i'm so depressed and over this

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stacey77
Regular Member


Date Joined Dec 2012
Total Posts : 109
   Posted 12/28/2012 2:18 PM (GMT -6)   
Hi! I am jus depressed. My life has went completely downhill since i was diagnosed with lpr. I used to always wine and complain before but i had no right. I just want to be normal again. I dont hang out with any friends and my friends dont even call me anymore. Maybe i'm feeling sorry for myself..i dont know. Im waiting for the biopsys from my endoscopy to get back and its causing me so much anxiety just waiting on it...i honestly dont even know what those biospys might show...can they show reflux? I have an appointment with my gi next week even though he said he didnt want to see more for six weeks after my endoscopy. I just can't wait though..and i hope he listens to me. that is always my biggest fear because I feel like most doctors dont fully listen. I dont even know what to tell him. If they find that my LES is messed up terrible i want to ask for the surgery but i dont even know how to go about asking him. I have already tried so much. I started feeling symptons in late september but i think this all started before then, because looking back i did have symptons that i would just ignore. I still get discouraged because i read so many posts on others sites where people have suffered with lpr/gerd for twenty years or more. I'm so afraid that will be me. My therapist tells me i can't compare my journey through life with others. What they go through doesnt mean that i'm going to go through that and visa versa. I know she is right, but its just hard. I also have OCD..and my ocd usually focuses on something i am going through in my life. Right now all i do is obsess over this. I talk about it all of the time. I just want to wake up and be cured. Right now i have this lump in my throat..that sympton comes and goes. i'm just so tired. i know you all understand:(

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1171
   Posted 12/28/2012 3:29 PM (GMT -6)   
I know exactly what youre going through, this illness can have serious psychological effects, i myself have clinical depression from it but luckily have been having treatment for it for a few months and am out of the worst bit. Still slow progress with my reflux problems though. Like you i am waiting on doctors and have pretty much decided i want surgery, i was diagnosed with a haitus hernia which is most likely the cause of my reflux but i need more tests doing and even then i dont know if theyll offer me the surgery.

While you're waiting for the results, i would talk to your doctor about depression, because you may have it and you need to deal with that alongside the physical illness too. How are you sleeping? Waking up after only a few hours? Do you feel tired all the time? Do you enjoy doing things u used to enjoy? Do you have trouble focussing on even basic things like watching tv or talking to someone? If the answer to those is yes then its likely u have depression and should see someone about it.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 12/28/2012 3:58 PM (GMT -6)   
Stacey,
 
Hey there, I posted to you in the Anxiety Forum.  One way to get your Dr. to listen to you is to make a list - a reasonable list of the high points you want to cover with him.  If he talks to you in terms you do not understand please ask him to repeat what he said in layman's terms.  If you have an appointment scheduled for 40 minutes you have the right to have his full attention for 40 minutes barring a life threatening incident in the clinic.
 
Make your questions brief and in a forthright manner ask the Dr. if you would be a candidate for surgery due to your severe LPR.  Also ask for a referral to a surgeon is he is not one. 
 
Remember you have the right to seek second opinions so do advocate for yourself.
 
I agree with your therapist - you cannot compare yourself with others but you can learn what helped others that have symptoms similiar to your own.  Also you can find support and caring by talking with others who suffer the same disorder as you.
 
Stay strong,
Kitt
 
 
 
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"Learn to get in touch with the silence within yourself, and know that everything in this life has purpose. There are no mistakes, no coincidences. All events are blessings given to us to learn from."~ Elisabeth K├╝bler-Ross

maria123
Regular Member


Date Joined Dec 2012
Total Posts : 37
   Posted 12/28/2012 5:39 PM (GMT -6)   
hi stacey, my name is maria and about four months ago i began having gerd symptoms out of no where when i took a vitamin. i swallowed it and it wouldnt seem to go down. Ever since then, that whole entire time ive had acid reflux all day every day. It scares me to think that i am hurting my esophagus non stop and i cant do anything to stop it. I am also afraid and feeling down because of this and was in need to talk to someone who suffers just as much as i do because no one in my family or friends has ever experienced anything like this.
I was diagnosed with h pyloriand had treatment for it but i still get the same exact symptoms and no relief. and im alwayd experiencing a lump in my throat

stacey77
Regular Member


Date Joined Dec 2012
Total Posts : 109
   Posted 12/28/2012 6:16 PM (GMT -6)   
thank you to both of you for responding and be so helpful. Maria..I know exactly what you are going through. how old are you? Its such a horrible and scary feeling. I have struggled with different illnesses throughout my life but this one tops it. I'm aso on ppi's and i hear they can make you worse..every site says something different. Maybe we can swap emails and talk more..get through this together:) -stacey

Allen B.
New Member


Date Joined Dec 2012
Total Posts : 12
   Posted 12/28/2012 6:25 PM (GMT -6)   
Hello Stacey,

First off, I am a 34 year old male who was diagnosed with gerd since I was 19 years old. The last 6 years of my life have been a living hell. Just like you I have lost all of my friends and seems like I am pushing even my family away. I notice lots of times I am just feeling so horrible that all I want to do is lay down. Pain is so bad that it causes me to have panic attacks. Just know your not alone!! It has to get better. :)

stacey77
Regular Member


Date Joined Dec 2012
Total Posts : 109
   Posted 12/28/2012 6:30 PM (GMT -6)   
Thank you Allen...I hope so...have you considered surgery?

Allen B.
New Member


Date Joined Dec 2012
Total Posts : 12
   Posted 12/28/2012 6:36 PM (GMT -6)   
I just had Nissen done 12-21-2012. In recovery now.

maria123
Regular Member


Date Joined Dec 2012
Total Posts : 37
   Posted 12/28/2012 6:38 PM (GMT -6)   
Yeah, Allen have you considered surgery? I have heard that the nissen fundoplication surgery has helped alot of people. I Am (as many people on this forums would consider) still in my early stages of this disease because ive only had it for four months but I have been trying a lot of ppi's and my esophagus still never stops burning. It is awful but i will keep trying.

Stacey- are we allowed to exchage emails through these forums?

maria123
Regular Member


Date Joined Dec 2012
Total Posts : 37
   Posted 12/28/2012 6:39 PM (GMT -6)   
How the recovery going for you?

Allen B.
New Member


Date Joined Dec 2012
Total Posts : 12
   Posted 12/28/2012 6:44 PM (GMT -6)   
Seems to be going good so far. Am back at work already, just taking it easy and watching what I eat and drink. Seems like water, boost, pudding and jello now. Occasionally I do mashed potatoes. I used to say I just want my normal life back, but seems I have forgotten what normal life is. :( hope this surgery helps, also I had ulcers in ny esophagus from the GERD. I was on PPIs for 10 years until I realized they were causing my panic attacks.

stacey77
Regular Member


Date Joined Dec 2012
Total Posts : 109
   Posted 12/28/2012 6:48 PM (GMT -6)   
they were causing you panic attacks? uuugh...i take 80mg prilosec a day. i always feel like uugh but i'm wondering if thats just cus of the lpr..or if the ppi's are causing it. I'm just too depressed to even know what is coming from what....so i guess im just waiting now.

maria. i dont know. i will find out.

maria123
Regular Member


Date Joined Dec 2012
Total Posts : 37
   Posted 12/28/2012 6:50 PM (GMT -6)   
Im glad it is going well for you. I have some questions. Im curious as to know how you survived for ten years. Did you have chronic symptoms all the time? I feel like i would not be able to withstand going like this for ten years. Maybe i havent learned to ignore my symptoms yet

stacey77
Regular Member


Date Joined Dec 2012
Total Posts : 109
   Posted 12/28/2012 6:50 PM (GMT -6)   
maria. emails are fine.
Edited to remove email. 
 
You can activate your email in your profile and it will be available by clicking the envelope icon to the left of your post, once it's active. 
 
 It's best not to leave your email available for non-members/lurkers to be able to harvest and use for spam. 
 
You're right...many people email each other.  Just keep the email address out of the body of your post.

Post Edited By Moderator (dencha) : 12/28/2012 8:46:31 PM (GMT-7)


Allen B.
New Member


Date Joined Dec 2012
Total Posts : 12
   Posted 12/28/2012 6:57 PM (GMT -6)   
Very very hard Maria, especially trying to work feeling like crap.

stacey77
Regular Member


Date Joined Dec 2012
Total Posts : 109
   Posted 12/28/2012 7:00 PM (GMT -6)   
Allen...did you ever ask for surgery earlier than that? did the docs ever encourage it??

maria123
Regular Member


Date Joined Dec 2012
Total Posts : 37
   Posted 12/28/2012 7:11 PM (GMT -6)   
Stacey, I emailed you from my gmail.
Allen what kind of complications do you have to have in order to qualify for surgery

Allen B.
New Member


Date Joined Dec 2012
Total Posts : 12
   Posted 12/28/2012 7:30 PM (GMT -6)   
GERD that wasn't getting better with meds and esophagael ulcers.

Allen B.
New Member


Date Joined Dec 2012
Total Posts : 12
   Posted 12/28/2012 8:13 PM (GMT -6)   
I'm sorry Maria, I misread your question. Thought you asked what kind of complications I had. I'm not sure as to what is the right answer to your question.

maria123
Regular Member


Date Joined Dec 2012
Total Posts : 37
   Posted 12/28/2012 8:30 PM (GMT -6)   
i was wondering if it is difficult to get doctors to approve you for surgery dependig on your complications. For example, ive heard people say that hey have been trying to get surgery done but docs advise against it

Allen B.
New Member


Date Joined Dec 2012
Total Posts : 12
   Posted 12/28/2012 8:34 PM (GMT -6)   
Cant talk for others Maria but after my first visit with a cardio surgeon, my surgery was scheduled for a week later. You can email me at [REMOVED EMAIL ADDRESS] if you ever want to chat and i'm not on here. Good luck to you!! :)
 
Edited to remove email.
You can activate your email in your profile and it will be available to logged-in members by simply clicking the envelope icon to the left of your post, once it's active.
It's best not to leave your email available for non-members/lurkers to be able to harvest and use for spam.
 

Post Edited By Moderator (dencha) : 12/28/2012 8:49:20 PM (GMT-7)

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