MY GERD STORY, please read! I need opinions and suggestions

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Jasminehernanezx
New Member


Date Joined Dec 2012
Total Posts : 9
   Posted 12/25/2012 2:47 AM (GMT -6)   
Hello, I'm jasmine and I'm 15. (IM NEW HERE) I've been dealing with GERD for almost a year now it all started when I started 9th grade(now in 10th) I believe I have anxiety which made me scared of starting highschool and being around more people adding on stress but prior to the i was around my sisters arguing a lot when i was little and that scared me also causes to the anxiety.. but back to the story 9th grade starts and i start spitting up blood and they did the endoscopy to only find out I had a lot of inflammation of my esophugs and stomach I think and to find out I have bad case of acid reflux. The spitting up blood has stopped but the doctors have yet to find out where it was coming from, maybe a bleeding ulcer but my gastro doctor hasen't looked into it he put me on omeprazole which didn't help my gerd I felt as if it only became worse my doctor put me on nexium and I had a bad allergic reaction to it blisters on the lips. No medicine works for me. my doctor really seemed to not do much about my problem we did the barium thing where I had to swallow that chalk like substance which was gross :( I found out I had a hital hernia. it's like my doctor gave up on me he never mentioned the surgery or stronger medicine as for my symptoms they're only getting worse i now weigh 93 pounds from not eating as much because it hurts so bad I'm like beginning to tear because I can't live as a normal teenager. I can't play any sports because the acid comes right up I get so much chest pains that feel like I'm being stabbed through my body.. I get dehydrated so fast because when I drink the acid bothers me right away and to top it off I have bad asthma so I wheeze a lot and I get a lot of bubbly feeling in my ribs under my heart in my ribs I can hardly eat because I seriously throw my food back up I'm not sure if its the gerd but yeah. Whenever I lay down I feel the acid messing with me I get a drowing sensation I saw recent post about people getting the drowing sensation with gerd and when I wake up my throat hurts and sore and I can hardly talk. I'm always out of school cause I can't deal with the heartburn pain bothering me.. In 9th grade I practically failed because of dealing with gerd.. I really hate it any suggestions? Opinions? I'm sorry for giving you like my life story but I can't talk to anyone about this cause they don't go through this like I do

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 12/25/2012 10:46 AM (GMT -6)   
Hi Jasmine --
 
So sorry to read about all you're going through!  High school is difficult enough without having to deal with terrible health issues.
 
I want to give you something totally different to consider, to talk over with your parents, and your doctor.  You've described some serious symptoms, and your doctor(s) haven't addressed this.  I'm not surprised...my experience with GI doctors has been very poor, generally speaking, and I've been to eight.
 
You need to have your blood tested for the celiac marker, but even if that comes up negative, it's possible you could still be suffering from something called non-celiac gluten sensitivity.  If this is the case, the only way to diagnose it is on a trial gluten-free diet, and then "challenge" the diet after a few weeks to see if the challenge produces symptoms (assuming that you are better at that time).  This type of food intolerance can be host to all sorts of non-specific symptoms, including asthma, and even GERD.
 
There is also another potential antagonist, with a similar molecule to gluten/gliadin...and that's casein.  Often, people with this sensitivity can have intolerances to both.  There are specific blood tests for these intolerances, but the antibodies won't be apparent in significant numbers unless you are ingesting foods containing the proteins in question.  In other words, if you experiment with the diet on your own, you can't be tested accurately while on the diet.
 
Unlike food allergies, like with peanuts or kiwis, for example, food intolerances are subtle, and insidious.  An allergy will produce symptoms immediately, while an intolerance can take hours, or even days to appear.  This makes diagnosing it all the more difficult.  In addition, a special diet can take days or weeks to produce noticeable results, not only because it may take time for the irritating molecules to leave your system, but also for you to heal to the point that your immune system is no longer attacking various points.  This point is important to understand, because it's possible you may not notice significant improvement until a month has passed.  Perhaps you may feel better after a few days, but a diagnostic diet such as this should last at least four weeks.
 
I don't mean to increase your anxiety, but at this point, it appears as if you're still chasing symptoms and not making any progress.  Hopefully, thinking "outside the box" will bring you to a more comfortable place.  I'm not suggesting that this is the answer for you, but it may be something to consider.
 
Best wishes.
 
-Bruce

Post Edited (bcfromfl) : 12/25/2012 12:02:41 PM (GMT-7)


sunbeam48
Veteran Member


Date Joined Jun 2011
Total Posts : 795
   Posted 12/26/2012 7:59 AM (GMT -6)   
Jasmine,
Bruce offers good advice. He is very well-informed.

You don't mention what you are eating or drinking. Eat protein like eggs, fish, meats, they are the easiest to digest. Green vegetables are better than starchy ones. Sugar even from fruit is harder to digest, so eat that in smaller amounts, fresh or frozen straberries or melon are good. Jasmine rice and short grain white rice are good, also in smaller amounts because carbs are hard to digest. Splenda is the most digestible sweetener. Fats like butter and olive oil are fine.

Post Edited (sunbeam48) : 12/26/2012 7:06:30 AM (GMT-7)


Jasminehernanezx
New Member


Date Joined Dec 2012
Total Posts : 9
   Posted 12/26/2012 11:05 AM (GMT -6)   
sunbeam48 said...
Jasmine,
Bruce offers good advice. He is very well-informed.

You don't mention what you are eating or drinking. Eat protein like eggs, fish, meats, they are the easiest to digest. Green vegetables are better than starchy ones. Sugar even from fruit is harder to digest, so eat that in smaller amounts, fresh or frozen straberries or melon are good. Jasmine rice and short grain white rice are good, also in smaller amounts because carbs are hard to digest. Splenda is the most digestible sweetener. Fats like butter and olive oil are fine.


i eat small portions of food i hardly eat cause everything i eat bothers me at some point. i do eat eggs and rice and meats i haven't tried eating frozen fruit or green veggies.

rs1248
New Member


Date Joined Dec 2012
Total Posts : 4
   Posted 12/26/2012 4:13 PM (GMT -6)   
I have found that a diet/ lifestyle approach is usually the best method to start with. Here is a list of good recipes to start with: http://www.refluxmd.com/search/node/recipe

RefluxMD is also a good source of info of GERD as well as potential treatments. You can take an assessment test and based on your score it will give you a plan of action. http://www.refluxmd.com/take-action/assess-your-reflux/terms

Let us know any updates!

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 12/26/2012 4:50 PM (GMT -6)   
I'm sorry, but I do NOT agree with most of the recipes posted on RefluxMD.  Most of these recipes contain gluten, which is absolutely not the correct approach in this case.  As a matter of fact, I might make the claim that most cases of reflux are due, at least in part, to the immune response to gluten/casein intolerance.
 
There is a letter brewing inside me to the American Board of Gastroenterology.  Not one of the GI doctors I saw over a period of three years EVER mentioned diet, or the possibility of food intolerance.  Recent studies on the habits of doctors shows that the majority of them never read new material and studies with respect to their specialties.
 
-Bruce
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