So I went to the doctor again today (this is the 2nd GI doctor btw). They've already done a barium swallow, endoscopy, hida scan, gallbladder sonogram, stomach emptying test. I still have heartburn while on 60mg of PrevAcid a day. A month ago I felt like the doctor blew me off and was just killing time by telling me to keep a food journal. I felt hopeless but gave him the benefit of the doubt.
The doctor does know for a fact I have severe acid reflux, hiatal hernia, my lower esophageal sphincter doesn't close and is wide open, esophagus has been eroded, etc etc. I've lost 30 pounds in 3 months time. (just trying to do quick cliff notes, I know some of you have read my previous posts though).
I made print outs of:
1. what triggers my heartburn
2. what is "safe" to eat
3. my reflux symptoms
4. my other health issues that I believe are caused by the GERD (sinus, asthma, tachycardia, etc)
5. details on my pharmacological grade vitamins (and asked why they give me heartburn)
6. my food journal (including times of when i ate and details, weight loss info and what caused issues)
So he comes in extremely late... I'm already cranky from this (and the cold I have).
Him: what kind of symptoms do you have now?
Me: The same things, granted I don't have the 'heart attack' feeling of dying from heartburn pain while on PrevAcid. Then I hand him my print outs.
Him: "If the vitamins give you heartburn, don't take them"
Me: "The PrevAcid makes me feel awful, tired all the time, weak, exhausted, sick. I feel I need vitamins. I don't want to be on medicine forever, I've told you this."
He has me get on the exam table, checks my breathing. I get down and he says.
Him: We'll try a different medicine this time around. I'll give you samples. You could have IBS.
Me: Aren't there other options besides medicines? And I don't feel like I have IBS.
Him: Everything is connected, you could have IBS. You'll need to take medicine for GERD.
Me: I refuse to take medicine for the rest of my life.
Him: The other option is surgery, but if you don't respond to medicine, then surgery won't work and after a few years you'll need medicine again. Try this new medicine and call me in 2 weeks. You didn't have blood work done so I can't tell anything from that. And no wonder you have heartburn, you're eating everything you shouldn't! (he was looking at my "trigger" list!!!).
Me: Well, if you paid attention, you'd realize that is the list of triggers, here is my food diary (I put it in front of him and he laid the trigger list paper on top of it) you had me keep, I don't eat anything from that trigger list AT ALL, I'm terrified of those foods. I'm fed up with this, I'm exhausted and sick of feeling awful, why can't you figure that out?!
Him: I'm doing the best I can.
Me: Apparently that isn't good enough.
Him: Try these new pills and let me know how that works out. Then if not we can do a pH test while you are on the medicines to see how they are working. You need to be on them while we do the test to see if they are even working.
Me: When? In a few more months? Schedule an appointment and can't get in to see you for months at a time, just to be talked to for 5 minutes and given different meds and still feel awful?
Him: In 2 weeks call me and let me know how it's working out. We can schedule the test from there. I still think you have IBS.
Me: Whatever, I give up. I'll take the pills and see how these help. Thanks.
Sorry that was so long. Just want to give all details. So he put me on Dexilant 60mg per day. I'm pretty offended that he blew me off before and told me to keep a food journal, yet didn't even GLANCE at it. What was the point?!
Since I've been eating healthier I don't have IBS symptoms at all. I don't know much about IBS so who knows. I do know that I have classic heartburn symptoms and I'm sick of feeling awful all the time.
I didn't even bring up LINX because I was about to start crying by the end of the conversation. I am keeping my Nov 19 appointment with the LINX surgeon and will find out more from him.
I guess, I'm just frustrated and needed to vent. I feel like I'm getting NO WHERE. Is this common with the doctor? He's not being outright mean, I think he's a nice guy, but I feel like he's just blowing me off. I hate doctors who just push pills and don't listen :(
Does anyone know what he's going to be checking in my blood? They said I don't need to fast beforehand, so I'll go later today or tomorrow to have them take it. I was so worked up I couldn't do it right after being there (I freak out over needles and already felt too stressed).