7 Years Post-Nissen; Inconclusive Problems

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

[J.K.]
Regular Member


Date Joined Nov 2012
Total Posts : 29
   Posted 1/14/2013 3:52 PM (GMT -6)   
Hey all,
I had a Laproscopic Nissen Fundoplication back in 2005 and, for the last two years, I've been having consistent and intense pain. It oscillates between gas-pressure/esophageal pain, occasionally radiating out toward my ribs and soforth.

So far, barium swallow tests and endoscopies have suggested the Nissen has held up very well.
They did tissue/blood tests, which came up with nothing.
A digestion test showed there's no signs of "dumping" or abnormal digestion.
The endoscopy didn't show anything too irregular, either.
I even tried specialized (gluten free/dairy free/soy free) diets to see if anything was aggravating me, and those didn't offer any help, either.

I'm very active and fit at 28. So far I've been on a muscle relaxer, 4 or 5 different varieties of PPI's, an antibiotic, and a couple steroid sprays.

I've seen two separate doctors, neither of whom can come up with any results or new plans. A surgeon once suggested a dilation, but the gastroenterologists didn't think it was warranted; indeed, sometimes the gas seems endlessly ripping from my throat, and other times I can hardly burp any more than one dry, harsh belch.

I'm not sure what's happening, but if anyone else has advice or knows of any potentially unusual post-nissen happenstances, I'd be interested to hear it; the internet hasn't provided me with much through my Google searches.

Post Edited ([J.K.]) : 2/11/2013 6:26:00 PM (GMT-7)


hitThePost
Regular Member


Date Joined Dec 2011
Total Posts : 133
   Posted 1/14/2013 4:10 PM (GMT -6)   
Either spasms or Eosinophilic Esophagitis at some level, IMO

[J.K.]
Regular Member


Date Joined Nov 2012
Total Posts : 29
   Posted 1/15/2013 9:51 AM (GMT -6)   
Does eosinophilic esophagitis show up measurably on a barium swallow? I don't believe it was mentioned when I last went to the doctor...
The pain is amazingly disruptive.

hitThePost
Regular Member


Date Joined Dec 2011
Total Posts : 133
   Posted 1/15/2013 7:11 PM (GMT -6)   
EoE would only show up on an Endoscopy with biopsies across the upper, middle and lower esophagus....they would show an abnormal amount of white blood cells. It is incredibly painful, and mimics reflux to a tee. Also causes spasms as well, more of a gripping and/or crushing sensation....

[J.K.]
Regular Member


Date Joined Nov 2012
Total Posts : 29
   Posted 2/11/2013 8:30 PM (GMT -6)   
Hello, hello. Me again.

It's looking like this isn't a case of EoE after all, so I'm just about out of options. I don't know if anyone is even reading this, but if someone is, I'm looking for one last idea. I figure I may as well throw all my chips on the table and say "let's give it one grand, final stab" before giving up, y'know?

I'm on my own, and I'm at a loss here; I don't see any emotional or financial viability in tussling with this any longer as it only seems to get worse and worse with each passing month. If you were in my weary shoes, what would you have your doctors do?

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 2/11/2013 10:24 PM (GMT -6)   
Hi [J.K.],
Has anybody mentioned the possibility of esophageal spasms?  I know they can be very painful.  A friend of mine (who'd had a Nissen) was having very painful spasms and had trouble getting any help her GI doc.  It turns out her PCP recommended trying botox injections, and it has worked for her.
 
Don't give up.  There IS an answer out there.  Get second, third, fourth opinions. 
Very best wishes!
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

[J.K.]
Regular Member


Date Joined Nov 2012
Total Posts : 29
   Posted 2/11/2013 11:15 PM (GMT -6)   
I've taken both muscle relaxers and a low-grade antidepressant for the possibility of spasms. I can't imagine that's what it is; the primary sensation is something like a trapped gas pain (which I would have assumed was an indication of my wrap being too tight if it weren't for the fact that I occasionally belch quite frequently). I also have a strange pain in my ribs just a bit left of my xiphoid process and an occasional burning at the base of my throat that PPI's don't seem to touch. These pains used to alternate between strong and week for a couple weeks back and forth, but there's been no reprieve lately. I can't even recall what it must be like to be healthy, to sit back on a quiet evening and not be occupied primarily with thoughts of pain or discomfort.

I never would've guessed something like this would happen, much less dominate my life so much. I don't go out much anymore. I can no longer play music with others. My writing has pretty much ceased now that my mind is occupied almost solely by my stomach problems. I haven't had a proper relationship since before this all began. Everything that made my life has what it was has deserted me, leaving only hope in its place. And the funny thing is, I've nearly given up on that as well.

Do people still have exploratory surgeries anymore? Or is that just substituting an exhaustive procedure for what could be done in simpler ways?

gerd_hater
Regular Member


Date Joined Oct 2012
Total Posts : 322
   Posted 2/12/2013 12:04 AM (GMT -6)   
Hi J.K.,

Like Denise says, there IS an answer out there. So, please don't give up.

Like Bill suggested on the other thread you posted, were you able to get in touch with any teaching hospitals (I personally don't know any) for a possibility of redo?

Concluding a functioning Nissen from Endoscopy and Barium Swallow is suspect in my opinion. pH test and Manometry are probably required if you want to rule out failed Nissen completely. In fact, you can use them to push for redo if they are abnormal.

GH

Andy1986
Veteran Member


Date Joined Dec 2012
Total Posts : 1178
   Posted 2/12/2013 10:17 AM (GMT -6)   
Have you had a pH test to see if you're getting reflux?

Could it be a gas/bloating problem?

If all else fails I may ask to go down the dilation route, imo it's better to try it than live in pain. Or have a redo with a partial wrap.

Dont give up, I know how psychologically damaging this kind of pain is, believe me. Do some research online for coping with persistant chronic pain, there are lots of great things out there which can make coping with pain aimed at people with uncurable conditions, but that can help anyone dealing with pain. It'll make it easier until you finally get this sorted.

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7188
   Posted 2/12/2013 10:50 AM (GMT -6)   
Hi [J.K.],
Actually, Bill (moderator) had a wrap that wasn't functioning properly.  He couldn't eat without food getting stuck.  All the tests indicated that the wrap was intact and doing fine.  Finally a surgeon asked Bill's permission to do what was an exploratory surgery.  When he did that, he discovered that the wrap had been constructed incorrectly, and he repaired the problem. There were some complications, but he healed fine and his new wrap worked perfectly.
 
Keep in mind that the esophagus interprets all pain as reflux, so that probably explains why the PPIs aren't helping.  Sorry you're struggling.  There is an answer out there. 
Good luck!
Denise
 
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 26, 2018 3:30 AM (GMT -6)
There are a total of 3,006,711 posts in 329,383 threads.
View Active Threads


Who's Online
This forum has 161846 registered members. Please welcome our newest member, Ferran.
128 Guest(s), 1 Registered Member(s) are currently online.  Details
Mustapha