Fighting Oesophageal Reflux Together. Introducing FORT, a UK based charity.

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phil-uk
Regular Member


Date Joined Jul 2012
Total Posts : 190
   Posted 1/7/2013 8:41 AM (GMT -6)   
Hi all, Happy New Year.
 
I just saw this on-line, whilst researching something else and thought I'd place a link here for anyone interested.
 
 
As far as I can see this charity operates from an NHS hospital in Leicester
 
FORT Trust Administrator
Level 4, Windsor Building
Digestive Diseases Centre
Leicester Royal Infirmary
University Hospitals of Leicester
Leicester
LE1 5WW
 
 
cheers
 
Phil
 
Edited to add address of Charity

Post Edited (phil-uk) : 1/7/2013 6:49:56 AM (GMT-7)


dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 1/7/2013 10:07 AM (GMT -6)   
Thanks, Phil!  It looks like a great resource for our UK friends! turn
Happy New Year to you, too!
Denise 
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

reet22
Regular Member


Date Joined Jan 2013
Total Posts : 146
   Posted 1/7/2013 12:13 PM (GMT -6)   
Thanks Phil,i live in uk and have been after a site to help me with the reflux just what i needed. Thanks again & a happy new year

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 1/7/2013 6:25 PM (GMT -6)   
I'm UK too, I'll take a look, well done for spotting this!

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 1/8/2013 5:12 AM (GMT -6)   
I've had a look around the website but there are not many recent posts. Hopefully it will grow!

MMM
New stuff: GERD, Recurrent cystitis/Overactive bladder
Lifelong stuff: Food allergies/intolerance, eczema, asthma

phil-uk
Regular Member


Date Joined Jul 2012
Total Posts : 190
   Posted 1/8/2013 5:20 PM (GMT -6)   
Hi MMM, yes it does look quite quiet!

I guess the FORT discussion area could be seen as a competitor to HW and as such it raises slightly awkward questions! However, I am quite into the idea of 'cross pollination' of ideas between discussion sites, if you understand what I mean and it is a UK centered offering, rather than US based, so perhaps there is not a problem. After all, we share the same goals!

Perhaps, in fairness to HW I will put a link to this site from the FORT discussion area.

FORT does look like it is backed by some serious consultant level gastroentorologists, and I like the idea of easier access to getting involved with clinical trials.

For example, the ChoPIN trial, looking at the genetics of Barretts.
http://www.fortcharity.org.uk/chopin_trial.html

phil-uk
Regular Member


Date Joined Jul 2012
Total Posts : 190
   Posted 5/11/2013 6:17 PM (GMT -6)   
Hi Mum!

I collated some useful info about microscopic endoscopy over at fort. There look to be some interesting developments for those with Barretts [who need regular screening]. We could even see the demise of biopsy over the next few years.

Subjects are,

Capsule endo from Nine Point Medical
Cellvizio microscope tool for standard endoscope
Access [patient choice] to this technology in the UK at UCLH
Research at UCLH [National Medical Laser Centre]

take a look,
 
 
cheers
phil

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/12/2013 7:56 AM (GMT -6)   
Hi Phil, thanks for that - will have a look! Am in favour of anything that spares me the dreaded gastroscopy!!

MMM

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/12/2013 7:59 AM (GMT -6)   
Hmmmm... It's on a string so it can be pulled back up... I'm still not keen!!
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

mudmagnetmum
Veteran Member


Date Joined Apr 2011
Total Posts : 1604
   Posted 5/12/2013 8:04 AM (GMT -6)   
PS: I found the website very negative last time I looked, very much pushing the Barretts = cancer scary stuff. My own GI cons agreed that Barretts is very much downgraded of late, with the evidence of progression being low - they just like regular monitoring. I wrote in to the website giving my views that they were scaremongering (not using those exact words) but I never got a reply.

MMM
GERD (3 years and counting)
Lifelong stuff: Food allergies/intolerance, eczema, asthma

phil-uk
Regular Member


Date Joined Jul 2012
Total Posts : 190
   Posted 5/12/2013 4:43 PM (GMT -6)   
Hi Mum, I just reviewed the info on Barretts on Fort and thought it just looks like a fairly standard, slightly out of date, broad based summary.
Nothing too scary for those of us lucky enough to have been picked up early, to enjoy the benefits of regular monitoring and early treatment in the unlikely event of progression. [lol]

I think the new device will be a doddle compared to the regular endoscope. It looks about the size of a large fish oil capsule, I think having control, swallowing the device, rather than having something pushed down one's throat is a major advance. Yes it has to be pulled out, but this exam could be over in a few minutes, with a high quality microscopic digital image stored for future review.
Other benefits are ability to compare historical images accurately, easy peer review of images, reduced need for biopsy and reduction of time between diagnosis and treatment. In the future this device could be used for regular screening in primary care, which is a major step forward for B.E. patients.
I am going to try and get my next endoscopy at UCLH, but that's a year away.

All the best

phil
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