I am currently weening myself off of ppi's and h2 blockers. I was on 60mg dexlant x2 a day and 150mg zantac. I went down to 60mg dexlant once a day and then after a few weeks cut down zantac to 75mg as well, after that I went down to 30mg dexlant a day (rebound was hell for about a month) and now no zantac at all.
In June (2011) I was told I had short segment barretts and my LES valve was wide open, now the barretts are gone and my LES valve is partially open. I do still struggle with reflux daily, some days more than others. However I wanted to share what I feel has helped me make progress. I agree you will not cure gerd if you can not heal your LES valve (some say this can not be done but I disagree). I have gone thru all the same test as all of you have. Instead of writing a book on myself, it may be easier for people to just ask me questions that they may need. This is what I have done to try and heal the damage.
1.diet changes; all the normal.....eat 90% chicken and turkey for meat (fish if I could choke it down). Sweet potatoes, raw carrots, broccoli, spinach, blackberries, whole grains, . I stay away from soda, coffee, choc, chips, dairy, pizza, beer etc.
2. spirulina (loaded with chlorophyll)
3. sleep inclined on left side
4. manuka honey
5.aloe vera gel (lakewood brand has NO citric acid)
6. carafate (coats and protects from more damage)
7. Tums or gaviscon as needed
9. zantac in the evening (h2 blocker)
10. dgl (when i can't time the carafate)
PS: I know the honey and aloe will not stop the gerd, however they are proven healers so I believe they played a huge part in my progress of starting to heal my LES and reverse the barretts.
I now take vitamin D3 (1000/2000 iu) a day as well and digestive enzymes with every meal.