nervousness.  Relax.  Surrender into your recovery, and follow its lead.  You can't rush this.  It takes a full six months for the majority of the healing and a year for the rest.  At two weeks out you're at the infancy of recovery.  You can't expect to get through this quickly.  It takes a long time and a lots of patience.
You can do this...
Denise

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/30/2012 1:46 PM (GMT -6)   
Cats also make a good sedative.

Try to relax and ride the roller coaster. There will be lows and highs, some twists and turns, but in the end you will come out laughing and smiling.
Joy
When life throws you lemons....
Pick them up and throw them right back at them! :))

sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 8/30/2012 2:05 PM (GMT -6)   
thank you Joy. thank you everyone.

have gotten down three small meals today. thank you god. all soft.

I am moving this weekend! can you imagine? To Provicdence RI, where I do not know a soul or have a job yet--
if I get my voice back--
I have about five clubs that want me to sing there-- so work for me Nissen, work for me.

do not worry, I am not lifting anything on my move.

god bless--

megan smurf

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 8/30/2012 4:28 PM (GMT -6)   
Hi Megan,
Good luck with your move!  Remember that it didn't take two weeks for your voice to be affected by reflux, and it won't take two weeks for it to heal.  Have you discussed the likely time frame with an ENT doc?  I don't want to be depressing, and I also have allergies/cough irritating my vocal chords, but my singing voice (which I don't get paid for) took 3 years to come back completely.  I'd given up hope that I'd ever not be hoarse. 
 
This past July the hoarseness left and I could again sing a normal range without a problem.  As I said, I think there are other things that added to the problem.  I was a second grade teacher during the time that my vocal chords were affected, stressing them when they should have been resting (I'm now retired), and my allergies/asthma/coughing created more damage.  Still, I've no doubt that my reflux pre-nissen were a problem, too.
 
If you don't have allergies/asthma and aren't continually irritating your healing vocal chords with coughing (which according to my alergy/asthma doc is extremely damaging to my vocal chords), you'll see improvement much more quickly. 
 
Hmmmmmmm...recovering from surgery for two weeks, then making a major move to a new area...I wonder why you're nervous and jittery!  Yikes!
 
Good luck with your move...we're here for you!
Denise
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”

sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 8/30/2012 4:57 PM (GMT -6)   
you are so sweet Denise. Thank you.

sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 8/31/2012 1:19 PM (GMT -6)   
I was so happy an hr and a half ago bc I couldn't wait to tell u giys that I just ate a full meal at a restaurant w no probs and the whole plate of salmon and mashed potatoes and a very very rich cream sauce. No pain.


Guys.... I'm nauseated now! What if I got food poisoning and have to vomit?

We can't puke right? What happens if my body tries?



So nauseous.

Meg

sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 8/31/2012 1:20 PM (GMT -6)   
I was so happy an hr and a half ago bc I couldn't wait to tell u giys that I just ate a full meal at a restaurant w no probs and the whole plate of salmon and mashed potatoes and a very very rich cream sauce. No pain.


Guys.... I'm nauseated now! What if I got food poisoning and have to vomit?

We can't puke right? What happens if my body tries?



So nauseous.

Meg

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 8/31/2012 2:11 PM (GMT -6)   
Hi Megan,
I guarantee you don't have food poisoning.  You ate way too much.  At your stage of recovery, you should be keeping your complete meal to maybe a half cup at a time.  When I was at your stage, I'd order a bowl of soup and take 2/3 of it home for two more complete meals.  You obviously don't have a stomach that tells you when you've had enough, so you're going to have to monitor that yourself.
 
You underwent major surgery on your stomach just 2 weeks ago.  It can't handle full-sized meals.  Eat many very small meals throughout the day.  A dinner like the one you've described is probably enough food for at least 3 days at your point of recovery.
 
Whoa!  Rein in that appetite and remember to take tiny bites of small meals and chew, chew, chew.
 
Anyone who does have food poisoning after a Nissen (and I'm confident you don't) should go to a nearby ER to have their stomach pumped.  Sounds like fun, huh?  Do you have antinausea drugs?  If so, take them now.
 
Just take it easy until things move through, and learn from this experience.
Small bites, small meals, chew, chew, chew.
Hang in there!
It will get better, I promise.
Denise
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”

Chriscas
New Member


Date Joined Aug 2012
Total Posts : 5
   Posted 8/31/2012 2:59 PM (GMT -6)   
Hi Megan,

Isn't this forum family great! I'm seven weeks out from a Nissen for GERD and still experiencing turbulence. This community made me feel like I wasn't the only one. My surgeon was top notch but very laid back about recovery time. He originally said I could eat chicken at 2 weeks and steak at 4! Not a chance! (The one good thing about 6 weeks plus of having difficulty swallowing is that I lost about 20 lbs.) I've had "heartburn" (pain in the wrap area?) just about every day for the past month, but when I saw my surgeon last Friday he said that wasn't unusual, and that some people just take longer to heal. As Denise said in this forum, your stomach's going to be mad at you for a while for all the poking and podding that occurred during your surgery.

I'm getting a couple of more good days though, so I'm just trying to be patient about all this. I was gagging on chicken last week but now I'm discovering I can eat some rolls and such. We all just have to have patience in this stage of our recoveries. My wife says it, my surgeon says it these wonderful folks say it, and my best friend says it, so I'm trying to listen and not eat too much or too fast. I still have "trigger food" problems, as with tea (the caffeine), sloppy joes, chocolate, and peanut butter, so I'm laying off those until I'm a little farther along in my recovery. Don't let your anxieties (or appetite for that matter) get the better of you. Good luck on your move. I'll keep you in my prayers.

God Bless,

Chris

sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 8/31/2012 3:05 PM (GMT -6)   
Thank u

sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 9/1/2012 6:28 AM (GMT -6)   
Hi forum fam,

your support is so crucial and appreciated by me now.

Mover will be here in 40 mins, but I am worried about bigger things.....

great day food and stomachwise yesterday. okay -- a little nausea, but as Denise pointed out, I at3e too much.
but later I had a milkshake

and then some oatmeal before bed and things seemed okay. I was actually optimistic.

I couple of hours ago, I was woken up by burning in my throat and stomach. Not intolerable, but enough. could really feel it in one spot of my throat. even reached for a little pepto bismol, which bums me out, b/c that reminds me of the old days.

I thought maybe I am hungry, and got up and had my oatmeal. my throat made those gurgling/air noises when I swallowed, so clearly I am still swollen I guess, but I still feel some burning. I will even take a carafate I am thinking.

How can this be happening? feel like I drank coffee or took an advil, but did not.

my boyfriend is upset and sad now b/c he sees how upset and sad and scared I am. Who wouldn't be? I should not be feeling this and was fine yesterday

Love you guys, will be checking my emails during move to rhode island -- on the road--- please please let me know what you think. bless you all.

does this mean my surgery was a failure?

had nissen and hernia repair aug.14. felt so great yesterday.

meg

sopranomeg
Regular Member


Date Joined Aug 2012
Total Posts : 56
   Posted 9/1/2012 8:10 AM (GMT -6)   
I just took sip of water and even that stopped at wrap. Could I just be bery swollen? Has anyone had pain in theeir ears from this?

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7181
   Posted 9/1/2012 9:08 AM (GMT -6)   
Meg,
You had major surgery a little over two weeks ago.  Your upper GI tract was dramatically revised.  You are at the time when peak swelling occurs.  You at a complete and large meal yesterday and created pain and irritation.  These things are enough to create a temporary setback.  You're on the road to healing, but you will have ups and downs along the way. 
 
Think of it as a journey.  You'll hit traffic jams, and you'll travel in fits and starts at times...at other times, it's smooth sailing. This is the same for your recovery.  You can't rush this or worry it away.  It is as it is.  Face it.  This is a recovery that takes a lot of time and patience.  It's natural to worry that it hasn't worked.  I don't think many have a Nissen and don't have that fear.  I know I did.  When I had reflux symptoms I was very frightened that I'd gone through the surgery for nothing.  And yet, with time and healing the surgery has done everything I'd hoped.
 
Right now your wrap is very swollen and it's most likely that the irritation that you're experiencing is due to food/drink being held up at the wrap site. When I asked my surgeon about "reflux symptoms" I was having at about your point in recovery he said that where I was in healing "anything was possible"...could it be reflux?  Yes.  The wrap is misshapen and swollen, making it more likely to allow some acid through.  Could it be surgical pain?  Yes.  The esophagus is a "dumb organ" and interprets all pain as reflux. 
 
My money is on food/liquid left in the esophagus to migrate up the esophagus when you're lying down.  I even got reflux of that residual food and liquid into my mouth when air burped out of my stomach.  It flew up the esophagus right into my mouth.  I'm quite certain that if you did a barium swallow right now you'd find that liquid/chewed food is pooling at the wrap site and only gradually entering your stomach.
 
I was so worried about my surgery being a failure that I didn't even want to mention my reflux symptoms for fear I'd find out it was not normal.  I've been helping out on this forum for three and a half years, and believe me, at the two week+ mark what you're experiencing is very normal. 
 
Remember...no lifting!  NONE!  Small meals (VERY)!  Try to stop worrying and just surrender to your recovery.  Listen to it and follow it where it takes you.  You can't rush this, and if you can just accept that it will take time and patience, the whole experience will be easier. 
 
Give your poor stomach a break, back off on what you're eating, eat very small meals all day long.
Stop worrying.  You've had major surgery.  This is a long recovery...remember it takes 6 months for the majority of healing, barring some type of setback like vomiting, etc. in which case it's even longer.  It takes a full year for ALL the healing, and I experienced some even into the second year.
 
Hang in there. Good luck with your move! 
Very best wishes,
Denise
 
 
Words of wisdom by Eckhart Tolle:
"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”

Post Edited (dencha) : 9/1/2012 9:11:17 AM (GMT-6)

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