nissen fundo Failure

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Baza
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Date Joined Jan 2011
Total Posts : 513
   Posted 1/9/2013 10:14 AM (GMT -6)   
 Hi everyone,im at 10-11 months post full nissen and am refluxing as much as i was pre surgery,back on nexium and gaviscon.My surgeon has no idea why im refluxing as he can see nothing wrong with my wrap after 2 endoscopies  and barium and fluroscopy everything looks as it should.Has anyone any idea where to go after this,ive tried every ppi and had the surgery.is there anything left? cry

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7184
   Posted 1/9/2013 10:35 AM (GMT -6)   
Hi Barry,
So sorry to hear how you're struggling!  Not fun at all.  It is strange that none of the testing shows a reason for what you're experiencing.  Have you had a 24hr PH monitor again?  That would be very informative, and would give you leverage to get something done to take care of what's going on.
 
Bill (moderator), while not refluxing, had an imposible time swallowing and none of of the tests showed anything but a normal wrap.  It was not until they got in there through surgery to they find out that the wrap was twisted and incorrectly done.
 
Can you get a second opinion from another surgeon who is highly experienced in Nissens?  I would think that it would be a good next step.
Wish I could offer more help!  I guess you'll have to settle for support...I don't have any answers for you!
Good luck,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 1/9/2013 11:08 AM (GMT -6)   
Hi Denise,thanks,i would love to get a second opinion but i simply have no money to pay for it.All the statistics show that the niissen should work and at least improve symtoms.You would think there would be at least less reflux than before if the wrap was intact.Im Baffled.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7184
   Posted 1/9/2013 11:45 AM (GMT -6)   
Barry, can you get a 24hr PH test?
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 1/9/2013 2:50 PM (GMT -6)   
Il push my Gp for a test.Thanks Denise

1 day at a time
Regular Member


Date Joined Nov 2012
Total Posts : 289
   Posted 1/9/2013 4:08 PM (GMT -6)   
I'm 7 weeks post surgery & have had nothing but baffling complications. Given my situation and reading other's problems after the nissen makes me wonder if strange and annoying outcomes are inherent with the procedure. Hopefully they'll find a cause for your symptoms. Some things just don't show up on cat scans, scopes, etc. It's really disheartening when you know you don't feel right but the tests show "normal healing."
Take care of yourself & try not to give up.

stacey77
Regular Member


Date Joined Dec 2012
Total Posts : 109
   Posted 1/9/2013 9:06 PM (GMT -6)   
Hi i talked to my new GI doctor today about sensitzing throat and esphagous..you might be refluxing without really refluxing acid...like "spasms" I was put on zoloft for a 9 week period to desensitze my larynx and esphagous..but i also here elevail and other nerve meds work. good luck and i am sorry to hear this:(

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 1/10/2013 6:03 AM (GMT -6)   
Hi thanks everyone for the replies,i guess surgery is not the answer to reflux for everyone,i know im not alone with surgery that hasnt worked,wether thats down to the surgeons skills or a persons anatomy i dont really know.Funny thing is i had that gut feeling you get that my surgery wasnt goin to work.I never had faith in my surgeon for some reason,he just didnt come across as confident to me but i went ahead anyway out of desperation.Hopefully time will tell. Barry

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7184
   Posted 1/10/2013 7:43 AM (GMT -6)   
Hi Barry,
What actual symtoms do you have?  Is it heartburn pain, or reflux coming to your mouth?  What were the symptoms you had that led you to surgery?  Did you have all the pre-op testing?  What was your PH monitor DeMeester score?
Lots of questions, huh?
Take care,
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Post Edited (dencha) : 1/10/2013 7:14:48 AM (GMT-7)


Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 1/15/2013 9:44 AM (GMT -6)   
Seen surgeon and hes arranging a Manometry test to see whats going on,hope it shows something,he said im might just be one the the people surgery doesnt help and i,ll have to remain on ppis.Hope not, thats the reason i went for the surgery because i couldnt tolerate side effects!
I asked why i didnt get a mamonetry test before the surgery and he said its not done now as a barium swallow shows if theres a motility problem?? Thats not what ive been reading?

opnwhl4
Veteran Member


Date Joined Dec 2008
Total Posts : 4961
   Posted 1/15/2013 12:27 PM (GMT -6)   
Baza-

I don't agree with your surgeon. the barium swallow is just one of the tests, but a manometry should also be done as it shows how the esophagus muscles actually work and what the LES pressure is.
It took me almost 3 years to get an answer as to why my 1st nissen wasn't working. Finally after about 13 dilations 5 barium swallows and 3 manometries they saw something strange on the last barium swallow when I was laying down. They weren't sure what it was and asked if I would allow them to do an exploratory surgery. I agreed. Right before surgery he asked me what I wanted him to do while he was in there. I told him to do what he would want done if I was him or one of his family members. This also was a different surgeon than my 1st.
After the surgery he came to me in recovery and thanked me many times for pushing him to go in and take a look because it was done incorrectly and no amount of dilating or even PPIs would have helped. The junction was at a 90 degree angle, but tried to straighten out when I swallowed. After he redid it correctly all was good, well up until my esophagus tore.

Not saying this is what is going on with your, but if you can afford a second opinion please do so.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 1/15/2013 2:26 PM (GMT -6)   
Hi Bill,thankyou very much for your post,youve given me some hope that something could possibly be not done correctly with my surgery,hopefully something will show up.My hat off to you for what you went through,i can only imagine how you felt at that time.Glad your ok now! Thanks! Barry

Gaviscon99
Regular Member


Date Joined Apr 2012
Total Posts : 53
   Posted 2/22/2013 11:35 AM (GMT -6)   
Hi,

I too have had 2 failwed fundoplications. first was done 2011 and 270 degree wrap and next 2012 a 180 degree wrap. ph studies after each shows significant relux despite being on high dose PPI (160mg omeprazole daily).

I have seen surgeon and medics and they want to try to manage me on medication. Gastrectomy with roux en Y has been mentioned but only as a last resort as I am only 31. Any thoughts on this?

Baza
Veteran Member


Date Joined Jan 2011
Total Posts : 513
   Posted 2/22/2013 12:53 PM (GMT -6)   
hi Gaviscon99, so sorry to hear about your failures,strange you had a 180 degree wrap after a failed 270 one? Can i ask why have the wraps failed and had a explanation been given,where they too loose for example.Also did the same surgeon do both wraps? So bad you being only 31 aswell! Barry
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