Hi! My daughter has GERD. She has had very severe reflux since she was a newborn, and it never really got any better (despite what doctors said should happen). I have been trying my best for her, but she does not live with me, and I do not have as much of a say in how she is taken care of. In the mean time, I have times that she is with me and I need to care for her. I have asked what she wants (she is not quite 13), and I get a lot of the typical "I do not know"s that are typical for her age. When she was an infant, she has really bad allegries (all types) and the gastro allergies ended her up in the hospital at times.
Now, she has problems, but I am told by her that she has been told that nothing really can be done. I will be honest. I do not know the extent of what is really going on with her. I do not want to get into specifics, but all I can say are from observation and what she tells me. This is what I know. She has been diagnosed with GERD. She also has a slow to empty stomach. I could have told them that. She is still regerging things from the day before. She is on Prilosec or something similar, and she has to sleep with her bed elevated. This makes things better (at least nights), but she still has things going on. I remember always having a bucket by her bed so that she would not "throw up" (her words, not mine) on herself during her sleep. The reflux is always silent - not really throwing up. Her throat is typically scratchy and (what gets to me) is that she determines what she will eat by what will taste good coming up.
I am really trying to do what I can for her. Her sleeping is something okay, but there are times that the reflux overrides the elevation. I don't know what to do or what to give her when this happens. This (helplessness) has its basis in foods that she eats and what she can and can't eat. When she eats, there seems to be only 10 foods that she is willing to touch. They are odd (to me). If I was having reflux (and I have in the past), I would not touch these foods. Her favorites are pepperoni, pizza and spaghetti. Of all the foods she eats, these are the types she wants to taste coming back up. She has told me that she loves apples, but she will rarely eat them because they make the symptoms worse. Oh, she will eat one particular type of chocolate pudding. It is some chocolate jello brand pudding. When she was taking Prilosec capsules, I would break it open and mix the contents in the pudding (the casing on the pill would make her gag and she would not take them otherwise). She does not eat hotdogs or hamburgers (texture as well as taste) and almost all other types of meat are out. In fact, the only meat that I can recall that she will eat is pepperoni? She will not touch anything from the sea (fish or plants), but I do not know if that is because of the stomach or her own feelings about sea life.
What I want to know is if there is anything I can do for her to help her eat other types of foods. Right now, I am always making two lunches and dinners (I have another kid who refuses to eat anything her sister likes (Texture/taste sensitivities) and sometimes it is just easier to pick your battles). Tomorrow, I am making turkey. I already know that she will not touch it. She may (if she is in the mood) eat the dressing, but I seriously doubt that she will eat the meat. I already have a stand by if she can't (not just won't) eat it. I don't want her to have to live like this. I had to have gastric bypass several years ago, and I have a lot of limitations on what I can and can't eat. She is just a kid. I just wish that she could have a small smoothie without regretting it for the rest of the weekend (like this past weekend when she neglected to remind me until after I bought it for her). I don't know what to do. I already let her choose her foods, make her (which is like pulling teeth) take her medications and give her an elevated bed and a lot of pillows when she sleeps. I just wish she could have a normal life (I do not use that wording to her). She has told me that she would rather have surgery than keep on like this. She is just a kid. I want her to be happy. :/ I want her to be well.
UCTD (suspected Lupus) and probably Fibromyalgia.... still going through the tests and all that. Hypermobility is also a factor. Also have migraines, anxiety, depression, eye issues,...etc
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