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ladyinred
Regular Member


Date Joined Oct 2012
Total Posts : 36
   Posted 12/6/2012 10:57 PM (GMT -6)   
I had an open NF on Nov27th......things are manageable but I have been having terrific gerd at bedtime mainly the last two nights.  I take 60 mg of Dexilant a day, normally in the am thinking of switching to pm tomorrow.
 
Any suggestions appreciated.
 
I have other pains - back incision and stomach swelling but the gerd is the worst.
 
thanks confused

Sharon
RA, OA, Fibramilgia, scleritis, hiertal hernia, GERD, cardiomyopathy, sleep apnea

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/6/2012 11:13 PM (GMT -6)   
You're still in the healing phase of the surgery. The swelling makes the wrap leak sometimes. Once the swelling goes down it will be better.

Are you chewing well and eating less than 1/2 cup of food a meal? Too much food can cause leaking too during the healing.

They went through your back? That's unusual...
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

ladyinred
Regular Member


Date Joined Oct 2012
Total Posts : 36
   Posted 12/6/2012 11:23 PM (GMT -6)   
Thanks Joy.....yes went thru my back from near my left armpit to the middle of my back. Seems to be healing well but it pains along with my yummy pain and the left shoulder pain. I'd had 3 visits from a home health nurse to change my bandage. I was in the hospital for 2 nights. I look like I've been in a battle so many bruises.

Glad it is almost behind me but this gerd at night is a killer. I see the surgeon on the 13th.
Sharon
RA, OA, Fibramilgia, scleritis, hiertal hernia, GERD, cardiomyopathy, sleep apnea

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 12/6/2012 11:40 PM (GMT -6)   
Hi ladyinred,
Welcome to the yeah yeah yeah Wrapped Club! yeah yeah yeah You're in the in the thick of wrap-swelling right now.  My surgeon warned me that my wrap would become increasingly more swollen during the first two weeks.  The other thing he said (and it has been repeated often by others here) is that the esophagus is a dumb organ that interprets all pain as reflux. 
 
Could you be getting reflux? Possibly.  My surgeon said "anything is possible at your early stage of recovery" when I questioned him on reflux feelings I was having at about your stage. As Joy said, with the swelling, there can be some unevenness in the shape and fit of the wrap, which could allow some reflux through.
 
However, the "reflux" feeling you're having could simply be straight pain, which is always much worse at night.  Are you still taking the narcotic pain medication at night?  Definitely continue that.
 
One other thing that could be happening is food/medication getting stuck at the wrap site and irritating your wrap.  With the swelling, it becomes more difficult to get food and medication through and into the stomach, and at times it can get hung up at the base of the esophagus and slowly and gradually make it through the wrap.  In the meantime it can irritate the esophagus and cause pain that feels exactly like reflux (remember that "dumb organ").
 
Whatever the case, you're in the roughest stage of recovery, and it will get better with time.  We all had to go through those first few weeks, and it's not easy, I know.  Hang in there, go with the flow, surrender to your recovery and accept it as it is...it will improve with time.
 
Walking can help with the shoulder pain.  A very wise night nurse at the hospital clued me in on this.  She said that I should get up and walk whenever I got up to go the bathroom.  I walked in the hospital, dragging my IV pole along for the ride.  At home I walked laps around my house.  Eventually I started on my treadmill, but even if you don't have one, walking around your house regularly can be helpful.  That shoulder pain is very annoying and painful I know.  I found that the more I walked the less pain I had, and visa-versa.
 
Hang in there!
Happy healing,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

ladyinred
Regular Member


Date Joined Oct 2012
Total Posts : 36
   Posted 12/6/2012 11:57 PM (GMT -6)   
Thanks Denise.....I have been doing lots of laps around the house and also the stairs. I was aware - from this forum - of shoulder pain and other pain issues so I've been expecting that but this gerd kinda threw me. I am still taking the narcotics at night.

I did have some sweet potato tonight..thinned out with milk and butter which I've not had before so wondered if it was that. Otherwise I've been eating cream of wheat, applesauce, yogurt and cottage cheese.

Thanks again,
Sharon
RA, OA, Fibramilgia, scleritis, hiertal hernia, GERD, cardiomyopathy, sleep apnea

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 12/7/2012 2:28 AM (GMT -6)   
ladtinred-

Awwwww....you had a thoracic surgeon and they used a thoracotomy. I have been through that recovery too. My last redo was by a thoracic surgeon, but he used an open belly incision since I had just had the thoracotomy 6 months prior. That will be quite a bit more painful during recovery, incision wise, than my open surgery.

Did you have to deal with a chest tube at all?

+2 of what Joy and Denise said about swelling and chewing. You are going to think it didn't work, but you must be patient and let your body heal. Think more like 6 months or more before really getting the full effect.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 12/7/2012 10:30 AM (GMT -6)   
Hi ladyinred,
I'd probably avoid a lot of stairs at your stage.  You can pick that activity up after you've healed a little more.  Just walk that boring route on one floor for a while.
Trust us...it will get better.  It must be rough to have a back incision.  I lived on my back during recovery, and it must be annoying to be lying on one.
 
Also, with the extra pain you're having at night, I wonder if a sleeping pill script might temporarily help you get through and feel better.  Just a thought!
It will get better!
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle
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