Barretts esophagus

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Nancy1
Regular Member


Date Joined Nov 2006
Total Posts : 127
   Posted 9/7/2012 8:57 PM (GMT -6)   
My husband had an endoscopy today.  The doctor let us know that he found Barretts esophagus and sent biopsies in to the lab to see if any cancerous cells were found.  He also suggested contact the Cleveland Clinic to be seen by a specialist for Barretts.  Has anyone been to the Cleveland Clinic for this disease?  My husband is so depressed.  He dealt with ulcerative colitis for over 30 years.  He now has an ostomy and was doing just great.  Now this!  How have others coped?

ericapeace2000
Veteran Member


Date Joined Mar 2012
Total Posts : 1110
   Posted 9/7/2012 9:14 PM (GMT -6)   
Hi Nancy! I bumped up a thread on Barrett's Esophagus that you may find to be helpful. Tell your husband to hang in there. Is he on medication? Has he changed his diet? There are also natural remedies that could be helpful.
GERD Moderator; Diagnosed GERD, no other medical conditions (this one is enough)

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 9/7/2012 9:26 PM (GMT -6)   
Nancy-

I have had Barretts for well over 6 years. Barretts doesn't mean cancer. There are 2 more stages to go and the chance of it changing is very very slim. When they found mine they did an EGD with biopsies in 6 months and then once a year for a few years. Mine hasn't worsened, so know they want to look at it every 3 years.
If he can control his reflux with meds the chance of it changing are even slimmer.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 9/8/2012 7:02 AM (GMT -6)   
Thanks for bumping up the thread Erica.

I think the best take home point is that when you look at the study showing deaths from ALL causes in people with Barretts, followed up over a long period of time, the biggest killer is not cancer of any kind, but heart disease!

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

sympotheticwife
New Member


Date Joined Nov 2012
Total Posts : 2
   Posted 11/25/2012 11:49 AM (GMT -6)   
Hi I am new to all of this. Not even sure if I am doing this correctly, but here goes! My husband has Barretts for a year now. He has this terrible daily struggle with stomache pain, acid drip, and SEVER dry heaving! His Dr says his stomache looks fine, but the pills he has him taking, Oabtiorazike 40 mg, first once a day, now twice a day plus over the counter drugs, do nothing! He just had another endoscopy to which he says, "things look about the same, so we will continue...." My husband is loosing HOPE and that is what has me so very concerned! If anyone has heard of anything like this and can shed some light, please do.

sympotheticwife
New Member


Date Joined Nov 2012
Total Posts : 2
   Posted 11/25/2012 11:51 AM (GMT -6)   
Just needed to correct drug name, Pantoprazole 40 mg, twice a day

edtorres1
Regular Member


Date Joined Oct 2012
Total Posts : 37
   Posted 11/27/2012 9:57 AM (GMT -6)   
Hi Nancy,
 
I too was diagnosed with Barretts about 6 months ago, I am 52 years old and had been suffering from GERD/heartburn for over 20 years. I was freaking out and depressed until I ran into this forum, I know much more about Barretts now.
 
I had fundoplication surgery in Sep 12 and have had no heartburn since. I am hoping that this will help my Barretts condition. I have modified my diet somewhat and with my surgery I am hopefull in combating Barretts, my surgeon does not recommend an endoscopy until 12 months after surgery.
 
I don't know if the surgery is an option for your husband, for me it seems to be working like a champ. Your husband may want to discuss the surgery option with his GI doctor.
 
R, Ed
 

ericapeace2000
Veteran Member


Date Joined Mar 2012
Total Posts : 1110
   Posted 11/27/2012 12:01 PM (GMT -6)   
Surgery could be an option for your husband. There are plenty of threads on this forum about the typical surgery with is the Nissen.
GERD Moderator; Diagnosed GERD, no other medical conditions (this one is enough)

Virgogirl67
Regular Member


Date Joined Feb 2010
Total Posts : 130
   Posted 11/27/2012 3:40 PM (GMT -6)   
Hi Nancy,

First of all, I am so sorry your husband has suffered through ulcerative colitis. My husband has UC. He acquired it at 30 and is now 48. He has had several severe flare ups, one that sent us to Cleveland clinic - terrible immune disorder! He is on 3 drugs to save his colon.

I, on the other hand, acquired reflux/gerd around that same age 30. I maintained it well on Nexium. I was on that drug for 9 years. Insurance stopped paying for it, and the result was Barrett's within a couple years of trying other drugs that did not work. I had the Nissen Fundo surgery a year ago this December. I will have an upper GI in January to see how the Barrett's is progressing.

I was very depressed when I found out about Barrett's, but this forum and all the information provided has helped calm my nerves - so has my family doctor. The surgery for me I feel has improved my situation by about 80% I would say. I am still tweaking my diet and habits to see if I can make things even better.

I remain confused as to why there is not more focus on the level of digestive disorders and diseases in this country, but forums like this are helping change that I think - gives all of us a place to go. Best forum I have found!

Best of luck to you and your husband. If he has reflux, I would look at all the procedures that will limit further damage, including Nexium and the procedures/surgeries. Take care, Anita

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 11/27/2012 6:47 PM (GMT -6)   
Off topic slightly, but a friend of mine with UC was helped a lot by food combining. Eventually a different drug combo did the trick for her, but the food combining kept it in check until then.

Lots of concerns about Barretts again so I'll reiterate the main take home point from the Barretts thread I started - the biggest cause of death, when you look at deaths from ALL causes in people with Barretts, is NOT cancer but heart disease!! If you look at just the statistics it helps put things in perspective. And the biggest risk group is not us here, not those of us who know we have Barretts and keep an eye on things, but those people out there who have Barretts and NO symptoms, because they are not going to get scoped. So far there is a loose idea that there may be a risk group for adenocarcinoma of the oesophagus, but as yet the researchers aren't able to define that risk group!!

MMM
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