A week ago (11/19) I drove 3 hours to Mt. Vernon, Ohio to Knox Community Hospital. I met with Dr. Paul Taiganides. Sorry this update is a week late. I've been getting really depressed about
always feeling so sick and basically have been a hermit.
So, I drove up there with all my past test results, information, list of what gives me reflux, foods I can eat, list of symptoms related to GERD, medicines, any medical issues at all, etc. Just very prepared. I wasn't feeling so well after the first 2 hours of driving, turns out I had a fever and was getting sick :/
I got there very early and then had to wait past my appointment. When he finally came in I knew why I had to wait - this guy actually LISTENS and cares! He spent about
30 minutes with me! He answered every single question I had with logical and real answers, unlike my past GI doctors. Dr. Taiganides was just as frustrated with my current GI doctors after I told him everything I've gone though and what medicines I'm taking. He couldn't believe they aren't taking me more seriously. I'm only 30 and extremely underweight, eating a perfect "safe" diet, on 60 mg PrevAcid daily and still have breakthrough systems :(
He educated me a bit more on GERD, what it does, what causes it and what can happen from it. He was the first doctor I've seen that was happy from the moment I met him and listened to me. He didn't make me feel annoying or crazy. I loved the fact he agreed that lifelong PPI's is just NOT an option. He told me about
how unhealthy they are, etc. This I already knew from research but you have to understand, all my GI doctors just tell me to stay on PPI's for the rest of my life. Keep in mind I want kids, but according to my GI doctors that isn't in the cards since I need to be on PPI's forever. So hearing someone LISTEN to me and give me hope that I can move on from this and start a family is amazing.
He did 12 of the trial LINX surgeries. Overall he has done 46 LINX surgeries, with no complications or after care problems, at all. He thinks I'm a better candidate for LINX than Nissen, just because LINX is much less invasive. I did get to play with the LINX device and it's genius! Also, just fun to play with LOL. It's a lot smaller than I had thought it would be, it
opens easily - but not too easily.
I asked him about
my insurance and told him my worries with getting it covered. He said his last 2 patients had United Healthcare and they were covered just fine! YAY!
He was very upset that I hadn't had a pH test done yet or the manometry test. He read the notes from the previous endoscopies and said they are extremely vague. He wants to do them all himself and get better biopsies and test accurately for Barrett's. So now I go back up there December 13 to get blood work, manometry, endoscopy and while he's in there the pH capsule. He also couldn't believe they wanted me to stay on the PPI's for the pH test. He basically said to get an accurate reading of your pH you need to be off the PPI's for at least a week.
December 13 is going TO SUCK for me :( But since it's 3 hours away I gotta try to knock it all out in one shot. My husband and I are going to drive up there after work on the 12th, stay in a hotel and then get to the hospital at 7:30am. I'm very nervous about
the manometry test - so please don't post how awful it was for you, it will not help my nerves! I go back on January 2, 2013 to get my test results and see where to go from there. From everything I've told him and the previous notes of the other doctors it seems surgery will be in my future. It's just a matter if it is LINX or Nissen.
I'm sure I left things out and I'm all over the place, so sorry about
that! If you have questions, ask, maybe it will ring a bell. I stop the PrevAcid on Dec 6, so I know I'll be having even more awful symptoms :( But in the end this will be worth it. They said during the 48 hour pH acid test I need to keep a food diary, what I ate, when I started, when I finished, etc. They said I need to eat 1 meal per day that normally triggers the relfux. I plan on eating buffalo wings and fried pickles, those are my 2 favorite foods and I haven't had them in over 6 months (they are probably what trigger this "wave" of GERD again) Oh and pizza, OMG I want pizza so badly! Maybe all that is over doing it? I guess we'll see how I feel closer to that time frame.
I honestly can say I left there with hope. He listened to me, he actually cared, he didn't just push pills in my face. I've been getting so incredibly depressed because of always feeling sick, people commenting on if I just ate food (because I'm apparently a "picky eater", which isn't the case, I just don't eat reflux causing foods) then I'd gain weight and why am I so skinny (I was also asked if I am bulimic or anorexic... awesome huh?). I guess Thanksgiving didn't help since everyone kept saying things. I feel my husband is just annoyed with me and this situation. I literally just want to start crying randomly. I'm so sick of being sick. But on the bright side I am getting this resolved (as much as possible) - there is hope, I just have to be patient... which is hard.
Okay, end of rant. This is a novel anyways. Thanks for listening everyone :)
Post Edited (NoDoubtLove) : 1/3/2013 9:58:17 AM (GMT-7)