For those that have successfully gotten off ppi's and had rebound

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iamloco724
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Date Joined Mar 2007
Total Posts : 144
   Posted 9/6/2012 1:02 PM (GMT -6)   
So im looking to try to get of the ppi’s again I tried earlier this year but failed mainly because I gave up cause I was going on vacation and didn’t want the rebound to ruin my trip

So im seeing a new gi now and hes on board with getting me off the medicine thinking since its not fully helping me it might be doing more harm then good

So basically im posting for those that have gone through rebound what kind of schedule did you do

What did you take while weaning off, how long was the process and how long till you felt normal again

And the big question during the bad days and weeks what did you eat

Ive been on some form of ppi for 5 and half years so I know its going to be miserable and im very scared to do it

I have tons of natural stuff that’s always suggested but usually doesn’t help with big attacks

So any advice is greatly appreciated

paulywana
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Date Joined Sep 2012
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   Posted 9/6/2012 5:53 PM (GMT -6)   
What you're talking about is kinda what they call PPI step down. I read about this a while back but just refreshed my memory via google. The American Gastroeterological Association (AGA) recommends that people who are on twice a day PPI first try to reduce to once per day. Once you can manage your symptoms on once per day they recommend switching to an H2 blocker (like Zantac).

I've actually never started a PPI because I'm afraid of getting hooked because of the rebound problem. I have a friend who can't get off of his because he gets terrible rebound. Some times it's hard to tell if the PPI was helping suppress the acid or if going off of it is what's causing the increase.

aeshleyrose
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Date Joined Jul 2011
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   Posted 9/7/2012 3:07 AM (GMT -6)   
Hi there, I went down to using one every other day (40mg Nexium, that is) and the initial rebound was terrible, I must say. However, now I have absolutely no heartburn anymore, ever, no matter what I eat, so to me it was worth it.

I ate completely non-GERD food. Oatmeal for breakfast, fruit for snacks (mostly apples and bananas), sandwiches and soups for lunch, and always broccoli with kidney beans and sunflower seeds for dinner. Definitely boring, but very healthy and helped stave off some of the rebound, I think.

Here is my advice: you WILL get through this. The rebound might not even come for you, as it doesn't for some. I had really only 1 bad day (the terrible day) and even that was just an episode that lasted a few hours. After that, I was careful to eat good foods and not go too long without eating and it was all alright.

I wish you so much good luck, please let me know if you have any more questions.

Ashley

iamloco724
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Date Joined Mar 2007
Total Posts : 144
   Posted 9/7/2012 5:40 PM (GMT -6)   
ive seen alot of people swear by vitamin d/d3 and calcium supplments..anyone have any help from it and what dosages should i look for..i dont want it to cause bathroom issues

iamloco724
Regular Member


Date Joined Mar 2007
Total Posts : 144
   Posted 9/24/2012 5:30 PM (GMT -6)   
so im going to be starting to get off the ppi in the beginning of oct. me and my dr decided that

i bought a juicer and to start juicing fresh vegetables and fruits i figure this might help me through the weaning off process

well i decided to try it out today and i made a 9-10oz drink of 2 carrots and 2 celery stalks

problem was i had slight burning in my throat very slight but after finishing i had pretty decent burning in my stomach

any ideas why that may be?

jmvs
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Date Joined Oct 2012
Total Posts : 3
   Posted 10/10/2012 8:35 PM (GMT -6)   
I am also ready to start getting off my PPI, I have been on them for almost 20 years, this past year I had three broken vetrebrea and have just finally figured it out that it was probably because of being on the PPI so long. My Dr solution was to take MORE PPI so that I could start taking fosamax for my bone. So take more of something to depleat my bone so I can take something to build it.
My question is, after being on the PPI's for so long, when I start the weaning process how long should I continue before i go to the next step. such as how long on 1/2 dose per day, before I go to taking it every other day. etc.
It was also suggested to me to use calcium vit D, a Betaine HCI, and enzyme, also a product called GCL. Has anyone done this regement before? Or heard of all these? are they safe to take togeher? Or what ones do I start with. Looking for any advice I can find.
Thank you.

iamloco724
Regular Member


Date Joined Mar 2007
Total Posts : 144
   Posted 1/17/2013 3:12 PM (GMT -6)   
so its been awhile but i didnt get to wean off during the time i said cause shortly after we were hit hard with hurricane sandy

i am now finally in the process of weaning off from august till jan i was taking 40mg prilosec i am now down to 10mg

ive been reducing it weekly

the issue here is my dr is doing this cause nothing else has helped me i didnt go on ppi to begin with for reflux i went on because of my gastritis and that was in 2007 and was never taken off

since then every year my stomach symptoms have gotten worse all sorts of digestive issues and constant burning

so this is very hard for me to do cause in the end i dont know if this will even help me and solve this long standing problem plus im already in pain before i started this process so im in that much more pain now

so as i said i started 10mg this week and now my throat is hurting worse i can deal with alto of the burning but i have this pain in the left side of my throat thats like a bad ache and thats really bothering me the most at the moment

supplements im taking to help this process is dgl,fennel and digestive enzymes

ive also been juicing vegetables everyday since i started about 16oz a day spinach,cucumber,carrots,fresh fennel,romaine lettuce,pears..i would do apples but it interacts with one of my medicines

basically besides dealing with the pain im just scared 1. if this will solve my problems and 2. how long i will be in increased pain for

if anyone has any other suggestions that have gone through it whether it be something to take..foods to eat please let me know...ive been eating the same thing everyday just baked chicken with some rice it doesnt take much to set me off right now

sunbeam48
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Date Joined Jun 2011
Total Posts : 795
   Posted 1/17/2013 3:40 PM (GMT -6)   
You could look into the Fast Tract diet. It is low carb and fiber, high protein and fat. There is a thread here with more details in the first post, including a book on Amazon. The author is a microbiologist with expertise in digestion.

iamloco724
Regular Member


Date Joined Mar 2007
Total Posts : 144
   Posted 1/21/2013 2:39 PM (GMT -6)   
for 3 weeks ive been weaning down dosages..im up to the week now where i either cut it off completely or go to every other day what does everyone think is best ?

grapelady62
New Member


Date Joined Nov 2012
Total Posts : 12
   Posted 1/22/2013 11:00 AM (GMT -6)   
Hi iamloco, ALOE ALOE ALOE JUICE!!! works well for temporarily putting out the fire. Walmart or GNC has it as well as most helath food stores. I was on PPI's for 11 years....and desperately wanted to wean myself off but was so afraid of the rebound acid. I went to a well respected naturopathic doctor for help with the weaning process, and paid dearly for her advice. So here it is FREE, maybe you will find something new that you aren't already doing.
 
Weaning Process:
Week 1:
PPI cut back every third day. I was on Dexilent (because everything else had stopped working) once a day. So you would skip day 3, then PPI for 2 days then skip again.
Week2: PPI every other day
Week3: PPI twice in 7 days (for example Monday PPI, Thursday PPI
Week 4: PPI only once...when symptoms are really bad...you choose the day....and if you have 2 days out of seven that you cannot deal with the rebound....just repeat week 4
Week 5: OFF PPI's completely
 
I asked about taking Zantac, or Tagamet on the off days and she preferred that I NOT take them as she felt it would elongate the weaning process. She also did bloodwork for vitamin D levels and upped my dosage, and checked for celiac (wheat allergy).
 
DGL chewed 20 minutes before meals, digestive enzymes, also chewable anytime...but nothing with Hydrochloric acid until you are fully healed and weaned off acid blockers. Once this process is done....and IF you have acid under control, it is ok, according to the ND to take an occasional H2 blocker like Zantac or Tagamet.
 
Aloe juice, anytime
Apples anytime
Stay away from trigger foods etc. (all the things you already know)
Raise the head of the bed, reduce stress if possible....yadayada...
It took me about 6-7months to just have the regular acid reflux that puts you on the meds in the first place...It was truly the hardest thing I have ever done health wise.BUT BUT BUT...
 
If you have a mechanical problem like a Hiatal hernia...you can only achieve so much success.
As soon as I had hernia surgery (done laparoscopically) and then TIF surgery, done through an endoscope to reinforce the LES....I am acid free....and life is soooo very much better.Not being in pain can even change your personality!!!
Good luck, I promise there is light at the end of the tunnel....just keep pursuing an answer for your gerd.Kathleen
 
 
 
 

iamloco724
Regular Member


Date Joined Mar 2007
Total Posts : 144
   Posted 1/22/2013 12:09 PM (GMT -6)   
thanks for all the info..first question which aloe juice would you recommend?

and i do have the hiatal hernia but i aslo have never felt relief from ppi nor was i put on the ppi for reflux related issues

thats where im struggling im worried that my hernia is now causing issues but this is pretty much constant

ive always been told its medium sized so i dont know really whats going to happen and thats what sucks about this

grapelady62
New Member


Date Joined Nov 2012
Total Posts : 12
   Posted 1/23/2013 12:38 PM (GMT -6)   
Walmart's aloe juice is unflavored and much more economical. If you mix it into some other juice you can hardly taste it. But if you just want to put out the fire immediately, just drink some down straight.It is in the pharmacy area on a low shelf as I think it might be a gallon jug.
 
Do you know how many centimeters you hernia is?
I have read somewhere on this forum that there is no conclusive proof that a HH can cause gerd....and yet that is exactly opposite to what my surgeon thinks. He believes repair the hernia and the weakened area of your diaphram....and the symptoms go away.
 
Sounds like you need to see a GI doc again and get some answers through various tests. Good luck....and don't lose hope. Kathleen 

iamloco724
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Date Joined Mar 2007
Total Posts : 144
   Posted 1/23/2013 12:51 PM (GMT -6)   
grapelady62 said...
Walmart's aloe juice is unflavored and much more economical. If you mix it into some other juice you can hardly taste it. But if you just want to put out the fire immediately, just drink some down straight.It is in the pharmacy area on a low shelf as I think it might be a gallon jug.
Do you know how many centimeters you hernia is?
I have read somewhere on this forum that there is no conclusive proof that a HH can cause gerd....and yet that is exactly opposite to what my surgeon thinks. He believes repair the hernia and the weakened area of your diaphram....and the symptoms go away.

Sounds like you need to see a GI doc again and get some answers through various tests. Good luck....and don't lose hope. Kathleen


no walmart by me

every report i have copies of from various drs only says either medium sized hernia or just sliding hernia

UC Veteran
Regular Member


Date Joined Sep 2011
Total Posts : 29
   Posted 1/23/2013 8:23 PM (GMT -6)   
I just started a thread outlining my success weaning off PPI's. Check it out.

iamloco724
Regular Member


Date Joined Mar 2007
Total Posts : 144
   Posted 1/23/2013 8:52 PM (GMT -6)   
UC Veteran said...
I just started a thread outlining my success weaning off PPI's. Check it out.


i have a bottle of acv pills but im scared to try them just cause in can also cause worsening in symptoms in some people

grapelady62
New Member


Date Joined Nov 2012
Total Posts : 12
   Posted 1/26/2013 12:06 PM (GMT -6)   
You could also try GNC (General Nutrition Center) Do you have that near you?
I used their aloe alot as well. Or try any health food store you might have. Online? it really helps to diminish the burning feeling.Kathleen

thegspeak
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Date Joined Nov 2012
Total Posts : 196
   Posted 1/26/2013 12:42 PM (GMT -6)   
I stepped down from Prilosec and gradually replaced it with Zantac until I was on Zantac 4 times a day and then I was supposed to step that down too. I did it this way in prep for my big LPR tests. Doc needed me off everything.

I def. had rebound despite the Zantac. In the end neither Prilosec nor Zantac helped me at all.
I always planned on switching to Nexum but after going through all that I think I"m going to try to work without PPI's.

I had results from strict diet and lifestyle changes so that's the way I'm going to go.

I think PPI's are evil now. devil

iamloco724
Regular Member


Date Joined Mar 2007
Total Posts : 144
   Posted 1/26/2013 5:02 PM (GMT -6)   
grapelady62 said...
You could also try GNC (General Nutrition Center) Do you have that near you?I used their aloe alot as well. Or try any health food store you might have. Online? it really helps to diminish the burning feeling.Kathleen


did what you use have citric acid in it ive had problems with aloe in the past because of that

im hoping i can get off of it fine all my symptoms that happen and progressed over the years happen no matter what i eat so i dont think its strictly diet related for awhile i believed it was the ppv actually causing all the symptoms or low acid so i guess well see

sunbeam48
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Date Joined Jun 2011
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   Posted 1/26/2013 7:25 PM (GMT -6)   
Iamloco, ppi's do cause very low acid. They cause long term problems because without enough acid, your digestive system doesn't work as well. If you can get off them and just use TUMS and/or Gaviscon you will be healthier. Eating 6 small meals of easy to digest food I think can be a workable strategy. But it is hard to get through the rebound and most people don't want to eat that way.

iamloco724
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Date Joined Mar 2007
Total Posts : 144
   Posted 1/26/2013 8:07 PM (GMT -6)   
sunbeam48 said...
Iamloco, ppi's do cause very low acid. They cause long term problems because without enough acid, your digestive system doesn't work as well. If you can get off them and just use TUMS and/or Gaviscon you will be healthier. Eating 6 small meals of easy to digest food I think can be a workable strategy. But it is hard to get through the rebound and most people don't want to eat that way.


what would be some examples of 6 small meals..its always hard for me to figure this out plus dont know if i can do 6 because of the schedule im on

sunbeam48
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Date Joined Jun 2011
Total Posts : 795
   Posted 1/27/2013 7:22 PM (GMT -6)   
You can see some foods on the Fast Tract Heartburn thread here and Digestive Health Institiute web site.

iamloco724
Regular Member


Date Joined Mar 2007
Total Posts : 144
   Posted 1/31/2013 5:36 PM (GMT -6)   
im now on every other day 10mg prilosec pain is increasing i want to try to avoid zantac.. any ideas for safe snacks during this period also dinners right now im eating the same dinner every night baked chicken breasts with brown rice

right now ive been eating rice cakes and sometimes sesame breadsticks im sure the rice cakes are fine not sure about the breadsticks but i would like other options better options for lunches as well i feel like everything is going to hurt so need what will hurt the least

sunbeam48
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Date Joined Jun 2011
Total Posts : 795
   Posted 1/31/2013 6:02 PM (GMT -6)   
Starchy carbs are difficult to digest.

iamloco724
Regular Member


Date Joined Mar 2007
Total Posts : 144
   Posted 1/31/2013 6:15 PM (GMT -6)   
sunbeam48 said...
Starchy carbs are difficult to digest.


would frozen steamed veggies be better then the brown rice?

iamloco724
Regular Member


Date Joined Mar 2007
Total Posts : 144
   Posted 1/31/2013 6:18 PM (GMT -6)   
also i have a problem i want to take digestive enzymes but the brand i use seems to constipate me for some reason

i know its that cause i stopped taking it and im fine again

i was taking source naturals essential enzymes
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