Paraesophageal surgery this week. Help.

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Moonflower56
Regular Member


Date Joined Aug 2012
Total Posts : 22
   Posted 9/22/2012 7:26 PM (GMT -6)   
Hello all. I've been lurking this site for the past month when I was told that I needed surgery for PEH with entire stomach above diaphragm and upside down. My surgeon said it needs to be an open surgery because of the complexity. In reading many of the postings, I have not come across any that mention how to assure that normal medications are continued while in the hospital. My primary advised taking meds with me, specifically Effexor, and making sure that I don't miss a dose.

This site has been helpful but I can tell you that I am really beginning to get nervous. My surgery is this Thursday 9/27 and my anxiety has set off a severe fibro flare including low grade fever. Discontinuing NSAIDS before surgery, although necessary, sure causes a spiral of pain.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/22/2012 8:32 PM (GMT -6)   
I carried my medications with me and informed the nurses I had my medications in my suitcase. They let me take certain medications, but with their knowledge of which one and the time. Some of them they gave me.

I hope you have a smooth recovery.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Moonflower56
Regular Member


Date Joined Aug 2012
Total Posts : 22
   Posted 9/22/2012 8:47 PM (GMT -6)   
Thanks Joy. Did your fibro give you trouble during recovery? Was your PEH surgery successful?

Mayhaffs
New Member


Date Joined Sep 2012
Total Posts : 5
   Posted 9/23/2012 7:31 AM (GMT -6)   
Hey Moonflower,

I hope you are relaxed and breathing well. The doctors should take good care of you. Stay positive :)

Mayhaffs

Moonflower56
Regular Member


Date Joined Aug 2012
Total Posts : 22
   Posted 9/23/2012 8:38 AM (GMT -6)   
Thanks Mahaffs,

My breathing has been diminished for a while. Lungs appear clear but the crowding in my chest doesn't help. I am doing yoga breathing exercises which helps. The temp from the fibro/arthritis flare is gone this morning so I can get my "pre-surgery" things done.

I've read a lot of threads about nasogastric tubes. Does everyone have this? Sounds freaky...

cuicui
Regular Member


Date Joined Jul 2012
Total Posts : 35
   Posted 9/23/2012 9:00 AM (GMT -6)   
Hi Moonflower,
I too was recently diagnosed with a PEH - type 4, with entire stomach and part of colon up in the chest. I am currently scheduled for surgery in late October. I am 58 years old with no symptoms, so hard to imagine having all the ugly side effects once the surgery is completed. I have had this condition at least 8 years, but probably longer, as the doctor recently found an old report from 2004 that detected PEH. So I have lived with this a long time, without knowing it. I live in Michigan, but will be traveling out of state for the surgery. The plan is for a lap procedure. I will be anxious to read about your surgery and aftercare and recovery. Blessings in the days ahead.

Deb

Moonflower56
Regular Member


Date Joined Aug 2012
Total Posts : 22
   Posted 9/23/2012 12:46 PM (GMT -6)   
Hi Deb,
I've had a hiatal hernia for probably 20 years complete with reflux. A few years ago my diaphragm started making weird noises when I would breathe, especially after drinking liquids. My doctors couldn't figure it out. I also started having left side pain. Dr ordered ct scans of abdomen and again said nothing wrong. about 8 months ago I started having attacks after eating; severe chest pain, left shoulder pain, etc. a recent endoscopy show the hernia was bigger and my gastro felt the hernia had perhaps escalated. I've had recurrent anemia for several years also.

I was sent to a specialist in Miami at UM and he pretty much figured it out by listening to the symptoms. A barium swallow showed the entire stomach in my chest, upside down, slightly twisted and lying behind my heart. I'm a circus freak :)

I was very distressed that the surgery was to be done open and not lap... I pitched a vanity fit but he wouldn't budge.

I'm 56 and pretty freaked about this. I knew something was wrong and I've learned that we really have to advocate for ourselves.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/23/2012 1:41 PM (GMT -6)   
I didn't have a PEH, Just a big hernia due to a birth defect.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5028
   Posted 9/23/2012 6:03 PM (GMT -6)   
I had a GPEH due to a wreck and mine was done lap. I had to go through 4 months of testing before finally being allowed to have the op. I felt like I was having a heart attack the whole time.

Being older than many on this forum, I was in the hospital 4 days. I wasn't able to do anything but get the liquids I had prepared in advance for a couple of weeks. I don't have the addresses of my old posts, but they can be searched if you put in some keywords in the search box at the top of the page.

Paraesophageals need to be carefully let down through the mediastinum. The esophagus has to be dissected down long enough for the surgeon to do the wrap.

The shoulder pain is not a big deal. It may be gone before you even know you had it because you'll get pain meds in the hospital. Some of the newer docs are decompressing the abdomen better and using different gases that absorb faster.

Moonflower56
Regular Member


Date Joined Aug 2012
Total Posts : 22
   Posted 9/23/2012 6:09 PM (GMT -6)   
Thanks Alcie. I've read your posts and they were very helpful. I was also glad to read some posts by Bill that he had open surgery and did not find it worse than the lap.

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 9/23/2012 9:18 PM (GMT -6)   
Moonflower56-

Welcome to Healing Well.

Yes I did find my open Nissen much easier to recover from. Min was a very difficult redo as I had 2 previous Nissens an an esophageal perforation repaired just 6 months prior. My nissen was torn apart and I had massive amounts of scar tissue from all the surgeries.
I do want to say my sternum was sore for about 2 months or so after the surgery because they have to lift up quite hard on it to get in there. If it lingers ay longer talk to your surgeon as they ca prescribe a strong anti inflamatory to ease this.

I did not have PEH, but with my esophagus still healing it was a touchy surgery for me. I believe you will feel much better after this, but remember it is a long recovery for most people.Things should return to pretty much normal with a few quirks, but it is well worth it. Trust your surgeon's opinion it should be done open as they usually have a very good reason to do it so.

My surgeon had a wrap that went around my abdomin and it help a lot with holding the muscles tight when I got u from bed or a chair. My scar from this has faded as well as my lap nissen scars did. If I need another redo I am going to request it be done open.

about the NG tube....I had it with my first Nissen and my esophagus repair, but not with the redoes. So it is the surgeons preference. It is to help relieve pressure on the stomach early on and help with bloating.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Post Edited (opnwhl4) : 9/23/2012 8:22:12 PM (GMT-6)


Moonflower56
Regular Member


Date Joined Aug 2012
Total Posts : 22
   Posted 9/23/2012 10:41 PM (GMT -6)   
Thanks for the good advice, Bill. A few years ago I decided to have abdominoplasty (tummy tuck for short). Yes, vanity is my name!! So, when the doc said "open" for the PEH I literally had a panic attack. Oh well, at 56 at least I had a couple of years of good abs. And, I may actually still have the "wrap" you mentioned. It went around the middle and kept everything tight when getting up and down.

I'm glad you mentioned the sternum pain. I have coscochonditis (sp) with the fibro and I imagine that the ribs and the sternum will give me fits.

Today was "stock up" day to prepare for surgery. Apple juice, protein powder, baby food cereal (which I secretly love), dog treats, cat food and extra hay for the horses. Two days left to work, then I am heading to Miami to spend the night before Thursday's surgery. my husband asked why I was making a "packing list" for my hospital bag and I said, " it makes me feel in control"...

On a funny note, yesterday I was absentmindedly rubbing my abdomen and my husband asked what was wrong. I replied that my stomach was bothering me. He looked at me and wryly said, "I think you're rubbing the wrong place. Your stomach isn't there anymore. It's in your chest".

Laughter, it's the best medicine...

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 9/24/2012 10:26 AM (GMT -6)   
Moonflower56-

That was funny and I agree that laughter is the best medicine.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/24/2012 11:37 AM (GMT -6)   
 
I am wishing you the very best as you go forward toward your surgery.  I had major surgery on 8/16/12, however, it was not related to GERD.  I did not plan well as my mind was all over the place so my medications that I take daily by mouth were not addressed appropriately.   I was transferred from one hospital to another and on a ventilator for 24 hours so I was not able to communicate the need for my meds.  Good for you for being on the ball and asking this question.
 
Be sure the Dr. that is seeing you daily while in the hospital is aware of your daily meds and if there is a need to give you meds by a different route make sure the Dr. is knows  of this and orders what you need.
 
I spent the 5 days between dx and surgery getting all my paper work in order at home for my husband as I am the one that does most of the " important paper work" and over the 41 years we have been married I had ended up with my "papers" scattered in more than one safe or file cabinet.  Shame on me. 
 
Be sure to ask for what you need in the hospital as that give you back some of that control that as patients we feel we have lost. 
 
Blessing, good wishes, good vibes and success for you Moonflower.
 
Kindly,
Kitt
 
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"I am not afraid of storms for I am learning how to sail my ship" ~ Louisa May Alcott
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